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Alicia Nelson
- Female
- Wrightwood, CA
- United States
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Alicia Nelson's Groups
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Liver Transplants
169 members
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The Young Ones
66 members
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Fans of Three Rivers on…
67 members
Alicia Nelson's Discussions
How long has everyone waited for their liver transplant?
Thank you everyone who has written back so far. :)
Replied 1 day ago
How long has everyone waited for their liver transplant?
Thank you, may youy have a blessed Christmas as well!
Replied Dec 22
How long has everyone waited for their liver transplant?
Thank you Cathy!... I know I am waiting to get higher on the MELD score. California is so hard, there are so many people.
Replied Dec 22
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Latest Activity
My husband had about 48 hrs to live the first time - and he got a liver in about 36 hrs. He's currently re-listed and has been on the list 2 1/2 yrs. His health has improved with some changes (quit work & switched to organic food). I think his MELD…
Thank you everyone who has written back so far. :)
It depends on location (where you're at), blood type and liver functions. Jess was an A+ but we felt that she wasn't going on the list in LA. We moved to Kentucky. She was listed at Cincinnati Childrens the third month we were here and got her trans…
Alica, Hello from La Mesa, Ca I had my transplant 5 months ago at Scripps Green Hosipal located in La Jolla, Ca The meld score to be transplanted here is 25. In my case I was admitted on July 13, 2009 and my meld was 13 for 1 week and then my meld j…
I have/had Polycystic Liver Disease and was listed 1/09/09 and was transplanted on 11/24/09. Hang in there - it is a hard process to go through and a challenge to wait - the call will come when you least expect it! I had been told my wait could poss…
Thank you, may youy have a blessed Christmas as well!
Thank you........
I WAS DIAGNOSED WITH HEP C AND CIRRHOSIS SEPT 2003......RECEIVED MY GIFT OF LIFE LIVER 02/17/05....BEGAN "GOING DOWNHILL" NOVEMBER OF 2004....QUICKLY WORSENING....BEGAN BLEEDING AND WENT UNCONCIOUS....TAKEN FROM FRANKLIN (WESTERN MTNS OF NC) TO DUKE…
Dear Alicia,
I had a liver included as a part of a multivisceral transplant. My transplant doctors in Miami did not tell me what my MELD score was, but they did say that I was probably at the top of the list (I had been jaundiced quite a while). I t…
Thank you Cathy!... I know I am waiting to get higher on the MELD score. California is so hard, there are so many people.
You should be on UNOS active list with a Meld of 16 . I think California is the only State that starts at Meld of 21....
I was 13 when listed drop to 10 for 10 months on my 11th month I went into a coma and my Meld went to 16 and I was listed on UN…
Just curious what the average wait is for a full liver transplant. I have been on the list for about 8 months now. I will be getting more labs done for UNOS again Jan 4th. So we will see what my MELD score is... Currently it is at a 16.
I have still not had my transplant yet, but I already have a groin hernia, they will not operate on it because of my PT count is so low. I hope that after transplant that I dont get and incisional hernia as well. Since I have a 2 year old, I do a lo…
This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Profile Information
- How are you touched by transplantation?
- I am on the Transplant Waiting List
- If you are on the transplant waiting list, what type of transplant are you waiting for?
- Liver
- If you are on the transplant waiting list, please use this space to write about your experience:
- Well I am 26 and I have a Meld Score of 15. I have Hepatitis C and have had it since birth. All of my other Organs are great, just waiting for a new Liver. I have been on 2 treatments, both non-responders.
- What do you do for a living?
- I am a stay at home mom of a wonderful 2 year old boy! I am very lucky to spend everyday with him, my husband works full time to support us.
- About Me: Please use this space to tell the community about yourself and your unique experience with transplantation:
- Again, I am just on the the Liver Transplant List. I guess waiting to get sicker, I love my husband and son very much. They are my everything. My parents live very close by so when the time comes for the transplant, they will be there for all of the support as well.
- Please help us reach other members by telling us how you found Transplant Cafe:
- I found out about the Transplant Cafe from someone at a support meeting.
- What is your relationship status?
- Married
Comment Wall (7 comments)
- At 10:18pm on December 9, 2009,
Holdol said… - Alicia, I just wanted to say hi and see how everything is going for you :) I truly hope you recieve your new liver soon! Let me know if you ever need anyone to chat with. I had a liver amost 4 years ago. Your in my thoughts and prayers! Take care and let me know how things are going...
- At 4:32pm on November 29, 2009,
Lili Feldman said… - Alicia, welcome to The transplant Cafe. I can tell you the people here ARE like family. The kindest people you'll ever meet. I too have hep C. I have had two treatments on
interferon and riba- also to no avail. Two bad years on those harsh meds. I had to give up my job as a med asst. after 18 years. Could not handle it. I am geno type 1. Then I found out I had kidney disease, prob. because of my diabetes. So that took priority. My sister donated her favorite kidney to me in 2008. I've truly been blessed. Anytime you want, I'm here, as well as everyone else. Your little boy looks adorable.
I have faith that God will make his mommy better. I would like you to be my friend. Okay with you? Lil
- At 4:59pm on November 27, 2009,
Juan Cruz said… - God Bless you..I belive you will be Ok
- At 4:00pm on November 10, 2009,
TransplantCafe.com said… - Hi Alicia,
Hang in there. We're all family here and it's good to have you on. All the tools of the site are here to help you release that frustration and help others with theirs. I think you might also enjoy writing in your blog, if you're the writing type. It's also good to help others with their frustrations to release your own.
Talk soon..
Nelson (my first name:)
- At 10:09pm on November 9, 2009,
Rachael Beecy said… - welcome to the cafe alicia! we are just about the same age so I know exactly how you are feeling. i will definately share my story! send me a msg on here anytime!
- At 12:25am on November 6, 2009,
Holdol said…
- Alicia, I just wanted to say hi and welcome you to the Cafe! This site is amazing and you will find so much support here and meet a lot of wonderful people. I truly hope you receive your gift of life soon :) Your in my thoughts and prayers. Take care and enjoy the site...
- At 11:10pm on November 5, 2009,
Karen Weddick said… - Hi Alicia:
I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and I’ll be glad to help you out. So glad you are here and again welcome to the Transplant Café. Here’s a link that might help you get started:
www.transplantcafe.com/forum/topic/show?id=2024407:Topic:2985
Take care,
Karen
Kidney Tx
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