-
Audrey Clark
- Female
- Shelburne Falls, MA
- United States
- Share
- Blog Posts (3)
- Discussions
- Events
- Groups
- Photos
- Photo Albums
- Videos
Audrey Clark's Page
Gifts Received
Audrey Clark has not received any gifts yet
Latest Activity
Hi,
I've got my first double lungtransplant in octobre 2001, after a year and a half I've got chronic rejection and needed a second double lungtransplant. I was on the transplant list for 7 months for the first transplant and a week and a half for…
thanks. i think i was just temperarily depressed. i think it was just because i was away from my family for about a month. i was scared. but now that i am home i feel much better.
hello Audrey, My name is Amanda. I know times may be tough but things will get better. You have to keep thinking posative. I was depressed when i was your age, I fell into the wrong crowd of people who were just so negative and kept me down all the…
I know what you are going through as I had a lung transplant and am awaiting my second. Before my current transplant I was on up to 10 liters of oxygen per minute. I was only 12 and scared as hell. I waited a long time for my transplant but as every…
Wow. great list. # 100 is the best one. i am part of the Big Brother, Big Sister Program (me being the little sister though. hope you are doing well
-Audrey
Has anyone here ever been depressed? What are some of the signs of depression? How do you know if you are depressed? I have just been feeling unusually sad and want to cry for no reason at all sometimes. What does that mean? If I am depressed, what…
Profile Information
- What is your city / state and country of residence?
- Shelburne Falls, MA United States
- How are you touched by transplantation?
- I am a Recipient, I am on the Transplant Waiting List
- If you are a recipient, what type of transplant did you receive?
- Double Lung
- Recipients: In this space, feel free to list those you are grateful to for receiving the Gift of LIfe:
- I don't know who the donor was. So instead I thank God and ask Him to pass the message on.
- If you are a recipient, what type of donor did you receive your Gift of Life from?
- Deceased Donor
- What is your principal transplant med(s)?
- prograf
- What is your hospital and, or doctor's name, city / state and country?
- Children's Hospital Boston
Dr. Boyer/ Dr. Visner
Surgeon- Dr. Lillehi
Boston, MA
- If you are on the transplant waiting list, when were you listed?
- May 11, 2009
- If you are on the transplant waiting list, what type of transplant are you waiting for?
- Double Lung
- If you are on the transplant waiting list, please use this space to write about your experience:
- When I was waiting for my first transplant, I waited a total of three years, nine months, and two days.
My first call was when I was in 6th grade. I was at school. We were put on hold for the longest time. I didn't get the lungs, the person ahead of me got the instead.
The second call I got was a few months later, but I was unable to except the lungs because i was just getting over a cold.
The third call came and we all thought "Third times the charm," guess not. It was on Easter we got the call saying they had lungs just as we pulled the Easter ham out of the oven. DARN. They told me not to eat or drink anything. I got to the hospital and was intubated and was ready to recieve my lungs but was scared as hell. I had no idea what was going to happen. A few hours later I came out and the doctors told my mom that they did not do the transplant because the lungs had a bruise on them that none of the tests showed. WORST DAY OF MY LIFE!!!
Well I guess fourth times is the real charm because on March 6th 2007 we got the real call at 4:30 in the morning.
The wait was crazy. to be honest it was scary too. I waited more than the average person waits for their lungs. I started to lose faith during the end and was wondering if it wpuld ever happen. Was i going to live past 12 years old? In the end it was totally worth it.
I am waiting for another double lung transplant currently. It is a little easier to process this time, seeming i have already been through it once. But it is also a little discouraging knowing that I waited almost four years for my first one. I don't have the highest sense of omtimisim for this wait. I don't think I am going to last another four years.
At this point I have put my life in the hands of God. All I can do now is sit, wait, and pray.
- What do you do for a living?
