Comment

TC Admin Comment by Karen Weddick on May 7, 2013 at 7:06pm

I've been on both Cellcept and Rapamune and was told to always take them one hour before meals or one hour after meals.  Empty stomach increases maximum absorption.

Comment by Kimberly on May 7, 2013 at 6:53pm

Been on cellcept for years now and I always have to take it on a empty stomach or else I really get sick

Comment by Gary C Michaels on August 28, 2011 at 5:35am

Thanks for responding. Nice to talk to friends that share use of the same meds.  Gary

Comment by Kathy T on August 25, 2011 at 12:50pm

I had a liver tx 4 years ago.  Last winter I went on Rapamune and Cellcept.  So far so good.

Comment by Peter james goodman on August 3, 2011 at 9:19pm

Gary, right with you brother!  My Drs. at Univ.of Ne.Med Center concur.  Important to remember though we are al different----"one size fits all"  saying doesn't work here.  The tiredness and sometimes---moody without cause comes into play with me.  Peace Gary!

Comment by Gary C Michaels on August 3, 2011 at 4:58pm

I had my liver transplant at Duke on june 28th 2003. I was put on prograf until this past Feb. I was started on Cellcept because of elevated kidney numbers. My last blood test was great. My kidneys and liver were all normal. My Dr. at Duke told me that my type 2 diabetes may deminish or go away, also my blood pressure may improve to the point that I may come off some blood pressure meds. This is a not a given you need to watch what you eat and exercise. I started the the diabetic Nutrasystem diet 3 months ago. I have lost 18 lbs. and I do belive this is helping my bolld pressure and diabetes. I don't want to say for sure until I have been on it longer. Has anyone else been told that cellcept may improve diabetes and blood pressure. The one thing with me is that I feel sleepy and tired several days a week. Then for no reason I will feel great for several days. Dose any of this sound familiar to anyone.  Gary M.

Comment by Paul Anthony Worthington on May 26, 2011 at 6:57am

Have been on Mycophenolate 1g bd for 3 years now - no issues with it at all (touch wood).

 

Heart Tx 18th May 1986

Comment by CatAnne on May 25, 2011 at 6:19pm

When they first put me on Cellcept; I was throwing up, but they just gave me Zofran. Once I was on it for a longer period of time I no longer needed the Zofran.

(Hope I spelled Zofran right.)

Comment by Kevi Stringer on March 22, 2011 at 10:19pm

I take Mycophenolate. New heart 5/28/10

Comment by Curtis Lewis & wife, Denise on January 21, 2011 at 8:58am

My husband, Curtis was #263 heart transplant at St. Luke's Hopsital in KC, MO on 04-10-04.  He is doing wonderfully!  Just wanted to share with everyone that you may qualify for free Cellcept with a copay card from Roche.  It pays up to $100 per month toward Cellcept prescription and refills.  The card says good through 2009, but when I called their number, they said the program is continuing.  The telephone number is 1-877-509-2235.

Does anyone know of a program to get free or discounted Neoral???? 

Denise Lewis

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