Cloyce

There has been concern off and on with my daughter, Tara's kidneys for some time now. Over the past few months her creatine level was up to 2.4, so she was taken off the anti-fungal for shingles/herpes zostrex, but then she broke out so she had to be put back on it. In between the changes her creatine level had dropped just a bit, but not a lot. It was decided to cut her cellcept dose in have from 500mg to 250mg twice a day, that was a couple of weeks ago. Labs came back with a good amount of lo… Continue

This week is already one busy planned out week for Tara. Wed. pre-op appt., Thurs. regular labs, chest x-rays, and PFT's, an added CT sinus scan and a bone scan, but not your regular bone density scan...Tara help me out, what's it called? After all these tests in the morning she will have her regular CF/post-tx appt. in the afternoon. I don't think another thing can be added to this day! Friday morning is the out-patient procedure for pre-cervical cancer cell removal. She should be released by n… Continue

Tara & Chris drove to L.A. yesterday, late afternoon to be there for her appt. today. It's an unuplanned appt. which means she's sick. Her appt. at the transplant center isn't until 1:30 but she has to be there by 8:00 a.m. for labs. We think it may be the flu bug. I sure hope not. There has been a virus passed around to everyone in the house, starting with Tara's hubby and brother. She was next, then myself. Tara had it for about a week before I ended up with it. The problem is Tara never c… Continue

It has been a crazy year for my daughter, her fiance (now husband), and my family. We have always been a fairly close family and when things are not going well for one, then it means things are not going well for all. January 2008 Tara and Chris decided it was finally time to get married. They had been seeing each other since Tara was 14 and Chris 16... He came into her life just when it started to get tough. He was there for her first surgery; feeding tube mickey button/fundiplication at 14 1/2… Continue