- I breathe....alot :)
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- My experience with transplantation has been a little crazy. I waited almost four years to recieve my first transplant and I am currently awaiting another double lung transplant. My first has lasted me two years and hopefully can make it through the wait I have ahead. Transplantation has been such a miracle for me. Before I got my lungs I had so many limits to my life. I couldn't take a shower without help, I had to sometimes be carried up the stairs. I could play sports with my friends or any activity. I couldn't take gym class. Going to school took up all of my energy. My life was basically: go to school then come home and sleep. After my transplant i was able to do all of those things ( to a certain limit). I was able to tell who my real friends were. I had an appetite. I am currently going through chronic rejection and am waiting. I am scared. I am only fifteen and wake up every day wondering about how long I have left on this world until I move onto the next. I was on oxygen for almost seven years before my transplant. I was so relieved to be off of it. I recently went back on and was very nervous because it made things set in and made it more of a physical apperance that reminds me everyday what I am going through. But with the help of God I slowly get through each day. I am very thankful thank I have such amazing friends that care so much about me and treat me like I am a normal person. They are the ones that are there for me when i need it.
Transplantation has its ups and downs but in the end it was definitly worth it and I hope that my story tells people something helpful to make them want to be an organ donor.
- Please help us reach other members by telling us how you found Transplant Cafe:
- I was online searching for pictures for a school project I was doing on Organ Donation and here I am now.
- What is your relationship status?
- Single
- Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
- Music- everything except hard rock and rap. I listen to a lot of Country, Soft Rock, and some Pop Rock
My favorite song is "The Impossible" By Joe Nichols
I read all kinds of books, a lot of mystery and fiction
I like to watch movies that keep me on the edge of my seat and a lot of comedies
I love Itailian food especailly eggplant parm. I love shepards pie and just pie in general. Tacos are delicous!!!
- What is Your Favorite Quote(s)?
- "God helps those who help themselves"
"life is like a yo-yo, sometimes you're up, sometimes you're down, and sometimes you're just walking the dog."
Audrey Clark's Blog
Depression?
Has anyone here ever been depressed? What are some of the signs of depression? How do you know if you are depressed? I have just been feeling unusually sad and want to cry for no reason at all sometimes. What does that mean? If I am depressed, what should I do? I am just really confused and wondering if there is anybody that could help figure things out a little.
Posted on July 11, 2009 at 7:09pm — 2 Comments
Clinic in Boston
Just thought I would give everyone an update.
I went to Boston today and I am still here. My FEV1 was 8% which is 2% down from what it was 2 weeks ago. The team and I decided that I should stay for a little "tune-up", just to maybe help me gain some of the weight back that I have lost throughout the whole regection process. I will also have a chance to talk to a phycologist (sp?) to help me sort out all of the feeling I have been overwhelmed with. I will also get the chance to see someone from… Continue
I went to Boston today and I am still here. My FEV1 was 8% which is 2% down from what it was 2 weeks ago. The team and I decided that I should stay for a little "tune-up", just to maybe help me gain some of the weight back that I have lost throughout the whole regection process. I will also have a chance to talk to a phycologist (sp?) to help me sort out all of the feeling I have been overwhelmed with. I will also get the chance to see someone from… Continue
Posted on July 8, 2009 at 9:31pm —
Looking for other people awaiting or that have recieved lung transplants
HI!!
My name is Audrey Clark and I am 15 years old and awaiting my second double lung transplant. I had my first transplant just before I turned 13 (on March 6, 2007). I needed my first one due to Cystic Fibrosis. I currently need a new one because I am experiencing Chronic Rejection. I joined to see if I could find people who are going through what I am.
My name is Audrey Clark and I am 15 years old and awaiting my second double lung transplant. I had my first transplant just before I turned 13 (on March 6, 2007). I needed my first one due to Cystic Fibrosis. I currently need a new one because I am experiencing Chronic Rejection. I joined to see if I could find people who are going through what I am.
