Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Which Transplant Medication(s) Do You Take?
Prograff, Prednisone, Myfortic
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I retired from teaching Emotionally Disturbed Adolescents just before I began dialysis. I hope to teach at the community college when I gain some strength. (Have to have a goal!)
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am just beginning to be able to spend time at a computer to join websites such as this. I have many questions-do others have similar experiences etc.
I received my kidney the day after Mother's Day from a deceased donor, and was sent home on the 16th. I had much pain, and the answer was -increase pain meds-not find out the reason. I returned to a local hospital on the 17th, was there until the 19th and went back on the 20th, and was ambulanced (a 2 1/2 hour ride )on the 22nd. From the 17th until the 22nd, my internist recommended a "pain therapist" after conferring w/ UW's surgeon. Finallly!!! they did a scan and determined that I had an abscess, peritonitis, and a bladder infection!-thus the transport, draining, removing the cath. (The internist didn't listen to the radiologist who had seen this on my first post transplant hospitalization, and the surgeon did not feel there was a need for post op tests.
I would be here had my husband not continuing to question and be my advocate-I was not able to at that time.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
I found it on Google when I was looking up side effects of Prograff.
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I enjoy classical music (regular at Chicago Symphony and Ravinia. I also play mandolin. I also read -much more with time and little energy.
Comment Wall (8 comments)
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Thanks for the sweet welcome to this site!Im in the insurance phase , testing which my insurance paid for about $30,00 worth of testing.Can I ask how long did you have to wait once you were on the list?I have hepatic encephalopathy and have been to hospital twice in less than 6 months. The first visit I was pretty much out of my head. Finally adjusting the lactulose and x drug . Everyone I came in contact with was just rubbing me the wrong way.Second visit finally got the lactulose working right. Thanks to Dr. Panel one of the transplant doctors in Baptist Hospital Oklahoma City.See More
"Hi thanks for the advise, Currently I am taking Prograf 1mg twice a day, also I had my medical test done last week and everything was normal except indirect bilirubin, which was 1.57 (should be max 0.80). Also the cause of my liver failure was…"
"A little bit of alcohol now and then will not kill you however, I don't know what medications you take. You should check and see if any say not to take with alcohol. If you have hep C or any other kind of hepatitis,stay away from…"
This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?