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Dan & Sue Frame
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  • Black Earth, WI
  • United States
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Hello from Madison Wisconsin!

Replied Jul. 28, 2009

 

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Jan S replied to Dan & Sue Frame's discussion 'encephalopathy?' in the group Caregivers, family members of transplant patients
Hi - I was a caregiver for almost 10 years, for someone very near and dear who needed a liver transplant. She had one transplant in 2006, but she started having problems again. She passed away in June 2010 waiting for another transplant - unfortunat…
July 19
Donald Nygaard and Dan & Sue Frame are now friends
May 4
Dan & Sue Frame and Steve Baum are now friends
April 26
Dan & Sue Frame is now friends with Zoe Drella and Hallie Russell
April 21
Dan & Sue Frame updated their profile
February 2
Dan & Sue Frame gave a gift to Debbie
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February 2
Julian replied to Dan & Sue Frame's discussion 'encephalopathy?' in the group Caregivers, family members of transplant patients
i have been thru all that and here is my story: http://www.caringbridge.org/visit/julianguzman anyone interested in chatting about my experience, email me: mssara1962@yahoo.com I have been thru so much in the past 5 yrs and so blessed.
December 29, 2009
Donna Mellon replied to Dan & Sue Frame's discussion 'encephalopathy?' in the group Caregivers, family members of transplant patients
My husband was on the transplant list for 5 mos for both a liver and kidney and he had encephalopathy where he did not know what day it was. It was very hard because he was also on dialysis also. He was taking lactalose to get his ammonia levels dow…
December 15, 2009
Dan & Sue Frame is attending TransplantCafe.com's event
July 31, 2010 at 9:30pm to August 1, 2010 at 10pm
It's Party Time!! We're setting up this event to see how many members who are going to the US Transplant Games in Madison are interested in attending a TC party, where you'll get to: Meet other cafe members, eat, drink and dance the night away wit…
October 21, 2009
Dan & Sue Frame commented on TransplantCafe.com's group 'Team Prograf'
My husband's insurance will only fill the generic....
October 21, 2009
Transplant 1 month ago this week and doing great!
October 21, 2009
Doing better each and every day = )
October 16, 2009
Dan & Sue Frame replied to Debbie's discussion 'Wishing All of You Good Health and Happiness for a very long Time!' in the group Liver Transplants
And wishing YOU and YOUR FAMILY good health, happiness, and peace, also. You are so kind to always be thinking of others....
October 7, 2009
Dan & Sue Frame added 3 photos
October 7, 2009
Dan & Sue Frame joined TransplantCafe.com's group
Fans of Three Rivers on CBS
Are you a fan of CBS's new transplant drama TV series 'Three Rivers?' Then this is the group for you to meet other fans and discuss your favorite episodes!
October 6, 2009
Dan & Sue Frame left a comment for cris
October 5, 2009

Profile Information

What is your city / state and country of residence?
Black Earth WI
How are you touched by transplantation?
I am a Recipient, I am the Caregiver of Someone With a Transplant, I am a Relative of Someone with a Transplant
Optional for those who donated their Loved One's organs, tissue, or both: in this space, feel free to write anything you want about your Loved One and your experience as a donor:
Dan received his transplant 9/19/09 at UW Hospital. Madison, WI. Doing great!! So thankful....
If you are a recipient, what type of transplant did you receive?
Liver
Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
Donor and family, we don't know any information yet...
If you are a recipient, what type of donor did you receive your Gift of Life from?
Deceased Donor
What is your principal transplant med(s)?
prograf
What is your hospital and, or doctor's name, city / state and country?
UW Hospital Madison WI
Dr Luis Fernandez, the BEST!!!!
If you are on the transplant waiting list, when were you listed?
September 18, 2009
If you are on the transplant waiting list, what type of transplant are you waiting for?
Liver
About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
Dan received his transplant in September 2009 at UW Madison
Please help us reach other members by telling us how you found Transplant Cafe:
Friend
What is your relationship status?
Married
My Facebook Page (copy and paste your profile page URL):
http://sue frame

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Dan & Sue Frame

anyone with any experience with having NASH and awaiting liver transplant?

My husband has NASH and is currently on the waiting list for a liver at UW Hospital, Madison, WI. Anyone having any experiences pre/post transplant would be appreciated. Thank you
Sue
suezoo25@hotmail.com

Posted on June 29, 2009 at 10:57am — 2 Comments

Comment Wall (14 comments)

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At 9:08am on May 1, 2010, Catherine (Cathy) said…

At 12:29am on May 1, 2010, Karen Weddick said…

glitter-graphics.com
At 10:02pm on October 5, 2009, cris said…
Awesome!! How is Dan feeling? Nik had the major "I feel so great" for about 2 months after. She continues to fight one "bug" after another, but is beginning to stretch her wings a bit. This weekend should be fun, our youngest 3 grandaughters are spending the weekend. Enjoy!
At 9:59pm on October 5, 2009, cris said…
Congrats on the marriage...your grandson is adorable.
At 8:32pm on October 5, 2009, cris said…
So happy for you both! How is it going?
At 5:47am on October 2, 2009, Stephanie Whitmore said…
Hi Dan- Congratulations! I am so happy for you. Keep up the healing! steph
At 6:23am on September 8, 2009, Stephanie Whitmore said…
Hi Sue and Dan,
Thank you for the kind comments about me getting onto the list. It was an emotional rollercoaster day for me! The wait at IU Med Center is on average 3 mos. So hopefully that will work for me! I can't wait to move on to the next chapter of my life, but at the same time I am dreading a major surgery and the life changes that come with it!

Thanks for the support! I hope you get your new liver soon!

steph
At 7:52am on August 24, 2009, Tracy & Nancy said…
Hey Dan & Sue,
Oh I just replied to your note to me. I see you guys are in the Madison area....We have been in the area for 2 months 'DeForest' and what a beautiful area this is! Oh nancy and I have enjoed the 'Cooler' summer too as Oklahoma can be hot and Nortern Calif too (where were orig from). I see your from Black Earth Wisconsin~~~when we came up from Oklahoma the first time (May 22 evaluation at UW) the one ting I noticed was how dark 'black' & primo the soil was (is that the greenthumb in me? lol) anywhos nice to connect with ya....Tracy
At 9:51am on August 21, 2009, cris said…
Hi Dan & Sue, from rainy Madison. Life around here is always interesting. Nikki has now gotten past her 1 year bench mark, and sometimes the best thing I can say to her is "but you are still alive". It has been a long year. We are still seeing the docs every 3 months, and her labs are every other week. She had a bit of a liver scare a month ago, where an antibiotic to deal with the secondary infection from shingles caused her liver to freak out a bit. We still take one day at a time, but now we know that the next day will come. Lack of energy and pain from other but related issues are now something we have to deal with.
UW is awesome, most of the nurses are awesome. The transplant coordinators both pre and post transplant are wonderful (Jean Breslow is FANTASTIC), Dr Musat has a forever place in our hearts and minds. The care at UW is always that...caring. There are always one or two ringers, but they are usually not a big issue. I understand the mental emotional issues waiting for transplant are trying. We were lucky to only deal with them for a few months. Keep a positive attitude, and let the 4-footed "aides" give you extra lovin. Feel free to email me directly if you would like.

Cris (and Nikki - liver/kidney tx 8-08-08)
At 11:22am on August 14, 2009, Neil Willens said…
Hi Dan,
Not sure when your "friend" request was sent. I've been absent, traveling, for a while. Welcome.
Neil

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