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Heather Brenner
- Female
- Riverside, MO
- United States
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Heather Brenner's Discussions
I am trying to write to my donor family!! HELP??
26 Replies
Started this discussion. Last reply by marjory rhys cohen Dec 12.
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I wrote my Donor family after 6 mos. I was told to write as soon as I felt emotionally ready. I am about to write my second letter. Let it be from the heart. Once I started writing I couldn't stop--It ended up being 2 pages in length. Let them know…
Hello Heather,
I wrote to both of my donor families, (ten years after my first kidney transplant). When I started my letters I was told that I couldn't include a lot of personal information such as, at which hospital the transplant was done,surgery…
Good advice. Thank you for sharing, Jose. Congratulations on your heart transplant and God bless you for your work with the Living Legacy Foundation.
Sincerely,
Peace and Joy,
Jean
Can't even imagine how you felt Jean...I feel for your donors' family big time but thank God they had it in their hearts to want to help others in their grief! I'm a true believer that when it's your time, it's your time and even in suicide, it must…
I, too, was told to wait a year or more before making anonymous contact via a letter to my donor family. I feel my situation was all the more difficult, as my donor was a victim of suicide. I cannot express how deeply I felt for the family for their…
Hello Jean, I'm sooooooo happy for you and thank you so much for your kind words! Its sad that the ones that want to hear anything from their recipients or donor family don't. But I guess we wouldn't have each other then would we? And for that I'm v…
Thank you for sharing the gift of life with others. I am glad I found this post, as I have never received a reply to my letter to my donor family. I am always thinking of them and wondering if they will ever want to know more about me and how their…
I don't know why, but it took me a long time to find just the right words to write in a letter to my donor family. Saying thank you wasn't enough, yet I needed to express my deepest gratitude for the gift of life, as well as to let them know I was t…
Hello Heather,
First, congrats on your transplant! I applaud you for taking this difficult first step in writing to your donor family. I would suggest that it's always best to share the truth. The fact that you're a Hospital Ministry is nothing more…
Hello Heather and Everyone that replied to your post
HI my name is Jose Vargas. i am a year and a half post heart transplant. I am a voluteer with the Living Legacy Foundation. When I was gonna write my letter I spoke with some donor parents and asked them what did they want to hear or not want to hea…
Hello Heather,
I am 3 months out and starting to ponder what will I say in my letter to my donor family, I was told to wait to write my letter for at least 1 year. This is a great topic after reading other responses I now have a general format on ho…
thank you everyone!! your posts about your experiences have helped me so much, I love this web site!!!
Profile Information
- What is your city / state and country of residence?
- KC, MO
- How are you touched by transplantation?
- I am a Recipient
- If you are a recipient, what type of transplant did you receive?
- Liver
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- GOD
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- Prograf, cellcept, prednisone
- What is your hospital and, or doctor's name, city / state and country?
- KU Med. Dr. Forster, Kansas
- What is your relationship status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Hey just another bit of info, I plan on starting a foundation called DeLIVERing hope. It will be a way to help people with tasks and financial issues. I am also writing a book called "in the blink of an eye"
- What is Your Favorite Quote(s)?
- "For I know the plans I have for you, declares the lord, plans to prosper you and not to harm you. Plans to give you hope and a future."
JEREMIAH 29:11
- My Personal (non-commercial) Website, Page, or Blog URL:
- http://stpgirl7@yahoo.com
- My "MySpace" Page (copy and paste your profile page URL):
- http://deliveredgirl7@myspace.com
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How to thank someone!! my letter to the family, I need help
Hi all, well it has been a year and a month and some odd days since my Liver Transplant and I did have some episodes of rejection I am now feeling comfortable and ready to write my letter to the donor family, I am having some trouble on what to write and what Not to write.. I don't want to offend the family at all and I really want them to contact me.
I am not sure if I should say that I am a Christian and that I do Hospital Ministry?
Any ANY feedback/suggestions would be great!!! Please let me… Continue
I am not sure if I should say that I am a Christian and that I do Hospital Ministry?
