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Dan & Sue Frame
- Male
- Black Earth, WI
- United States
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Dan & Sue Frame's Groups
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Fans of Three Rivers on…
78 members
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Team Prograf
192 members
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Caregivers, family membe…
46 members
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Transplant Anecdotes & A…
13 members
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Restoring Hope Transplan…
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Dan & Sue Frame's Events
Dan & Sue Frame's Page
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Latest Activity
i have been thru all that and here is my story:
http://www.caringbridge.org/visit/julianguzman
anyone interested in chatting about my experience, email me:
mssara1962@yahoo.com
I have been thru so much in the past 5 yrs and so blessed.
My husband was on the transplant list for 5 mos for both a liver and kidney and he had encephalopathy where he did not know what day it was. It was very hard because he was also on dialysis also. He was taking lactalose to get his ammonia levels dow…
July 31, 2010 at 9:30pm to August 1, 2010 at 10pm
It's Party Time!!
We're setting up this event to see how many members who are going to the US Transplant Games in Madison are interested in attending a TC party, where you'll get to:
Meet other cafe members, eat, drink and dance the night away wit…
My husband's insurance will only fill the generic....
And wishing YOU and YOUR FAMILY good health, happiness, and peace, also. You are so kind to always be thinking of others....
Are you a fan of CBS's new transplant drama TV series 'Three Rivers?' Then this is the group for you to meet other fans and discuss your favorite episodes!
Profile Information
- What is your city / state and country of residence?
- Black Earth WI
- How are you touched by transplantation?
- I am a Recipient, I am the Caregiver of Someone With a Transplant, I am a Relative of Someone with a Transplant
- Optional for those who donated their Loved One's organs, tissue, or both: in this space, feel free to write anything you want about your Loved One and your experience as a donor:
- Dan received his transplant 9/19/09 at UW Hospital. Madison, WI. Doing great!! So thankful....
- If you are a recipient, what type of transplant did you receive?
- Liver
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- Donor and family, we don't know any information yet...
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- prograf
- What is your hospital and, or doctor's name, city / state and country?
- UW Hospital Madison WI
Dr Luis Fernandez, the BEST!!!!
- If you are on the transplant waiting list, when were you listed?
- September 18, 2009
- If you are on the transplant waiting list, what type of transplant are you waiting for?
- Liver
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- Dan received his transplant in September 2009 at UW Madison
- Please help us reach other members by telling us how you found Transplant Cafe:
- Friend
- What is your relationship status?
- Married
- My Facebook Page (copy and paste your profile page URL):
- http://sue frame
Dan & Sue Frame's Photos
Dan & Sue Frame's Blog
anyone with any experience with having NASH and awaiting liver transplant?
My husband has NASH and is currently on the waiting list for a liver at UW Hospital, Madison, WI. Anyone having any experiences pre/post transplant would be appreciated. Thank you
Sue
suezoo25@hotmail.com
Sue
suezoo25@hotmail.com
Posted on June 29, 2009 at 10:57am — 2 Comments
Comment Wall (12 comments)
- At 10:02pm on October 5, 2009,
cris said…
- Awesome!! How is Dan feeling? Nik had the major "I feel so great" for about 2 months after. She continues to fight one "bug" after another, but is beginning to stretch her wings a bit. This weekend should be fun, our youngest 3 grandaughters are spending the weekend. Enjoy!
- At 9:59pm on October 5, 2009,
cris said…
- Congrats on the marriage...your grandson is adorable.
- At 8:32pm on October 5, 2009,
cris said…
- So happy for you both! How is it going?
- At 5:47am on October 2, 2009,
Stephanie Whitmore said… - Hi Dan- Congratulations! I am so happy for you. Keep up the healing! steph
- At 6:23am on September 8, 2009,
Stephanie Whitmore said…
- Hi Sue and Dan,
Thank you for the kind comments about me getting onto the list. It was an emotional rollercoaster day for me! The wait at IU Med Center is on average 3 mos. So hopefully that will work for me! I can't wait to move on to the next chapter of my life, but at the same time I am dreading a major surgery and the life changes that come with it!
Thanks for the support! I hope you get your new liver soon!
steph
- At 7:52am on August 24, 2009,
Tracy & Nancy said… - Hey Dan & Sue,
Oh I just replied to your note to me. I see you guys are in the Madison area....We have been in the area for 2 months 'DeForest' and what a beautiful area this is! Oh nancy and I have enjoed the 'Cooler' summer too as Oklahoma can be hot and Nortern Calif too (where were orig from). I see your from Black Earth Wisconsin~~~when we came up from Oklahoma the first time (May 22 evaluation at UW) the one ting I noticed was how dark 'black' & primo the soil was (is that the greenthumb in me? lol) anywhos nice to connect with ya....Tracy
- At 9:51am on August 21, 2009,
cris said…
- Hi Dan & Sue, from rainy Madison. Life around here is always interesting. Nikki has now gotten past her 1 year bench mark, and sometimes the best thing I can say to her is "but you are still alive". It has been a long year. We are still seeing the docs every 3 months, and her labs are every other week. She had a bit of a liver scare a month ago, where an antibiotic to deal with the secondary infection from shingles caused her liver to freak out a bit. We still take one day at a time, but now we know that the next day will come. Lack of energy and pain from other but related issues are now something we have to deal with.
UW is awesome, most of the nurses are awesome. The transplant coordinators both pre and post transplant are wonderful (Jean Breslow is FANTASTIC), Dr Musat has a forever place in our hearts and minds. The care at UW is always that...caring. There are always one or two ringers, but they are usually not a big issue. I understand the mental emotional issues waiting for transplant are trying. We were lucky to only deal with them for a few months. Keep a positive attitude, and let the 4-footed "aides" give you extra lovin. Feel free to email me directly if you would like.
Cris (and Nikki - liver/kidney tx 8-08-08)
- At 11:22am on August 14, 2009,
Neil Willens said… - Hi Dan,
Not sure when your "friend" request was sent. I've been absent, traveling, for a while. Welcome.
Neil
- At 8:27am on July 5, 2009,
Teresa Dixon said… - Dan - I too am waiting for a liver transplant due to Polycystic Liver Disease. I was listed 1/9/09 but luckily haven't been very very sick. The wait is challenging - we pray for phone to ring but tighten up each time it does at odd hours. My health just needs to hang in there for the wait - prayers you will get your call very soon - Teresa
- At 11:02pm on June 4, 2009,
Mark E said… - dan I'm not sure but I think the u of w is the place that perfected the solution that is used in liver transplants! its actually called the university of Wisconsin solution, so the place must be pretty good
Latest Activity
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my good friend christy rec'd her 3rd liver transplant last week and is doing nicely....she has two girls 12 and 9, and a great hubby and host of friends...im glad to report she is doing well at Duke Univ Med Cntr....she is young, 30 ish....
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Please post jokes, funny stories, and anything humorous. It is healthy for our minds, bodies, and spirits. Very healing. So let's get those endorphins swimming
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Hi there, Im from London although had my kidney and pancreas transplant in Oxford in March 2007 (was 3 years ago Monday). I am keeping really well and enjoying life! Hope everyone is okx
Hi there. I am from Aylesbury. You are even more more recent than me. Hope all is going well? Cheers.
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