"I am new to this site and my husband is a proud new liver transplant recipient of 1 month today. He was on the waiting list for 7 years. In those 7 years I have learned a great many things, not just about liver disease but about the transplant…"
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Ann
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- Ponte Vedra Beach, FL
- United States
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The "Show Off Your SCAR"…
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Ann's Discussions
Discussion on LifeSharers
Started this discussion. Last reply by Judy Edwards Aug 5, 2011. 2 Replies 0 Likes
Ann's Page
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Sue R. left a comment for Ann"Hi Ann, Sorry to bother you but I was hoping you could enlighten me on a question I have. I know you have taken great care of yourself after your liver tx but are now having problems with your kidney. I am not on prograf but am on cyclosporine. I…"
Ann left a comment for Sue R."Sue I got your message and I actually got that to see that news program w/ katie currick on the kidney transplants. amazing."
Sue R. left a comment for Ann"Hi Ann, I called and left you a msg but I wanted to share something I saw tonight on the cbs news (evening). If you go to cbsnews.com and click on evening news and then click on The American Spirit page, there is a story of How a ceo of a software…"
Ann left a comment for Sue R."Tell me all about it. What exactly is Life Source? I am currently fundraising for a kidney organization since after 13 year my kidneys are showing some wear and tear from the transpant drugs.
Call me, 904 285-7688:) aNN"
Sue R. left a comment for Ann"Ann, I was wondering if you work for Life Source in Jacksonville. Do you belong to the Mayo support group there at the Tx center? I had my transplant at Mayo also, my Dr.s were Dr. Rosser, Dr. Raj and many more......They were all wonderful and could…"
Ann commented on Marina's blog post This might be "THE" call"The best of luck. I'll add a prayer for you too!"
Profile Information
- Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
- Liver
- Recipients: In This Space, Feel Free To Write About Those You Are Grateful to for Receiving The Gift Of Life:
- My donor's mother, My family, especiallly my mother who never left my side. My dear friends, Cissy, Janice and Michelle for doing the same. For all those who prayed for my most whom I do not know. Dr. James Spivey, the best there is and my surgeon, Dr. Jefrey Steers. Tree Kasper, my coordinator and Donna Gwin, my super nurse and the rest of the brand new Transplant unit at Mayo Jacksonville, Fl in 1998
- Recipient: What Type of Donor Did You Receive your Gift of Life From?
- Deceased Donor
- Which Transplant Medication(s) Do You Take?
- Prograf
- What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
- I am a fundraiser for transplantation and organ donation
- About Me: Please use this space to tell the community about you and your unique experience with transplantation:
- My favorite foods are: pickles, popcorn, fresh caught fish for dinner, spicy food, Tabsco sauce, and fresh steamed veggies. Lobster, especially fresh caught by me in the Abacos.
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Ann's Blog
FYI. . . Liver Transplant Recipients needed for AMD (eye) Study
Posted on May 1, 2009 at 10:03am 5 Comments 0 Likes
Reseachers at the University of Iowa are conducting studies to assess patients who have previously received a liver transplant and have clinically documented age-related macular degeneration (AMD). If you have both of these conditions (liver transplant and AMD) and you are interested in learning more about how you might be able to participate in this research study, please contact Dr. Greg Hageman or his assistant Sheri McCormick by telephone (319-384-9722), email (sheri-mccormick@uiowa.edu) or… Continue
LifeSharers: www.lifesharers.com/ Your valued opinion wanted; please share your "respectful" thoughts
Posted on February 1, 2009 at 10:21am 17 Comments 0 Likes
I would like to start a discussion on the pros and cons of LifeShares, http://www.lifesharers.org.To me it makes sense because if you ever need an organ then you should be willing to choose to become a donor before and if it were to ever happen, God forbid.
This was, however, not my case because I was not educated about donations and never thought that I would need a transplant. That was over 10 years ago and I believe the public has become well educated as to the need for donation… Continue
This was, however, not my case because I was not educated about donations and never thought that I would need a transplant. That was over 10 years ago and I believe the public has become well educated as to the need for donation… Continue
Comment Wall (10 comments)
- At 1:07pm on January 4, 2011, Sue R. said…
- Hi Ann, Sorry to bother you but I was hoping you could enlighten me on a question I have. I know you have taken great care of yourself after your liver tx but are now having problems with your kidney. I am not on prograf but am on cyclosporine. I can switch back to Rapamune if I want. Do you think long term use of cyclosporine can cause kidney damage? I don't know which of the evils are the best in the long run.
- At 4:30pm on November 10, 2010, Sue R. said…
- Hi Ann, I called and left you a msg but I wanted to share something I saw tonight on the cbs news (evening). If you go to cbsnews.com and click on evening news and then click on The American Spirit page, there is a story of How a ceo of a software co. started a chain list for kidney transplants from the National Kidney Registration. They are doing the largest live kidney transplant exchange in Texas on Thurs. that will save 28 lives. Very interesting. They will match people who just want to be a part of living donors to people in need of kidneys. Let me know what you think. LifeSource is here in the Midwest, not sure if they have one down south.
- At 12:01pm on November 10, 2010, Sue R. said…
- Ann, I was wondering if you work for Life Source in Jacksonville. Do you belong to the Mayo support group there at the Tx center? I had my transplant at Mayo also, my Dr.s were Dr. Rosser, Dr. Raj and many more......They were all wonderful and could not have asked to be in a better place. Wishing you all the best.
- At 8:42pm on January 29, 2009,
Vito F. Losito said… - Hi Ann, I noticed you are online and thought you might want to chat.
- At 6:26pm on January 10, 2009,
Mike B. said… - Hi, and welcome to our little community! There are so many great people willing to share, help, and be there for you all the time. We all have been through so much, and are all stronger for it. Wishing you and yours all the very best. May peace and the Lord be with you always. If I can ask? How long have you had your transpalnt? Take care, God bless, and keep smiling!!! Mike
- At 3:53pm on April 23, 2008,
J T Rhodes said… - Nice picture Ann. You should explain the event and post interviews to your page
- At 9:46am on April 9, 2008,
TransplantCafe.com said… - Hi Ann,
I've added a new member's guide with tips on things you can do to get started in the community. Click here.
Enjoy!
Nelson
- At 9:49pm on March 14, 2008,
German V said… - What are you doing up so late? I was reading up on the Internal Revenue Manual and I checked on my e-mails and saw your link suggestion. Thanks, It is nice.
- At 2:40pm on March 14, 2008, TransplantCafe.com said…
- Hi Ann. Welcome to the site. Bring your transplant friends!
Nelson
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Lili Feldman commented on Jay Robare's group Inspirational Stories"Appropriate Attire
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Walter s replied to Tai's discussion eating shellfish post transplant"I ate shrimp before but I stopped because I wasn't sure .. I was wondering the same thing because my favorite food is lobster and steamers :/"
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Daniel Larby posted a status"i had a liver transplant in 2007 im doing really well. hows everyone else doing sincee there transplants?"
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