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Dottie welker commented on TransplantCafe.com's group Team Prograf
"So true, but anyone who goes against their doctors advice is playing with fire."
May 30, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"ah ok sorry then since I was questioning it earlier in the thread I felt that it was dirrected towards me and wanted to make sure that there were no misunderstandings. I am sorry you are having an icky day I hope you feel better tomorrow"
May 30, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Matt, im not arguing with my tp team by any means and follow my meds to the T actually my doctors have told me better than a lot of their patients. You have to know that all these meds have their side effects also though and finding a balance is…"
May 30, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Aww Bobbiejo and Karen thank you for the smile. Just having a day I guess, honestly this is so rare for me but yes I feel much better. Ive  been working some crazy hours and not sleeping that great I talked to my husband and he said "thats…"
May 30, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Yea my tax advisor told me that the fine would be 500 this coming year and 1000 the year after based upon the info he had at the time. sometimes .... very rarely..... i wonder if it's all worth it. guess I don't feel good at all today ...."
May 30, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"I dont want to sound rude because that isnt how i mean this but do you have private health insurance or government aid? I am curious because everything we are hearing is that the cost of private healthcare is gong to go through the roof and I am…"
May 29, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"You sure are Connie, I spend 500 a month on healt insurance work 40 hours a week have a 5000.00 a year deductable and spend right at 100.00 a month on meds before the prograf and Adcirca, the adcirca is about 1800 a month before my insurance then I…"
May 29, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"no not as long as I eat something with the meds. If I dont its not pretty at all I get shaky and my tummy starts doing high dives. I was on 24 a day total then dropped to 16 now 12 but yea I really want to be one of you 1 or 2 pill a day people. But…"
May 29, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Hi David, Yea my doc did the same but since they deemed it non formulary they can get away with me paying the difference. I dont know what your dosage is but I take 6 1 mg 2x a day so that works out to 244.00 that I have to pay. I could even deal…"
May 29, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"no worries Matt, lets face it we all have off days no and again and some even more than others. All this transplanting and near death can take a toll on the emotions. Its all good my friend"
May 28, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Hi David, Thanks but it isnt that easy. He actually did but BCBS decided to rename it as a nonformulary so they can slip that loop. We have a plan so hopefully it works out   Thank you Dottie"
May 28, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Hi Carlos, Congrats on the decade in the new liver!! I bet it looks great on you :) I have kept up with my labs for 10 years and have binders full I believe in being your own advocate. I fought hard for what I have and have received. Although I…"
May 28, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Hey Jan and thanks for the welcome, I love a woman with an opinion so power on hunny :)"
May 28, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"Hey Bobbiejo, 6 organs?!!!! WOW!!! I bow to you madam!! I hope you are doing alright that is such a major undergoing. Blown away   much love Dottie "
May 28, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"http://curca.buffalo.edu/students/pdfs/2011_posters/54_Valentine_Lumiere.pdf Matt, I posted a link to one article there are many online.Thank you for your reply I appreciate a forum where people are active. On the topic of name brand vs generic,…"
May 28, 2013
Dottie welker commented on TransplantCafe.com's group Team Prograf
"wow sorry for all the typos !! teach me to read before hitting enter lol  "
May 24, 2013

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At 10:01am on May 23, 2013, Karen Weddick said…

Hi Dottie:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
1972 & 2007
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Latest Activity

Ramona replied to Stefan's discussion Hello, I am new here
"Stefan, Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days.  I will keep you in my thoughts - and hope for the best possible…"
yesterday
Parent of B posted a discussion

Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
yesterday
Stefan posted a discussion

Hello, I am new here

Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
Friday
Stefan liked Stefan's profile
Friday
Stefan left a comment for Stefan
"My wife is a double lung transplant of 15 years"
Friday
Stefan is now a member of TransplantCafe.com - The Gift of eLife!
Thursday
Jeff Clardy posted a discussion

Surgery after transplant

I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
Wednesday
Karen Harrill replied to Phil Keyes's discussion Post transplant blues
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
Tuesday
Karen Harrill replied to Bornali's discussion In distress ..may be just need to hang on in the group Acute Liver Failure Transplants
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
Tuesday
Karen Harrill added a discussion to the group Acute Liver Failure Transplants
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My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
Tuesday
Karen Harrill joined TransplantCafe.com's group
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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
Tuesday
Profile IconKaren Harrill, Parent of B and Ali Barton joined TransplantCafe.com - The Gift of eLife!
Tuesday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Makes sense to me. Good one David."
Tuesday
Ali Barton and Karen Weddick are now friends
Tuesday
Ali Barton updated their profile
Monday
Lloyd Hopes liked TransplantCafe.com's group Share Your Transplant Story
Monday

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