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Cloyce
- Female
- Coalinga, CA
- United States
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Cloyce's Groups
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Team Kidney
157 members
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Cafe Shop - Transplant B…
51 members
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Team Prograf
194 members
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Latest Transplant News F…
192 members
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Caregivers, family membe…
46 members
Cloyce
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Latest Activity
Amanda, I agree with everyone else who has replied....you are doing a fantastic thing by donating a kidney to your co-worker. In the long run, you will do fine. I have been with a single kidney since 1981. Unfortunately, it wasn't due to donating bu…
I would like to thank all of you for your replies. I am going to have my daughter read them. She saw Endo yesterday and they worked out a new plan for her to try in order to get things under better control. Unfortunately, if she were to need a trans…
Thank you for your reply Cathy. I'm so sorry for being so late in replying back to you. What does CD4 stand for? I'm in new territory here when it comes to the kidneys and the tests that are done. This is a whole new angle for me. I'm use to tests/n…
Hi, I'm new here. I have a daughter who was told Sept. (this year) that her kidneys are working at only 30%. I know kidney transplant will be suggested eventually at some point and just wanted to learn more about it ahead of time. Lili, thank you fo…
This group is for all people involved with kidney transplants. Please discuss how you are involved... donor, recipient, family member? What caused the renal failure that led to transplant. What medicines do you take? Do you experience side effects?
My CD4 stayed normal so they knew I wasn't in rejection it was the Prograf in my case. First they said I wasn't drinking enough fluids but when I got into see the doctor they checked my CD4 we all get this test done prior to transplant and after tra…
There has been concern off and on with my daughter, Tara's kidneys for some time now. Over the past few months her creatine level was up to 2.4, so she was taken off the anti-fungal for shingles/herpes zostrex, but then she broke out so she had to b…
Wow, this is wonderful!!! I hope that your friend is a perfect match and everything goes smoothly for you and your friend. Consider yourself pinched! :-)
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Profile Information
- How are you touched by transplantation?
- My Child / Children Received a Transplant(s)
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- I am the mother of an adult daughter who will soon be 10 years post-double lung transplant on May 27, 2009. My first born son was diagnosed with cystic fibrosis in 1976 at 3 months of age. He died March 1981 at the age of 5. My daughter, Tara was born Nov. 1982 and was correctly diagnosed of CF at age 18 months. At the age of 15 1/2 she was listed for a double lung transplant and received her lungs 11 months later. I also have a 14 yr old son who does not have CF.
- Please help us reach other members by telling us how you found Transplant Cafe:
- My daughter told me about TransplantCafe
- What is your relationship status?
- Married
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- With a 26 yr old daughter and a 14 year old son I listen to all types of music., easy rock and country are my favorites. I don't watch a lot of T.V. I mostly enjoy reading and writing. I enjoy inspirational stories, all books about Cystic Fibrosis and transplants.
Cloyce's Blog
Kidney issues, cellcept dropped
There has been concern off and on with my daughter, Tara's kidneys for some time now. Over the past few months her creatine level was up to 2.4, so she was taken off the anti-fungal for shingles/herpes zostrex, but then she broke out so she had to be put back on it. In between the changes her creatine level had dropped just a bit, but not a lot. It was decided to cut her cellcept dose in have from 500mg to 250mg twice a day, that was a couple of weeks ago. Labs came back with a good amount of lo… Continue
Posted on August 14, 2009 at 4:50pm — 2 Comments
IV now or later for Tara? What to do, what to do....
This week is already one busy planned out week for Tara. Wed. pre-op appt., Thurs. regular labs, chest x-rays, and PFT's, an added CT sinus scan and a bone scan, but not your regular bone density scan...Tara help me out, what's it called? After all these tests in the morning she will have her regular CF/post-tx appt. in the afternoon. I don't think another thing can be added to this day! Friday morning is the out-patient procedure for pre-cervical cancer cell removal. She should be released by n… Continue
Posted on June 1, 2009 at 9:08pm — 2 Comments
Good possibility Tara will be admitted today...I'm sad
Tara & Chris drove to L.A. yesterday, late afternoon to be there for her appt. today. It's an unuplanned appt. which means she's sick. Her appt. at the transplant center isn't until 1:30 but she has to be there by 8:00 a.m. for labs. We think it may be the flu bug. I sure hope not. There has been a virus passed around to everyone in the house, starting with Tara's hubby and brother. She was next, then myself. Tara had it for about a week before I ended up with it. The problem is Tara never c… Continue
Posted on May 21, 2009 at 11:10am — 10 Comments
May 1, 2009 My daughter's health with transplanted lungs & Valley Fever
It has been a crazy year for my daughter, her fiance (now husband), and my family. We have always been a fairly close family and when things are not going well for one, then it means things are not going well for all. January 2008 Tara and Chris decided it was finally time to get married. They had been seeing each other since Tara was 14 and Chris 16... He came into her life just when it started to get tough. He was there for her first surgery; feeding tube mickey button/fundiplication at 14 1/2… Continue
Posted on May 2, 2009 at 6:00pm — 4 Comments
Comment Wall (15 comments)
- At 12:25am on December 16, 2009,
Lili Feldman said…
- Cloyce, Hi! Did you ever find out what Tara's GFR was? Just curious. Lili
- At 2:31pm on October 6, 2009,
Lili Feldman said…
- Hi Cloyce. The GFR is glomerular filtration rate. It is the best estimate of kidney function. Google GFR, then go to The National Kidney Foundation. On left side of page you will see CKD. Click that and go to What is GFR. At bottom of page will it will state CKD stages and GFR ratings. If your doctor didn't include this in your daughter's labs, ask him/her to. Many blessings, Lili
- At 1:55am on June 8, 2009,
Tara Maynard said… - Thank you for being my mom! I love you and wouldnt have it any other way...I know you are here for me and that you will ALWAYS be. I know that because of you I am who I am today. I have made it this far with your help. And I hope that with your help ill make it a lot farther.
