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Darlene
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- Farmdale, OH
- United States
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- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Bone Marrow
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- Thank You Jesse !!!
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- In April 2006 we found out that our son Owen was in urgent need of a bone marrow transplant . The doctors told us that Owen had six months to live. Right away we started searching for a donor. We found out that all three boys have the same exact HLA type , but could not use each others marrow because they all have ALD. In June we received the phone call that they found a double cord blood for Owen and it was a 4 out of 6 six match.
The experts told us we would go to The University of Minnesota Medical Center for Children. In July we headed west , we stopped and visited our family in Missouri . This was very hard because we decided it would be best to leave Dylan and Jacob here with my sister Sandy and her family. My parents and sister Charlotte also live close to Sandy , so there would be lots of family caring for Dylan and Jacob. We arrive in Minnesota on July 17 , and on Aug. 4 2006 Owen had his double cord blood transplant. My parents brought Dylan and Jacob to Minnesota so we could all be together for Owen. While Dylan and Jacob were in town the doctors wanted to have their MRI'S done . We soon found out that Dylan would need a transplant .
We were living a nightmare . On Oct. 4 2006 , just two months after Owens transplant Dylan receive a 6 out of 6 match bone marrow transplant. All three of my sons have Adrenoleukodystrophy (ALD). So far Jacob's MRI'S have been coming back clean , but it is a constant worry on all of our minds.
I feel as if it's a time bomb and not know if or when it may go off. It has been two years since our journey began . Owen is running around and back to his rambunctious self. Dylan is in eighth grade . He was on the track team last spring and continues to wow us with his beautiful mind . Jacob is in sixth grade and on the school football team . I am SO very Proud of my boys.
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- http://www.caringbridge.org/visit/owenhalverson
The Bend in the Road ~ Helen Steiner Rice
The Bend in the Road
Sometimes we come to life's crossroads
And we view what we think is the end.
But God has a much wider vision
And he knows that it's only a bend-
The road will go on and get smoother
And after we've stopped for a rest,
The path that lies hidden beyond us
Is often the path that is best.
So rest and relax and grow stronger,
Let go and let God share your load
And have faith in a brighter tomorrow-
You've just come to a bend in the road.
Sometimes we come to life's crossroads
And we view what we think is the end.
But God has a much wider vision
And he knows that it's only a bend-
The road will go on and get smoother
And after we've stopped for a rest,
The path that lies hidden beyond us
Is often the path that is best.
So rest and relax and grow stronger,
Let go and let God share your load
And have faith in a brighter tomorrow-
You've just come to a bend in the road.
Darlene's Photos
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Lili Feldman commented on Jay Robare's group Inspirational Stories"Appropriate Attire
One Sunday morning an old cowboy entered a church just before services were to begin. Although the old man and his clothes were spotlessly clean, he wore jeans, a denim shirt and boots that were very worn and ragged. In his hand…"
Walter s replied to Tai's discussion eating shellfish post transplant"I ate shrimp before but I stopped because I wasn't sure .. I was wondering the same thing because my favorite food is lobster and steamers :/"
Lili Feldman commented on Lili Feldman's group The Funny Bone"A man walks into a packed pub and shouts "Drinks are on me!"So the bartender gives every one a drink and says to the man "that'll be $96 please"The man looking puzzled says "I havn't got any money." So the…"
Lili Feldman commented on Lili Feldman's group The Funny Bone"Defense Attorney: Will you please state your age? Old Lady: I am 94 years old. Defense Attorney: Will you tell us, in your own words, what happened the night of April 1st? Old Lady: There I was, sitting there in my swing on my front…"
Daniel Larby posted a status"i had a liver transplant in 2007 im doing really well. hows everyone else doing sincee there transplants?"
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TC AdminKaren Weddick said…
Musical Scraps for Orkut
TC AdminKaren Weddick said…
click to get Orkut Myspace happybirthday Comments & Graphics
View this on YouTube http://www.youtube.com/watch?v=hgL1i62InIc
Please, be a part of this project!! This is an OHIO project only for now!! We want to start the ball rolling here and NOW before others do it! The goal is to collect 50 – 75 transplant recipients in Ohio to send in clips to add to the presentation. After we gather the 50 from all over Ohio, we will send it to the media via YouTube. This is VERY important and we need to take care of this in VERY short order!! Get others recipients involved!!
I am looking at August 15th deadline!
It is VERY IMPORTANT to show the positive and active side such as smiling or laughing, standing with a loved one, or holding a sports item like a golf club or basketball, or engaged in a hobby, at work, at a baseball game ... you get the picture!!
Directions: Save a video clip with a digital cam. Use ONLY a format of 320x240. Say ONLY "An organ donor saved my life", or "An organ donor saved my life ... twice". The clip can be no longer than 3-4 seconds!!
Remember, by giving us the clip you are authorizing us to use on YouTube to send to the media, and Lord knows how big this can be. But by staring this in Ohio we can start the project for the entire U.S.!!
Contact me DIRECTLY at dfg1958@yahoo.com or call me at 440-521-3726
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