I would love to chat about any aspect of the journey. I welcome any contact from anyone who WAS Diabetic (I was for 38 years) and am thinking about wanting to contact my donor's family....

I would love some new "family". Please just say "hi"!

Views: 65

Replies to This Discussion

Hi Cathy, Welcome to the discussion group.
Thank you Donald!

Tell me about you, and we can chat a bit!

Have a great Sunday!
Hi Cathy,

I am new here too, but have had my pancreas tx going on 10 yrs. April 10. 2009. When I had my transplant, I didn't even know they did a pancreas alone tx. It saved my life! I was diagnosed with juvenile diabetes at the age of 15. I have had a lot of complications related to diabetes; from a heart attack at the age of 32, a stroke, as well as becoming visually impared and unable to drive anymore. This is tough sometimes, but I try hard to be a positive person. Attitude means so much!.

I was on high doses of prograf with my pancreas transplant and eventually it effected my kidneys. Started hemo-dialysis and continued that route for over 2 years. Recieved my kidney (cadaver) transplant in Octover 2004. Now I am on a low dosage of prograf, and try to keep my tacrolimus level somewhere in the middle of the two scales.

I feel very lucky and blessed to be alive. Although I am limited with my vision, I don't let that stop me. I love to play golf, bowl and travel...we will be returning to Italy in September! I do have a wonderful daughter and a great husband. A good support system is critical.

Please, let me know if there is anything I can help you with. I will try my best.

I love new "family" too!

Warn regards,

Sharon
Hi Cathy,
I too had a kidney/pancreas transplant. I just had my one year post tx check up. I was a diabetic for 35 years before my transplant. This indeed is a journey isn't it?! I am still trying to get use to NOT being a diabetic, still very strange to me. I was a very anal diabetic. I never had any problems until my doctor told me I was in kidney failure. Surprised even the doctors.
Lets "talk" any time.
Take Care
Beth
Hi Beth,
Sorry for the delayed response...my "good" eye (L) hemoraged a week ago, and well, there we are.
I was diabetic for 38 years, with a number of complications, but mostly with my eyes. I am coming up on my 2 year post tx anniversary, and since last year, I've gained 20 pounds. My Endocrinologist, whom I've been with for 20 years, said it's not all fat, it's the prednisone, too. I'm only 4'11'' , and am now back on a portion controll lifestyle!
Have you had CMV? If you don't know what that is, THAT'S good!
Anyway, I hope to hear from you again!

Have a great day!
Hi Cathy & Beth,

I am new to this, but do hope to receive input and chats from many new friends. All these
letters sound so very much the same as my situation. I was a diabetic for 47 years, receiving
a p/k transplant 1.8/08. Had gotten a long perfect for 15 months, then suddeny received higher
loevels of Amylase and Liapase-- showing a slight sign of pancreas rejection. Has anyone
else experienced this? Would like to hear from one and all. Nancy
Nancy,
it was a month after my kp tx that I had mild rejection...I went to the hospital, at the request of my post-transplant group, and they did a biopsy, fed me an IV of a steroid, and I was okay! You've been in touch w/your team, yes? What is your amylase count? Do you drink alcohol? I do, and have done reseach on it as well.

If you want to talk, I'm here.
Hi Cathy,
Haven't chatted for awhile. Amylase/Liapase count is doing well... staying stable,
now my darn Prograf is somewhat jumping around unexpectedly. Guess it can happen.
They've been adjusted my dosage of course. Want to see it highter; was a 8 today.
Taking 3 mg am and 2 evening. See what happens next week. Have you experienced
this? Sounds like several have after reading some of these messages on this site.
Take Care.
Beth,
Just reading through some of the messages that have been left by Pancreas transplant people
and saw yours. I'm somewhat new at this, but you've probably seen my name around already.
I was a diabetic for 46 years and received a pancreas/kidney transplant 16 months ago. Your story sounds a little familiar; as I was doing fine (I thought) until the creatiine level began to rise; and
later I was feeling the affects. I did PERFECT for 16 months and just in May had a "bump" in the
road -- level s began to rise and biopsy showed slight pancreas rejection, so after many different
treatments (IV) and hospital stays, things are getting back to normal ranges. My biggest
thing now is the higher doses of prednisone -- makes me feel strange some of the time. Never
been on this much and hopefully they will begin to wean me down. I guess rejection can happen
for no known reason; but it was a shock to me and my family (not to scare you).
Hioe things are going well.
Like to hear from you,
Nancy

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Lili Feldman commented on Holly Werlein (Holdol)'s group Prayer & Blessings
"PTL Matthew! That's fantastic. Very happy for you!"
4 hours ago
Nancy Jean Ing liked Matthew J Litkie's profile
5 hours ago
Matthew J Litkie commented on joanie brandon's blog post New transplant medication
"If you are visiting the Dermatologist a lot for for freezing Pre cancerous lesions, you might ask if you can cut down on it. Im 8 years out I stopped taking it today!  With Dr.d blessing. Thank You Jesus!  You Are Awesome!  "
5 hours ago
Matthew J Litkie commented on Holly Werlein (Holdol)'s group Prayer & Blessings
" Thank You Jesus! No More Myfortic, (cellceipt), Labs every month for a couple, but K5 only! 8 years out, And Lovin Life! "
5 hours ago
Matthew J Litkie posted a blog post

No More Myfortic (Cellciept) March 30 2015

Almost 8 years out, & I only take a small amount of K5. Pre skin cancer every 2 months.My Skin Dr asked if I could stop taking what ever kept giving me skin lesions.The Lord Has Blessed Me, Beyond Imagination!See More
5 hours ago
Matthew J Litkie liked Juvon's blog post Am I in the right place?
6 hours ago
Matthew J Litkie liked Clare mcgee's blog post No Title
6 hours ago
Madame Bedlam updated their profile
14 hours ago
Madame Bedlam left a comment for Karen Weddick
"Hello Karen!  Thank you for the invitation.  My childhood friend is suffering from liver disease.  It's rather extreme and she is not high on the list.  Alcohol abuse.  I came to the transplant cafe to understand what…"
14 hours ago
Madame Bedlam and Karen Weddick are now friends
14 hours ago
Karen Weddick left a comment for Madame Bedlam
"Hi Madame Bedlam: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask…"
15 hours ago
Lili Feldman left a comment for David Goodman
15 hours ago
Profile IconMadame Bedlam and James Thorpe joined TransplantCafe.com - The Gift of eLife!
yesterday
Karen Weddick left a comment for James Thorpe
"Hi James: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
yesterday
Jona replied to Scott Michael Hedges's discussion 1-2 year move from Lawrence to Fort Collins, CO; Need insurance and new doctors!
"Hi Scott, Just joined here and saw your post. Have you made the move? We live in Loveland, just south of Fort Collins. My husband is on the waiting list at University Of Colorado Hospital Anschutz in Aurora. Hope all is well."
Sunday
Jona joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Sunday

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service