Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Which Transplant Medication(s) Do You Take?
Prograff, Prednisone, Myfortic
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I retired from teaching Emotionally Disturbed Adolescents just before I began dialysis. I hope to teach at the community college when I gain some strength. (Have to have a goal!)
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am just beginning to be able to spend time at a computer to join websites such as this. I have many questions-do others have similar experiences etc.
I received my kidney the day after Mother's Day from a deceased donor, and was sent home on the 16th. I had much pain, and the answer was -increase pain meds-not find out the reason. I returned to a local hospital on the 17th, was there until the 19th and went back on the 20th, and was ambulanced (a 2 1/2 hour ride )on the 22nd. From the 17th until the 22nd, my internist recommended a "pain therapist" after conferring w/ UW's surgeon. Finallly!!! they did a scan and determined that I had an abscess, peritonitis, and a bladder infection!-thus the transport, draining, removing the cath. (The internist didn't listen to the radiologist who had seen this on my first post transplant hospitalization, and the surgeon did not feel there was a need for post op tests.
I would be here had my husband not continuing to question and be my advocate-I was not able to at that time.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
I found it on Google when I was looking up side effects of Prograff.
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I enjoy classical music (regular at Chicago Symphony and Ravinia. I also play mandolin. I also read -much more with time and little energy.
Comment Wall (8 comments)
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"I've sure gotten old!
I've had two bypass surgeries, a hip replacement, new knees, fought prostate cancer and diabetes I'm half blind, can't hear anything quieter than a jet engine, take 40 different medications that make me…"
"I had my transplant in September 2010 as well, I do live on a controlled life, and Now I have started enjoying it as well. I made a point to myself to stay happy and strong and somehoe that's really affected my health as well. It has just gone…"
"Good for you! Be very careful with that new liver you have received as it will serve your body well. I was transplanted in 2010 and doing rather well but in a much more slower pace than ever before. Continue to celebrate life just take it easy on…"
My dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. His doctor told us that they only see this in 1% of patients. I'm wondering if anyone here has experienced this or knows of someone who has and what the outcomes were? Right now my dad's biggest fear is that there will be permanent damage to his lungs and he will be back on oxygen permanently. I honestly think he fears that more than dying. As you can imagine this is devastating to him and my family. On top of the emotional devastation comes the heavy burden of financial stress. For a shameless plug: if you are able to, please donate to help pay for his medical expenses and/or share the below link with your network.We are truly grateful for any help, support or prayers that you can offer for my family.Thank you!…See More
https://www.tilt.com/campaigns/the-mountain-familyMy dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. As you can imagine this is devastating to him and my family.On top of the emotional devastation comes the heavy burden of financial stress. If you are able to, please donate to help pay for his medical expenses and/or share the below link with your…See More