Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Which Transplant Medication(s) Do You Take?
Prograff, Prednisone, Myfortic
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I retired from teaching Emotionally Disturbed Adolescents just before I began dialysis. I hope to teach at the community college when I gain some strength. (Have to have a goal!)
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am just beginning to be able to spend time at a computer to join websites such as this. I have many questions-do others have similar experiences etc.
I received my kidney the day after Mother's Day from a deceased donor, and was sent home on the 16th. I had much pain, and the answer was -increase pain meds-not find out the reason. I returned to a local hospital on the 17th, was there until the 19th and went back on the 20th, and was ambulanced (a 2 1/2 hour ride )on the 22nd. From the 17th until the 22nd, my internist recommended a "pain therapist" after conferring w/ UW's surgeon. Finallly!!! they did a scan and determined that I had an abscess, peritonitis, and a bladder infection!-thus the transport, draining, removing the cath. (The internist didn't listen to the radiologist who had seen this on my first post transplant hospitalization, and the surgeon did not feel there was a need for post op tests.
I would be here had my husband not continuing to question and be my advocate-I was not able to at that time.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
I found it on Google when I was looking up side effects of Prograff.
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I enjoy classical music (regular at Chicago Symphony and Ravinia. I also play mandolin. I also read -much more with time and little energy.
Comment Wall (8 comments)
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Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
"At a local bar in downtown St Paul, the owner and bartender, was so sure that he was the strongest man around, that he offered a standing $1000 bet. The bartender would squeeze a lemon until all the juice ran into a glass, and then hand the…"