Bill Wohl's Page

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Bill Wohl posted a discussion

Looking for more Transplant Athletes to compete in World Class Triathlons.

Looking for more Transplant Athletes to compete in World Class Triathlons. Since 2002 we have had transplant athletes competing on our Bill Wohl Foundation World Triathlon Team.Race to Athens.Haul to The wall for Beijing, etc.We R looking for more swimmers, cyclists and runners that R capable of competing in a major open even like the "Escape From Alcatraz", Wild Flower, San Francisco International Triathlon, etc.If U can swim, run or cycle and R interested please contact…See More
Feb 7, 2013
Bill Wohl and Jeff Lindsay are now friends
Aug 1, 2012
Bill Wohl and Patricia Winters are now friends
Feb 20, 2012
Caitlin Touchet liked Bill Wohl's group Zonies
Aug 1, 2011
Caitlin Touchet left a comment for Bill Wohl
"HI Bill just cheaking in with you hope you are doing well !!!!!!!!!!"
Aug 1, 2011
Bill Wohl updated their profile
May 7, 2011
Catherine (Cathy) replied to Bill Wohl's discussion Has any one noticed thinning of hair and becoming finer from our extended, extensive drug regime.
"I take 1000 mg Fish Oil which has helped my hair to be normal I am almost 3 years post transplanted liver.... Check with your Doctor before taking anything....... I use cheap suave shampoo can't afford those saloon types.....  My first…"
Apr 8, 2011
Marina replied to Bill Wohl's discussion Has any one noticed thinning of hair and becoming finer from our extended, extensive drug regime.
"awwww  the  hair  loss  dilema.............  I'm  going  through  it  right  now,  my  hair  has  always  been   extremely  fine, but  now  with  all the  hair  loss  I've  experience  in  the  last  6 months,  :( I  had  clinic  visit  on Tues.  I …"
Apr 8, 2011

Profile Information

Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Heart
Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
Brady Michaels
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Deceased Donor
Which Transplant Medication(s) Do You Take?
Cell Cept & Pro Graf among others
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
Sales
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
Thank God I can Work, Play, Train & Compete all over the World both in TX and Open Competition.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
Friend of Nelson.
What Is Your Relationship Status?
In a Relationship
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
Alternative and many others
What is Your Favorite Quote(s)?
EXPECT NOTHING
BLAME NO ONE
DO SOMETHING
Your Personal (non-commercial) Website, Page, or Blog URL:
http://escape2008logblog.blogspot.com/

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Comment Wall (187 comments)

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At 2:14pm on August 1, 2011, Caitlin Touchet said…
HI Bill just cheaking in with you hope you are doing well !!!!!!!!!!
At 8:20pm on January 19, 2011, Caitlin Touchet said…
Hello just wanted to cheak in and say hi and wanted to tell you I got one of my best bowling scores to day I got a 120 but my highest game I think ever was 122.
Hope to talk to you soon. :-)
At 12:13pm on October 13, 2010, Caitlin Touchet said…
Happy Late birthday !

At 12:04pm on October 13, 2010, Caitlin Touchet said…
Hi Bill, Hope yo are doing god. I am doing great and today has been 13 years since my kidney transplant. I am so happy that the kidney has lasted this long. Hope to talk to you soon.
- Caitlin Touchet
At 10:23pm on September 18, 2010, Jane Tucker gave Bill Wohl a gift
At 10:14am on September 18, 2010, Suzanne gave Bill Wohl a gift
Gift
Happy Birthday!
At 1:33pm on July 24, 2010, Caitlin Touchet said…
At 12:39pm on July 3, 2010, Caitlin Touchet said…
At 4:03pm on June 20, 2010, Holly Werlein (Holdol) said…
Are you going to the Games coming up?? Hope your feeling well and all is good :) Let me know how things are going... hugs, Hol*
At 9:52am on June 17, 2010, Caitlin Touchet said…
U rock also !
At 7:17pm on June 16, 2010, Suzanne said…
You're a sweet heart, I'm honored to be your TX sister. I too am grateful to God for keeping you around! You are right, it is almost my turn to join the heart torch parade, and when I do I hope to be as courageous as you. Thanks for being there!
At 8:03pm on June 15, 2010, Suzanne said…
Thanks Bill, you are one of my new heroes! :) My sister and I watched your You Tube video today, loved it, you rock! Congratulations on your 10 yr anniversary, "unbeatable" suits you well, keep it up!
At 6:36pm on June 11, 2010, Caitlin Touchet said…
I did not sign up for swimming this year oh well I am also doing ping pong
At 2:49pm on May 27, 2010, m. Joshua Morris said…
bill bill bill... what can i say to my FAVORITE BROTHER FROM ANOTHER MOTHER ;-)
you have helped me more than you can know... THANK YOU FROM THE BOTTOM OF MY LVAD :-)
MEMORIAL DAY GREETINGS TO YOU!
FOUND THIS FLAG FROM "CATHY" CATHERINE'S TC'S BLOGPOST