Posted on May 29, 2009 at 12:43am — 5 Comments
Comment Wall (6 comments)
- At 7:36am on August 9, 2009,
Amanda Geren said…
- Hi Audrey. We live in Pennsylvania. Im glad you wrote me back. I didnt want to scare you at all. Thank you. I know, It was something that was ment to be. We revieved your letters.You were one of the only people that really wrote. Sorry We didnt write you back, My mother-in-law would have. She loved your letters, but she didnt know exactly what to say. Im hoping we can be friends. I see your back on the transplant list. Im sorry to hear that. I'll pray for you. I hope everything turns out good. I've read up on cf, i know there is no cure as of right now, but ill pray for a cure for you and many others as well.
- At 8:19pm on July 13, 2009,
Tara said…
- We must have sent comments to each other at the same time lol!
- At 8:16pm on July 13, 2009,
Tara said…
- Hi Audrey. We have a little bit in common. We both had to get new lungs due to cf at a young age. I will be praying for you that you don't have to wait 4 years this time. I was very lucky and was only on the list for just under 3 months. But I was very, very sick. I wouldn't have lasted a few more weeks if I wouldn't have gotten the lungs when I did. I have been very blessed with the last 17 1/2 years that I have so far gotten with these lungs. If you every have questions or want to talk send me a messge. ~Tara :-)
- At 4:42pm on July 10, 2009,
Randy Davis said… - Audrey
I sure hate to hear what you are going through. I was on the waiting list almost 3 years to get my liver and the wait is very hard. They move you to the top of the national list when your transplant fails so I don,t think you will have to wait that long. I will keep you in my prayers and I believe God has some big plans in store for you so just let go and let God. In the end every thing will be OK and if its not OK its not the end,
- At 7:14pm on June 5, 2009,
Terri Lynne said… - Hi Audrey, welcome to TC! Glad you could join us...feel free to look around and check things out. We have forums, groups, blogs and more.
Please click here for more info to get you started.
Thanks, Terri
liver transplant july 2, 1991
- At 10:27am on May 29, 2009,
Cloyce said…
- Audrey, you are no longer alone in your journey. There are several of us here who will be here for you. I guess you can call me an outsider as I am not the one who actually went through transplant, my daughter is, but we go through the journey together, I just don't physically feel it and live it.
Photos
Fund Raising & Shops
Give Us A Hand... Please Donate To
Transplant Cafe Today!
Shop for Transplant Cafe! 
Click Here to Learn More...Join Transplant Cafe
Shops & Clubs!
Badge
Helpful Links
Transplant Cafe Chat! 
-
Invite anyone who can benefit from being a part of the Transplant Cafe family.
-
Get a Transplant Cafe Badge for your website, myspace / facebook page like the one below and other styles to choose from
Popular Cafe Destinations:
forums
- meet and welcome new members
- general discussion & community
- the "thank you" forum
- transplant movies and book reviews
- fun, games & cool benefits
- international members
- meds
- sports & fitness
- food & nutrition
- spirituality & transplantation
- health insurance
- all topics...
popular videos
- "because" - the story of an organ donor
- world kidney day
- i am. are you? donate life illinois
- steve's organ donation story..."the circle of life"
- fox news story on tom's donation
- all videos...
other links and cool features
- add fun 'open-social' applications to your profile page!
- advanced member search
- spread the word with a custom badge!
- newsletter archive
- member's guide
- community announcements
- latest transplant news
- transplant resources
- support forum
- member photos (2700+)
- member blogs (250+)
- transplant cafe to go... tc url for your mobile device!
popular groups
featured
- national foundation for transplants
- national transplant assistance fund
- look beyond the heart
- live life then give life
- caregivers, family members of transplant patients
- quarter century club
- transplant & education professionals
- donor families
- living organ donors
- dialysis
global community
|
|
other popular groups
- team prograf
- liver transplants
- team kidney
- heart transplants
- prednisone sucks
- lung transplants
- transplant creations
- team usa
- the "show off your scar" group
- the young ones
- living organ donors
- fund raisers unite
- ideas for increasing awareness
- authors
- hispanos con transplantes
© 2009 Created by TransplantCafe.com
