I would love to chat about any aspect of the journey. I welcome any contact from anyone who WAS Diabetic (I was for 38 years) and am thinking about wanting to contact my donor's family....

I would love some new "family". Please just say "hi"!

Views: 74

Replies to This Discussion

Hi Cathy, Welcome to the discussion group.
Thank you Donald!

Tell me about you, and we can chat a bit!

Have a great Sunday!
Hi Cathy,

I am new here too, but have had my pancreas tx going on 10 yrs. April 10. 2009. When I had my transplant, I didn't even know they did a pancreas alone tx. It saved my life! I was diagnosed with juvenile diabetes at the age of 15. I have had a lot of complications related to diabetes; from a heart attack at the age of 32, a stroke, as well as becoming visually impared and unable to drive anymore. This is tough sometimes, but I try hard to be a positive person. Attitude means so much!.

I was on high doses of prograf with my pancreas transplant and eventually it effected my kidneys. Started hemo-dialysis and continued that route for over 2 years. Recieved my kidney (cadaver) transplant in Octover 2004. Now I am on a low dosage of prograf, and try to keep my tacrolimus level somewhere in the middle of the two scales.

I feel very lucky and blessed to be alive. Although I am limited with my vision, I don't let that stop me. I love to play golf, bowl and travel...we will be returning to Italy in September! I do have a wonderful daughter and a great husband. A good support system is critical.

Please, let me know if there is anything I can help you with. I will try my best.

I love new "family" too!

Warn regards,

Sharon
Hi Cathy,
I too had a kidney/pancreas transplant. I just had my one year post tx check up. I was a diabetic for 35 years before my transplant. This indeed is a journey isn't it?! I am still trying to get use to NOT being a diabetic, still very strange to me. I was a very anal diabetic. I never had any problems until my doctor told me I was in kidney failure. Surprised even the doctors.
Lets "talk" any time.
Take Care
Beth
Hi Beth,
Sorry for the delayed response...my "good" eye (L) hemoraged a week ago, and well, there we are.
I was diabetic for 38 years, with a number of complications, but mostly with my eyes. I am coming up on my 2 year post tx anniversary, and since last year, I've gained 20 pounds. My Endocrinologist, whom I've been with for 20 years, said it's not all fat, it's the prednisone, too. I'm only 4'11'' , and am now back on a portion controll lifestyle!
Have you had CMV? If you don't know what that is, THAT'S good!
Anyway, I hope to hear from you again!

Have a great day!
Hi Cathy & Beth,

I am new to this, but do hope to receive input and chats from many new friends. All these
letters sound so very much the same as my situation. I was a diabetic for 47 years, receiving
a p/k transplant 1.8/08. Had gotten a long perfect for 15 months, then suddeny received higher
loevels of Amylase and Liapase-- showing a slight sign of pancreas rejection. Has anyone
else experienced this? Would like to hear from one and all. Nancy
Nancy,
it was a month after my kp tx that I had mild rejection...I went to the hospital, at the request of my post-transplant group, and they did a biopsy, fed me an IV of a steroid, and I was okay! You've been in touch w/your team, yes? What is your amylase count? Do you drink alcohol? I do, and have done reseach on it as well.

If you want to talk, I'm here.
Hi Cathy,
Haven't chatted for awhile. Amylase/Liapase count is doing well... staying stable,
now my darn Prograf is somewhat jumping around unexpectedly. Guess it can happen.
They've been adjusted my dosage of course. Want to see it highter; was a 8 today.
Taking 3 mg am and 2 evening. See what happens next week. Have you experienced
this? Sounds like several have after reading some of these messages on this site.
Take Care.
Beth,
Just reading through some of the messages that have been left by Pancreas transplant people
and saw yours. I'm somewhat new at this, but you've probably seen my name around already.
I was a diabetic for 46 years and received a pancreas/kidney transplant 16 months ago. Your story sounds a little familiar; as I was doing fine (I thought) until the creatiine level began to rise; and
later I was feeling the affects. I did PERFECT for 16 months and just in May had a "bump" in the
road -- level s began to rise and biopsy showed slight pancreas rejection, so after many different
treatments (IV) and hospital stays, things are getting back to normal ranges. My biggest
thing now is the higher doses of prednisone -- makes me feel strange some of the time. Never
been on this much and hopefully they will begin to wean me down. I guess rejection can happen
for no known reason; but it was a shock to me and my family (not to scare you).
Hioe things are going well.
Like to hear from you,
Nancy