Any ANY feedback/suggestions would be great!!! Please let me… Continue
Posted on October 28, 2009 at 9:00pm — 3 Comments
ALMOST 1 year :)
Hey everyone who reads this!! Okay Sep 10 09 will be one year!! in 3 days I will visit my liver doctor to see how I am doing, and I am very excited!! I will also visit the ICU room I was in right after my transplant and the other room I was in, I will probably get emotional but I don't care,after all it's where my life changed for the better. I think things are going fine and my blood tests are great even though I did forget to take my meds for awhile.. I am feeling great yet still have pains in… Continue
Posted on August 30, 2009 at 8:00pm — 2 Comments
ALMOST 11mos
Hi Hi everyone, Just wanted to update. I am so thankful to have made it this far!!! unfortunatlly I am forgetting about taking my meds. oops but I do feel fine and I have slacked off on my labs. Doctors don't realize how expensive it is. Anyways, I am loosing weight and the old prednisone effects lol. I guess I find it hard to CHOKE down my meds everyday and I don't feel any different. I am gonna try and remember. Does anyone know if me forgetting my meds for about 3 weeks would do any long-term… Continue
Posted on July 30, 2009 at 7:18pm — 4 Comments
June!! 9mos
Things have gotten a whole lot better and it has almost been 9 months :) I now think I am out of the "danger zone". I still can't work but I did get medicaid which helps alot, now I pay 167.00 a month and about 8 bucks for my meds. not bad considering I used to pay about 900.00 a month for meds alone.. And the side effects of the cellcept are considerablly better, no complaints for me!! Thanks to everyone who gave me info on meds and medicaid :). Oh yeah I am also in the middle of writing a book… Continue
Posted on June 5, 2009 at 6:00pm — 2 Comments
Cellcept!!
Hello, well I just got back from my 6month appt. with my doctor, it has been six months since my Liver Transplant. Well I had thought I would get off Cellcept eventually but now my doctor gave me the news that I would have to be on it forever. I allready have to take Prograf and Prednisone, don't get me wrong I am glad things are going well but the side effects of cellcept are making me upset can anyone relate?
Posted on March 11, 2009 at 10:00am — 13 Comments
Comment Wall (14 comments)
- At 5:03pm on October 15, 2009,
TransplantCafe.com said… - Glad to know your labs are good..congrats!!
- At 9:00pm on September 18, 2009,
Holdol said… - Heather, glad to hear that everything seems to be better. It sounds all too familiar, getting pumped with steroids!! No fun :( Stay positive and it's SO important that you take your meds regularly! You can't forget those woman! After this episode, it will hopefully be smooth sailing for you. Just wanted to let you know I'm thinking about you and wishing you a quick recovery :)
- At 11:57pm on September 14, 2009,
TransplantCafe.com said…
- Hi Heather,
Are you hospitalized? What's happening? Hope you, or if someone else, they recover very soon. Keep us posted.
Best,
Nelson
- At 6:07pm on July 31, 2009,
Catherine J Geisen (Cathy) said… 
- At 12:51pm on March 16, 2009,
Julian said… - this information is for anyone on disability and had commercial ins( someone , pretn, spouse, or other famly member pays fo rit out of their paycheck), you shoul dbe eligible for mediciad if you are on disabiliyt, and if you do no thave it, apply for it, yoiu should get it, and once yoiu get medicaid, medicaid will the person who is paying for your commercial insuracne if it is found cost effective for them to.
i have more information if you nee dit.
or look on the back of your monthly medicaid paper that comes each month , it states in one of the boxes to see if you are eligible to be reimbursed for oit.
if i can help in any way, email me:
mssara1962@yahoo.com
we recently became eligibla for this program and we get reimbursed for th epremium i pay for my husbnad to be insured., every little bit helps.
Sara and Julian
website: www.tiptopwebsite.com/saraguzman
email: mssara1962@yahoo.com
- At 12:46pm on March 16, 2009,
Julian said…
- can you give me that site to aply for a prograf card?
- At 6:59pm on March 13, 2009,
Karen Weddick said… - Hi Heather: Thank you for the Prograf information. It sure did help, I'm all signed up and Prograf card is in the mail. It took less than 5 minutes on the phone. Congrats on your liver Tx and glad work is going well for you. Never stop dreaming and keep reaching for the stars. Thank you again and have a blessed weekend.
Hugs, Karen
glitter-graphics.com
- At 5:42pm on March 13, 2009,
Terri Lynne said… - Hi Heather, welcome to TC. Please click here for some info to get you started.
Thanks, Terri
- At 12:07am on March 13, 2009,
Karen Weddick said…
- At 12:18pm on March 12, 2009,
Karen Weddick said…
- Hi Heather:
I would like that information on the prograf card. I also sent you a friend request and hope you'll be my new friend. Have a wonderful Thursday and hope to hear from you soon.
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