love ya too momma,
~Tara
- At 8:02pm on June 7, 2009,
Tara Maynard said…
- hey momma..just wanted to stop by your page and say thanks for always being here for me. i love you very much and look up to you always...your my best friend! this past week was stressfull...but it all worked out smoothly. i know you will always be there when i need you.
love your daughter,
TaRa LeEaNn~
- At 6:23pm on May 26, 2009,
nancy settanni said… - Hello Cloyce, I am still waiting. I was listed Jan 7th 2009. Wow ten years for your daughter, thats wonderful! I am getting a bit restless and so tired of walking around on a leash. But if thats what needs to be done........ Thanks for dropping me a line, I hope to chat with you soon. Nancy
- At 1:23pm on May 24, 2009,
mike buntlin said… - HI Cloyce Thanks for the kind words! I'm felling much better today. Thanks again. MIKE
- At 11:49am on May 21, 2009,
Joanne said… - Thank you for your note Cloyce. My actual transplant anniversary is 5/13-5/14 (the surgery went through the nite); sadly, Mother's day fell on 5/13 that year. I always think how awful it must have been for my donor's poor mother on that day.
I saw your note about Tara. I had a weird bug too this week. Not really the flu or a cold-just enough to be annoying. Hope Tara is OK.
- At 1:40am on May 18, 2009,
Tara Maynard said…
- yea...its coming quickly! doesnt even seem like its been 10 years already...ok...i want a german chocolate cake with chocolate frosting, i want it to say...hahahahah im j/k! time to celebrate...we should go out to dinner!
here's to 10+ more years! hahahaha then ill be 36!
- At 2:26am on May 11, 2009,
Tara Maynard said…
- just wanted to say that i hope you had a wonderful Mother's Day today. sucks you had to go to work after being on vacation, but i wanted you to know i was thinking of you. i love you mom!
~Tara
- At 10:21pm on April 30, 2009,
Stacey and Rachel Sweet said… - Thanks for writing. I'd like to hear more about you and your daughter. It's late here in NH, so I'll try to get online earlier soon and write more.
Latest Activity
Been on Prograf 1+1 and myfortic 360+360 for 23 months now. I have had somme minor problems with my sugar. I am now hyplogycemic+diabetic. I can deal with that . I just have to eat continuosly. No hair loss at all. In fact,just the opposite. More ha…
I was 18 when I became ill.
What are you hobbies??
MMmm I would have as much as possible done. lol. Anywhere they can massage without hurting me right now. Get a manicure, hair colored, make up done, and a facial. =D
-- If you ever feel a little bit stupid, just dig this up and read it again; you'll begin to think you're a genius..
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(On September 17, 1994, Alabama's Heather Whitestone was selected as Miss…
Hi Carlos,
It is my understanding that in the 1970s Congress passed a resolution to help cover medical costs of people with serious illnesses by putting them on Medicare. They started with kidney failure and began covering transplants. But the cost…
SO TRUE
I am a mother of a 20 year old that has.been diagnois as a 12 year old . They said shw could compete in the 11-13 years old group but ahe is not allowed to get any medals. I find this unfair . Who else can help me make them understand this is not fa…
I Totally agree with you LOL I'm one of the extra special recipient I had Liver (2004) and a Kidney (2009) PKD I have imedicare and a private ins, and the premiums are costing us 860.00 per mo. we are currently in forclosure and all our retirement s…
Hi everyone. I was implanted with an LVAD 4/30/08.It will be 2 years since i was listed for my heart. No calls yet
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