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Heather Brenner
  • Female
  • Riverside, MO
  • United States
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I am trying to write to my donor family!! HELP??

Replied Nov. 8, 2009

I am trying to write to my donor family!! HELP??
27 Replies

Started this discussion. Last reply by Paula M. Rice Feb 2.

Do you believe you take on some characteristics from your donor after you receive an organ?

Replied Oct. 30, 2009

 

Heather Brenner's Page

Latest Activity

Neuropathy?
August 6
Happy Spring!
March 14
Heather Brenner joined TransplantCafe.com's group
The "Show Off Your SCAR" Group!!
Proud of your badge of honor? Well let the world see it! WARNING: Contains images of surgical scars that some may consider offensive.
February 28
Heather Brenner commented on Heather Brenner's blog post 'Turning 30!'
Thank you for all the Birthday Wishes :) I am officially 30!!!!! and loving it!
February 16
Jeff commented on Heather Brenner's blog post 'Turning 30!'
Birthdays around the corner ! God Bless you with MANY more years. May you continue to wake up with a smile and realizing that every day is a good day whether or not the sun is shining, Cold or Warm. and always remember that things will always work o…
February 11
Terri Lynne commented on Heather Brenner's blog post 'Turning 30!'
Congratulations and happy late birthday!
February 10
Paula M. Rice left a comment for Heather Brenner
February 8
Heather Brenner received a gift from Paula M. Rice
Hugging Bears

Hugging Bears

From the Gift Store
February 6
John Mackay commented on Heather Brenner's blog post 'Turning 30!'
Congratulations, enjoy the day and every day to the full, you are special, so live a special life, hugs John
February 6
Bobbiejo Winfrey commented on Heather Brenner's blog post 'Turning 30!'
Congratulations on your upcoming birthday! I will also be turning 30 this year although the date is much closer to the end of the year, in October. I got a liver among others in a multivisceral transplant more than four years ago. I hope that your s…
February 6
Paula M. Rice commented on Heather Brenner's blog post 'Turning 30!'
Hey Cathy, w/your liver & my heart we have a good start on a new whole person B'day!. LOL a lot! Hugs & Blessings, Paula
February 6
Paula M. Rice commented on Heather Brenner's blog post 'Turning 30!'
Hey, we have the same b'day, kinda. It's my TX (heart) & 2nd b'day. We can go out & get crazy, maybe get a burger & a shake. Rather have a martini, but they don't like me back. Happy B'day, "Child". I have 35 actual yrs. on you & they are GOOOOD! En…
February 6
Heather Brenner added a blog post
Okay on Feb 14th 2010 I will be 30! I am so happy to be alive and doing well, my New liver is about 1year 5months give or take lol, I have finished my letter to the donor family and keeping my fingers crossed! god bless you all!
February 5
Heather Brenner and Paula M. Rice are now friends
February 5
Paula M. Rice replied to Heather Brenner's discussion 'I am trying to write to my donor family!! HELP??'
Hi Heather. I'm almost 9 yrs. out, heart, & I've written my donors family twice. I know the recieved them, but, for whatever the reason, they chose not to reply. I'm going to wait until AFTER my "B'day",2-14-01, to write again. I can only believe th…
February 1
marjory rhys cohen replied to Heather Brenner's discussion 'I am trying to write to my donor family!! HELP??'
I wrote my Donor family after 6 mos. I was told to write as soon as I felt emotionally ready. I am about to write my second letter. Let it be from the heart. Once I started writing I couldn't stop--It ended up being 2 pages in length. Let them know…
December 12, 2009

Profile Information

What is your city / state and country of residence?
KC, MO
How are you touched by transplantation?
I am a Recipient
If you are a recipient, what type of transplant did you receive?
Liver
Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
GOD
If you are a recipient, what type of donor did you receive your Gift of Life from?
Deceased Donor
What is your principal transplant med(s)?
Prograf, cellcept, prednisone
What is your hospital and, or doctor's name, city / state and country?
KU Med. Dr. Forster, Kansas
What is your relationship status?
Single
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Hey just another bit of info, I plan on starting a foundation called DeLIVERing hope. It will be a way to help people with tasks and financial issues. I am also writing a book called "in the blink of an eye"
What is Your Favorite Quote(s)?
"For I know the plans I have for you, declares the lord, plans to prosper you and not to harm you. Plans to give you hope and a future."
JEREMIAH 29:11
My Personal (non-commercial) Website, Page, or Blog URL:
http://stpgirl7@yahoo.com
My "MySpace" Page (copy and paste your profile page URL):
http://deliveredgirl7@myspace.com

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Heather Brenner

Turning 30!

Okay on Feb 14th 2010 I will be 30! I am so happy to be alive and doing well, my New liver is about 1year 5months give or take lol, I have finished my letter to the donor family and keeping my fingers crossed! god bless you all!

