Please Select Your Transplant - Or Tell Us How Else You Were Touched by Transplantation:
Recipient: What Type of Donor Did You Receive your Gift of Life From?
Which Transplant Medication(s) Do You Take?
Prograff, Prednisone, Myfortic
What Do You Do For a Living? What Are Your Passions, Hobbies, Passtimes, Dreams and Goals for the Future?
I retired from teaching Emotionally Disturbed Adolescents just before I began dialysis. I hope to teach at the community college when I gain some strength. (Have to have a goal!)
About Me: Please use this space to tell the community about you and your unique experience with transplantation:
I am just beginning to be able to spend time at a computer to join websites such as this. I have many questions-do others have similar experiences etc.
I received my kidney the day after Mother's Day from a deceased donor, and was sent home on the 16th. I had much pain, and the answer was -increase pain meds-not find out the reason. I returned to a local hospital on the 17th, was there until the 19th and went back on the 20th, and was ambulanced (a 2 1/2 hour ride )on the 22nd. From the 17th until the 22nd, my internist recommended a "pain therapist" after conferring w/ UW's surgeon. Finallly!!! they did a scan and determined that I had an abscess, peritonitis, and a bladder infection!-thus the transport, draining, removing the cath. (The internist didn't listen to the radiologist who had seen this on my first post transplant hospitalization, and the surgeon did not feel there was a need for post op tests.
I would be here had my husband not continuing to question and be my advocate-I was not able to at that time.
Please Help Us Reach Other Members by Telling Us How You Found Transplant Cafe:
I found it on Google when I was looking up side effects of Prograff.
What Is Your Relationship Status?
Entertainment: What is Your Favorite Type of Music, Bands, Movies, Art, Books, etc.?
I enjoy classical music (regular at Chicago Symphony and Ravinia. I also play mandolin. I also read -much more with time and little energy.
Comment Wall (8 comments)
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You have certainly had a rough time on top of the usual transplant roller coaster. Unfortunately the drugs we rely on bring its own problems.
I am very pleased you have a supportive family to keep you strong.
You are young & strong in…"
I started off taking problably around 9mg 2x a day of prograft and 1000mg of Cellcept 2x a day. It was eventually tapered down to 4mg then in Feb down to 2mg and cellcept to 500mg 2x a day. My dose has fluctuated quite a bit in the last 2…"
Easter Can Still Be Sweet For Those With Diabetes. The ultimate goal is to watch your glucose sugar level if you're planning on having chocolates.Here's options for Diabetics on Easter: 1) Sugar free- family fun activities/ exercise 2) Chocolates- major portion control 3) Non food gifts- gift of flowers or plant 4) Sweet Alternatives- Simnel cake or hot cross buSee More
Unfortunately This is more common than you may think . Not my personal experience granted but have heard & read of this happening.
Out of curiosity what were your Prograf levels over the 2 yr period? & doses? As this plays a…"
I had my liver transplant March 2012 and now last month almost 2 yrs after my liver transplant, I'm in kidnwy failure and on dialysis 3x a week. I am currently being evauated for a kidney transplant at MUSC in Charleston, SC. I hate dialysis! I need my life back!See More