At 9:37am on May 02, 2010, Caitlin Touchet gave Bill Wohl a gift
Gift
:-) -Caitlin
At 12:00pm on April 4, 2010, Caitlin Touchet said…
Get This from CyArena.com

Send to Friends email
At 7:09pm on March 9, 2010, John Kilgore said…
Thanks Bill for your very inspiring story and for sharing it! It encourages me that I may have an opportunity to return to all the multi-sport endurance stuff that I did prior to heart failure.
At 11:16pm on March 04, 2010, Jane Tucker gave Bill Wohl a gift
Gift
Hey baby, wanted to give you a little hello. I wish the ribbon was green! The thought is there. Your Jay-nee
At 8:56am on February 27, 2010, Holly Werlein (Holdol) said…
I'm SO glad your doing better and back to training. It's a blessing we can still train and do other things :) Awesome that your going to on the discovery channel. You'll have to let me know when it airs! I bet your team is ready to go for the Games! We have some good swimmers on Michigan too...

In regards to your foundation, I defintiely swim open water and distance of any kind. Let me know! My uncle actually lives in scottsdale, so I'll have to give you a shout when I visit the next time :) Here's my email if it's easier to contact me that way. hwerlein@hotmail.com Take care...
At 9:02am on February 26, 2010, Holly Werlein (Holdol) said…
Bill, what a great story! Thanks for posting that :) Congrats on 10 years, you definitely deserved a wondeful party! Keep on, keeping on.. I'm getting excited for thr upcoming Games of course. Let me know if I can help out in anyway with your foundation. I would love to help you spread awareness! Let me know...
 
 
 

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Latest Activity

Caring 4 Carrie posted a status
"Someone's Story: This is Micah. He's seeking a kidney donor. Kindly consider to visit his Facebook page. http://j.mp/XJdwdO"
3 hours ago
Caring 4 Carrie posted a blog post

The Month Of September is 'National Hispanic Heritage Month.'

According to the National Diabetes Educational Program, one in ten Hispanics over the age of 20 have been diagnosed with Diabetes. However, small changes in lifestyle living, e.g., healthier eating & exercising are key. Nugget: Exam=Prevention.See More
3 hours ago
Ramona replied to Stefan's discussion Hello, I am new here
"Stefan, Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days.  I will keep you in my thoughts - and hope for the best possible…"
Saturday
Parent of B posted a discussion

Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Friday
Stefan posted a discussion

Hello, I am new here

Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
Friday
Stefan liked Stefan's profile
Friday
Stefan left a comment for Stefan
"My wife is a double lung transplant of 15 years"
Friday
Stefan is now a member of TransplantCafe.com - The Gift of eLife!
Thursday
Jeff Clardy posted a discussion

Surgery after transplant

I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
Wednesday
Karen Harrill replied to Phil Keyes's discussion Post transplant blues
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
Tuesday
Karen Harrill replied to Bornali's discussion In distress ..may be just need to hang on in the group Acute Liver Failure Transplants
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
Tuesday
Karen Harrill added a discussion to the group Acute Liver Failure Transplants
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My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
Tuesday
Karen Harrill joined TransplantCafe.com's group
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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
Tuesday
Profile IconKaren Harrill, Parent of B and Ali Barton joined TransplantCafe.com - The Gift of eLife!
Tuesday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Makes sense to me. Good one David."
Sep 15
Ali Barton and Karen Weddick are now friends
Sep 15

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