Posted on February 5, 2010 at 3:05pm — 8 Comments

Heather Brenner

How to thank someone!! my letter to the family, I need help

Hi all, well it has been a year and a month and some odd days since my Liver Transplant and I did have some episodes of rejection I am now feeling comfortable and ready to write my letter to the donor family, I am having some trouble on what to write and what Not to write.. I don't want to offend the family at all and I really want them to contact me.
I am not sure if I should say that I am a Christian and that I do Hospital Ministry?
Any ANY feedback/suggestions would be great!!! Please let me… Continue

Posted on October 28, 2009 at 9:00pm — 2 Comments

Heather Brenner

ALMOST 1 year :)

Hey everyone who reads this!! Okay Sep 10 09 will be one year!! in 3 days I will visit my liver doctor to see how I am doing, and I am very excited!! I will also visit the ICU room I was in right after my transplant and the other room I was in, I will probably get emotional but I don't care,after all it's where my life changed for the better. I think things are going fine and my blood tests are great even though I did forget to take my meds for awhile.. I am feeling great yet still have pains in… Continue

Posted on August 30, 2009 at 8:00pm — 2 Comments

Heather Brenner

ALMOST 11mos

Hi Hi everyone, Just wanted to update. I am so thankful to have made it this far!!! unfortunatlly I am forgetting about taking my meds. oops but I do feel fine and I have slacked off on my labs. Doctors don't realize how expensive it is. Anyways, I am loosing weight and the old prednisone effects lol. I guess I find it hard to CHOKE down my meds everyday and I don't feel any different. I am gonna try and remember. Does anyone know if me forgetting my meds for about 3 weeks would do any long-term… Continue

Posted on July 30, 2009 at 7:18pm — 4 Comments

Heather Brenner

June!! 9mos

Things have gotten a whole lot better and it has almost been 9 months :) I now think I am out of the "danger zone". I still can't work but I did get medicaid which helps alot, now I pay 167.00 a month and about 8 bucks for my meds. not bad considering I used to pay about 900.00 a month for meds alone.. And the side effects of the cellcept are considerablly better, no complaints for me!! Thanks to everyone who gave me info on meds and medicaid :). Oh yeah I am also in the middle of writing a book… Continue

Posted on June 5, 2009 at 6:00pm — 2 Comments

Comment Wall (18 comments)

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At 8:50am on February 15, 2010, Catherine (Cathy) said…

At 9:47am on February 14, 2010, Holly Werlein (Holdol) said…
Happy Birthday Heather!! I hope you and your liver have a wonderful day of celebrating :) How's your book coming along? I hope all is well...
At 1:41am on February 8, 2010, Paula M. Rice said…
I find it quite amusing that you will be 30 & I will be 9, in TX yrs! & 32 in heart years, while at the same time, I'm coming up on my body's 66th. birthday! Isn't it amazing how we all have 3 B'days? TX; organ & then, body! Isn't God clever? Even in the funky & smetimes dark times He strives to keep us amused. We only have to look for it. How R U celebrating? I think we're going to the Olive Garden. They have the most amazing Choc. Gelato! Hey, lifes short. Eat desert 1st.!!!!! Dinner is for all those other days. Hugs & Blessings, Paula PS. We'll celebrate together, if only in our minds!
At 10:51pm on February 06, 2010, Paula M. Rice gave Heather Brenner a gift…
Hugging Bears
Late B'day present, Baby Girl. H&B, Paula
From the Gift Store
At 5:03pm on October 15, 2009, TransplantCafe.com said…
Glad to know your labs are good..congrats!!
At 9:00pm on September 18, 2009, Holly Werlein (Holdol) said…
Heather, glad to hear that everything seems to be better. It sounds all too familiar, getting pumped with steroids!! No fun :( Stay positive and it's SO important that you take your meds regularly! You can't forget those woman! After this episode, it will hopefully be smooth sailing for you. Just wanted to let you know I'm thinking about you and wishing you a quick recovery :)
At 11:57pm on September 14, 2009, TransplantCafe.com said…
Hi Heather,

Are you hospitalized? What's happening? Hope you, or if someone else, they recover very soon. Keep us posted.

Best,
Nelson
At 6:07pm on July 31, 2009, Catherine (Cathy) said…

At 12:51pm on March 16, 2009, Julian said…
this information is for anyone on disability and had commercial ins( someone , pretn, spouse, or other famly member pays fo rit out of their paycheck), you shoul dbe eligible for mediciad if you are on disabiliyt, and if you do no thave it, apply for it, yoiu should get it, and once yoiu get medicaid, medicaid will the person who is paying for your commercial insuracne if it is found cost effective for them to.

i have more information if you nee dit.

or look on the back of your monthly medicaid paper that comes each month , it states in one of the boxes to see if you are eligible to be reimbursed for oit.

if i can help in any way, email me:

mssara1962@yahoo.com

we recently became eligibla for this program and we get reimbursed for th epremium i pay for my husbnad to be insured., every little bit helps.


Sara and Julian

website: www.tiptopwebsite.com/saraguzman

email: mssara1962@yahoo.com
At 12:46pm on March 16, 2009, Julian said…
can you give me that site to aply for a prograf card?

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