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Paula Maine is now a member of TransplantCafe.com - The Gift of eLife!
2 hours ago
Don Kosolofski posted a blog post

Hello all. New to this site 9 months post Liver Finding out a lot about what comes after the transplant. I know it will vary but wondering what else to expect for the next 9? Welcome Anyone and anyth…

Hello all. New to this site 9 months post LiverFinding out a lot about what comes after the transplant. I know it will vary but wondering what else to expect for the next 9? WelcomeAnyone and anything is fineSee More
yesterday
Profile IconDon Kosolofski and Clifford Hanson joined TransplantCafe.com - The Gift of eLife!
Thursday
Patricia D. liked Patricia D.'s profile
Monday
Karen Weddick left a comment for Patricia D.
"Hi Patricia: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Monday
David Goodman commented on Lili Feldman's group The Funny Bone
"An old lady decided to give herself a big treat for her 85th birthday by staying overnight in an expensive hotel for Thanksgiving.  When she checked out next morning, the desk clerk handed her a bill for $450.   She exploded and demanded…"
Monday
Patricia D. is now a member of TransplantCafe.com - The Gift of eLife!
Sunday
Bill Widen posted a status
"Hello all :-) I've be battling cancer for the past 18 months. We are cancer free at this point and the transplant lung is still doing fine."
Aug 20
Bill Widen posted photos
Aug 20
Profile Iconrobert bryant and Jade Parenteau joined TransplantCafe.com - The Gift of eLife!
Aug 15
Bob Abendroth posted a discussion

My lung transplant

Lung transplant, my story.Before I begin, I would first like to thank the many people, without whom this may have never happened. To the doctors and nurses and everyone else at Johns Hopkins who have been absolutely amazing. To countless friends and relatives, I can't begin to name them all or to thank them all personally for all of their support and prayer. I feel that everyone has gone through this together with me, and John as well. To my immediate family, my sons and daughter-in-law who sacrificed tremendously beginning with my son John's accident in February, 2014 and continue to do so. To my dear wife Diane who has been steadfast through the ordeal of my surgery, but even more so with our youngest son being wheelchair bound. And very importantly, I want to thank the donor and his family for their tremendous sacrifice. And most importantly, I thank God for guiding me through this. I know he has a plan.I will begin back in 1990 when I was living in Virginia. It started one day…See More
Aug 14
steve sullivan posted photos
Aug 11
David Goodman commented on Lili Feldman's group The Funny Bone
"Ever walk into a room with some purpose in mind, only to completely forget what that purpose was?   Turns out, doors themselves are to blame for these strange memory lapses.   Psychologists at the University of Notre Dame have discovered…"
Aug 7
David Goodman commented on Lili Feldman's group The Funny Bone
"A woman and a man are lying next to each other in bed when her phone rings. She picks it up and the man looks over at her and listens. She says in a cheery voice, "Hi, I'm so glad you called.... Really, That's wonderful.I'm so…"
Aug 7
David Goodman commented on Lili Feldman's group The Funny Bone
"The mother-in-law comes home and finds her son-in-law furious and packing his suitcase. "What happened?""What happened? I'll tell you what happened!I sent an email to my wife saying that I was coming home from my trip today. I…"
Aug 7
David Goodman commented on Lili Feldman's group The Funny Bone
"Jack goes to his friend Mike and says ..."I'm sleeping with the minister's wife. Can you keep him back in church for an hour after service for me?"Mike doesn't like it, but being a friend, he agrees.After the service, Mike…"
Aug 6

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service