"I just did some quick browsing on the topic of GMOs and Monsanto and learned that in reality, the situation in Europe is same as here. Back in mid-90's for a brief time I was exec director of a non-profit for women with cancer.…"
"Good points for sure about Aspertame and GMOs. Good news on the Aspertame: The "10" soft drinks (10 calories, 2 grams sugar) now being sold use other sweeteners that are not known carcinogens, like Aspertame. Plus, they do not leave the…"
"Tom, you make a VERY strong point when you talk about the ongoing improvements in transplant care now. The changes are pretty dramatic and the transplant docs have specific goals and guidelines and protocols now that they follow to ensure…"
"I am now 15 years, 7 months, 10 days out from transplant, and always know the number. But I know people with transplants that have lasted 25 and 30 years. I was told at the time of my own transplant that you could not expect one to last more than…"
"My insurance agent has had his kidney for 35 yrs - his sister was his living donor. I met a woman a few yrs ago in the supermarket who still had her cadaver kidney for 23 yrs. I do believe being diligent about meds and nutrition and…"
"My kidney transplant was done 3 mos ago. There was a nurse working in my hospital area where I was recuperating from the surgery - she'd received a kidney transplant 25 yrs ago! At first, she said the hospital as resistant to her working…"
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
My son received a cadaver pancreas and kidney in 1998. Kidney failed, but now (2009) has a new kidney donated by my boyfriend!
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Living Donor, Deceased Donor
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I am a retired paralegal.
Transplant Surgeons, Doctors Coordinators and Facilitators: What Area of Transplantation do You Specialize In? Where do You Practice, or Work? How Has Transplantation Touched You Personally?
My son's surgeon was Julia Melzer, M.D. at UCSF in 1998. His surgeon for the recent kidney in 2009 is Dr. Kang at UCSF. Wonderful doctors!
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
My son had excellent care through UCSF Medical Center, Julia Melzer, M.D., Peter Stock, M.D., his assistant Cely Hinson, NP and other transplant doctors for follow up visits. My son's kidney failed while under the care of Kaiser San Francisco's Transplant Program.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
What Is Your Relationship Status?
In a Relationship
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
wow i had a fever like a 2 months ago they told me cuz my white blood cells were low and they putted me on prednisone!! is that bad?? is great to hear that ur amazingly healthy and loving life!!i love life!!! well the reason for my kidney failure is cuz i was born with my kidneys not fountioning right!! its called alports symdrom!!!it runs in da family
Just wanted to stop by your page and say Hi. My name is Tara Maynard. I am 26 yrs young and just had my 10 post dbl lung transplant anniversary on May 27th 2009! hope to hear back from you. take care
Thank you Nelson, but I am clueless about this stuff and couldn't figure out how to add it to the Transplant Creations site were people were adding poems, photos, and apparently "inspirational songs" were said to be appropriate. I have difficulty navigating the cafe website as it is, so I guess I'll have to leave it where it is, unless you want to move it or share it in another place. Many thanks for all your hard work on this website!
Hi Diana. Another good place to add the link for the song is in a blog post of your own, or in a forum discussion.. in a category that covers things of this nature. That way everyone will see it on the home page when they come on the site..
Yes about my creatine being 2.o to 3.0 for years. My kidney suffered from cycolsporine toxicity ~~to high trough levels and the Cyclo just didn't like my Kidney. So I was on Cyclosporine for about 4 years or so, and they changed me to Prograf~~after starting Prograf my creatine was 2.0-2.5 for years 'actually until a few moonths ago'. One of the reasons on my creatine jumping around was that my Pancreas was grafted to the bladder and deydration was a problem....so in 2002 they did a Enteric conversion (Pancreas to small intestine) and I was pretty stable from that point on (Dehydration for me was always an issue with Creatine levels).. This last July when my Pancreas failed~~my creatine started rising also~~they didn't up my anti rejection meds, but did a ultra sound and saw that the Kidney was on its way out. I hoped that helped you~~~God bless you, Tracps Yes I will be listed again at UCSF & Barnes Jewish Hospital in St. Louis :)
Thanks for sharing your story, I hope all goes well for your son. I will pray for him. I dont know too much about the BK virus. Other than they keep me on low doses of anti rejection meds which keeps the virus to a minimal. I was diagnosed with the BK virus in March '02 and my creatnine has been quite stable.
Best of Luck.
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JJ is now a member of TransplantCafe.com - The Gift of eLife!
"You have every right to worry and to express your feelings. It's a roller coaster ride and we have all been holding on for years. I am very happy that you are feeling well. We need to vent our feelings . I think it is difficult for most people…"
"Thank you for your reply. I've deceided to make an appointment with my local nephrologist since I don't go back to Jackson Memorial in Miami until September. My creatine is 0.8 really good so I'm sure there is nothing wrong with it…"