Just wanted to drop by and say "Welcome", so happy you decided to join our group. Congratulations on your daughters heart tx...what a wonderful Christmas indeed. You will find the people here to be very kind and willing to…"
Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
Our daughter, Andrea Clegg, received her heart transplant on Dec. 21, 2010 after being on the LVAD (Left Ventricular Assist Device) for 14 months. We were thrilled with our "best ever Christmas Gift"! Please see Andrea's blog at "stayingtruetomyheart.blogspot.com" for info. She will be on Global TV Toronto in Jan or Feb. The entire surgery was filmed by them!
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Recipient: In This Space Please Tell The Community About Your Transpant Center, Doctors, Transplant Team, Date of Transplant and Any Other Details You'd Like to Share About Your Experience:
The staff at Toronto General was excellent in their care of Andrea during her LVAD and heart transplant surgeries, including before and after. There are wonderful teams of knowledgeable, supportive, caring people who we felt very comfortable with, even when Andrea was so deathly ill! Thank you Toronto General!!
Which Transplant Medication(s) Do You Take?
Many of these questions I will let Andrea describe when she is feeling up to it!
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
Andrea has had 1 1/2 years of ups and downs since she was diagnosed with Idiopathic Dilated Cardiomyopathy. Her defib/pacemaker (she named Ivan) was implanted Oct 2008, her LVAD (mechanical heart) (named Vito) in Oct. 2009, and just four days before Xmas 2010, she had her heart transplant!! Yeah!!! I am her proud Mom!!
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Your Personal (non-commercial) Website, Page, or Blog URL:
Just wanted to drop by and say "Welcome", so happy you decided to join our group. Congratulations on your daughters heart tx...what a wonderful Christmas indeed. You will find the people here to be very kind and willing to share their experiences as well as information they have learned on this journey. I encourage you to join a few groups (there is a heart tx as well as a caretaker group), read discussions, make comments or start a discussion of your own. Wishing you and your daughter all the best and hoping she has a quick recovery.
Hi there Carol:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Also, if you could please add a photo of yourself or something that represents you or your experience with transplantation, or a pet, etc. to your profile so we can get to know you better. It's really easy! Just click this link for the new members guide where you'll find instructions on how to add a photo.
Here’s a link that might help you get started: www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
1972 & 2007 imikimi -
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Welcome to TransplantCafe.com - The Gift of eLife!
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"