Replies to This Discussion

Permalink Reply by Pam Jarvis on December 24, 2010 at 7:55pm

I have gained 10 lbs. in the last 9 months, since my kidney transplant   Reading about the cheese thing is crazy, as I crave cheese all the time!  I seem to get hungrier later in the day and have no willpower.

I have also lost a lot of my hair.  Was told the hair thing is from Myfortic.  Not that I wish this on anyone, but, it's nice to know I am not alone...

Permalink Reply by Jill Garzia on December 27, 2010 at 7:21am

Hi Pam,

 

My hair fell out from the Myfortic too. But it has gotten better, I take Biotin every day (my doc said it was Ok with her) and I have really seen an improvement since then. I found that it fell out mostly in the beginning and got less as time went on. I also use phosphate free shampoo and conditioner. It has really gotten alot better, I wish you luck with it!

The food thing I have yet to get a handle on....I eat constantly and now I weight 45 pounds more than I did before my surgery. My doctor said I have to get the weight off because it can cause diabetes, so try not to let the weight get away with you like I did!

Jill (May 2009)

Permalink Reply by Pam Jarvis on March 6, 2011 at 4:34pm

I have gained 14 lbs. in 11 months since my kidney transplant.  I also have the cheese bread and dinnertime cravings.

I am a diabetic going to try the Weight Watcher diet.  Now, you can eat all the fruit and veggies you want.  It sounds like a very healthy diet.  Don't know much else about it, except my cousin, non-transplant, has lost 14 lbs. in 3 months.

I am going to look up WW online.

Oh yeah, my hair falling out was not only Myfortic, but, my thyroid was low, too.  Get it checked...

~ Pam

Permalink Reply by Marjorie Miller on January 25, 2011 at 12:15pm

i Had my transplant on June 17, 2010. I have no gained any weight. I actually lost 5 pounds.

I'm 118 pounds. I am on 5mg of prednisone a day. my Dr said that 5mg is too little to feel any hungrier than normal. I don't feel anything. I eat like I normally would.

BUT i will say this. I do not eat any processed food. I eat clean. basically everything I eat is natural and from the earth. Not sure if that makes a differnce. it might. I am health freak and a workout maniac so I'm sure that keeps my weight in check too.

Maybe if you try to eat more natural and organic foods it would knock off some weight.

Permalink Reply by Brenda D. Mixon on March 7, 2011 at 10:28am

Congratulations Majorie, but from the rest of us who battle daily with something that was neverbefore a problem, weight........, shut up! Actually you gave the correct answer to the weight delimma,... exercise. As much and as often as you can. It has been proven to increase the life of the transplanted organ by 68%. Happy transplant, happy life, with the added benefit of a longer life.. When my kidneys failed, it happened very suddenly and no one ever figured out why. I was on dialysis for 2 yrs 2 mos 6 dys and I had lost so much weight that the weight I gained brought me back up to normal.  Go ahead, say it, you know you want to....................shut up! I have reached the point that I am back to my normal weight, it's just in totally different places..So now I am trying to find out how to do some shapeshifting. Any ideas that don;t include starving, exercise, running, sweating??????????????????

 

Permalink Reply by Mary Wu on January 26, 2011 at 5:58am

Jill, my friend, I soooooo feel for you!! I am only 4'11" and

Permalink Reply by Rose Soros on February 3, 2011 at 6:33am

I have also gained 30 lbs since my transplant in April 2010 and I am also losing so much hair. I feel uncomfortable in my own skin. It does not matter what I do, the weight will come of.

I am very grateful for the gift, but right now I am just so depressed the way I look and feel, that I hardly go out anymore. Just hope all this will pass and find a way to reverse my weight gain.

Permalink Reply by Herbert Maldonado on February 3, 2011 at 6:29pm

I gained 50lbs in 9 months lol .. my doctor said impressive but now lose 20 lol... I only lost 10 and the 10 i still have to go are hard!!! But i will try and dedicate myself to the gym... not easy... Good luck reaching your weight that the doctor told you! You can do it

Permalink Reply by Mary Coy on March 5, 2011 at 9:42pm

How is the weight coming ? I wrote you before and since then I did have the Lap Band surgery, and I am doing very well.Lost 72 lbs since Sept 14,10. But  its not easy even having the surgery.You still have to eat right and make the right choices. This what the classes told us,eat 4 -5 small meals a day and eat small amounts, and make sure you get at least 50 or more grams of proteins a day or your metabolism will not work and you will not lose any weight no matter what you do. I hope that helps you a little. Good Luck I know its hard.

Permalink Reply by Cynthia Jane Tidwell on March 6, 2011 at 7:40pm

Jill I know what you are talking about. I lost 114 lbs after my liver transplant and now my body is large. I have spoke to my transplat team and they tell me the same thing. They said I was so sick and I did not care about food and now I do, I am beginning to wonder if maybe you pick up the cravens and things that your donor had. I know that is crazy but sometimes I wonder. My donor was a male 36 he must have been a football player. My shoulders have gotten so wide. I am going crazy but at least I am alive. I take prograft, magnessium and calcium. 

Permalink Reply by Judi Pulaski on March 7, 2011 at 4:11am

Jill, I gained a lot of weight after my transplant!!!  I had had many problems and lots of IV Pred.  This causes the side effects to take time to kick in.  I walked and watched what I ate, joined a weight loss group and watched myself balloon up.  It took a long time to have it start coming down.

   The thing you have to remember is that you have to limit meat and cheese and bread.  You don't want to get heart disease or diabetes and you really need to eat like a diabetic.  It wasn't easy at first, but I had to train myself to only eat what was "good for me" and now what I wanted.

    Good luck and hope this helps.  Judi

Permalink Reply by Bharath Chandra on November 27, 2011 at 9:48am

Jill,

 Before transplant I weight 100 pounds!!! My height was 5 7'. You can imagine how thin I was. Its been a month since my transplant happened. I currently weigh 112 pounds. In one month I have gained 12 pounds. The doctors advice to this was exercise. They said I still need to put on about 30 pounds to reach my ideal weight, but I need to do it in a manner such that fat is not deposited in unwanted areas . I have been advised jogging, walking and exercise. Currently I am eating like a pig, but I also jog/walk for 45 mins every morning. I am starting weight lifting from next month. It makes sure that I increase my muscle mass in the right areas. Also I have been told to start counting my calories after I hit a certain weight. I know that is going to be difficult, but it is necessary. There  is no other way to control your weight other than diet and exercise. Stay away from carbs!! They are the culprits.

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