I would love to chat about any aspect of the journey. I welcome any contact from anyone who WAS Diabetic (I was for 38 years) and am thinking about wanting to contact my donor's family....

I would love some new "family". Please just say "hi"!

Views: 33

Replies to This Discussion

Hi Cathy, Welcome to the discussion group.
Thank you Donald!

Tell me about you, and we can chat a bit!

Have a great Sunday!
Hi Cathy,

I am new here too, but have had my pancreas tx going on 10 yrs. April 10. 2009. When I had my transplant, I didn't even know they did a pancreas alone tx. It saved my life! I was diagnosed with juvenile diabetes at the age of 15. I have had a lot of complications related to diabetes; from a heart attack at the age of 32, a stroke, as well as becoming visually impared and unable to drive anymore. This is tough sometimes, but I try hard to be a positive person. Attitude means so much!.

I was on high doses of prograf with my pancreas transplant and eventually it effected my kidneys. Started hemo-dialysis and continued that route for over 2 years. Recieved my kidney (cadaver) transplant in Octover 2004. Now I am on a low dosage of prograf, and try to keep my tacrolimus level somewhere in the middle of the two scales.

I feel very lucky and blessed to be alive. Although I am limited with my vision, I don't let that stop me. I love to play golf, bowl and travel...we will be returning to Italy in September! I do have a wonderful daughter and a great husband. A good support system is critical.

Please, let me know if there is anything I can help you with. I will try my best.

I love new "family" too!

Warn regards,

Sharon
Hi Cathy,
I too had a kidney/pancreas transplant. I just had my one year post tx check up. I was a diabetic for 35 years before my transplant. This indeed is a journey isn't it?! I am still trying to get use to NOT being a diabetic, still very strange to me. I was a very anal diabetic. I never had any problems until my doctor told me I was in kidney failure. Surprised even the doctors.
Lets "talk" any time.
Take Care
Beth
Hi Beth,
Sorry for the delayed response...my "good" eye (L) hemoraged a week ago, and well, there we are.
I was diabetic for 38 years, with a number of complications, but mostly with my eyes. I am coming up on my 2 year post tx anniversary, and since last year, I've gained 20 pounds. My Endocrinologist, whom I've been with for 20 years, said it's not all fat, it's the prednisone, too. I'm only 4'11'' , and am now back on a portion controll lifestyle!
Have you had CMV? If you don't know what that is, THAT'S good!
Anyway, I hope to hear from you again!

Have a great day!
Hi Cathy & Beth,

I am new to this, but do hope to receive input and chats from many new friends. All these
letters sound so very much the same as my situation. I was a diabetic for 47 years, receiving
a p/k transplant 1.8/08. Had gotten a long perfect for 15 months, then suddeny received higher
loevels of Amylase and Liapase-- showing a slight sign of pancreas rejection. Has anyone
else experienced this? Would like to hear from one and all. Nancy
Nancy,
it was a month after my kp tx that I had mild rejection...I went to the hospital, at the request of my post-transplant group, and they did a biopsy, fed me an IV of a steroid, and I was okay! You've been in touch w/your team, yes? What is your amylase count? Do you drink alcohol? I do, and have done reseach on it as well.

If you want to talk, I'm here.
Hi Cathy,
Haven't chatted for awhile. Amylase/Liapase count is doing well... staying stable,
now my darn Prograf is somewhat jumping around unexpectedly. Guess it can happen.
They've been adjusted my dosage of course. Want to see it highter; was a 8 today.
Taking 3 mg am and 2 evening. See what happens next week. Have you experienced
this? Sounds like several have after reading some of these messages on this site.
Take Care.
Beth,
Just reading through some of the messages that have been left by Pancreas transplant people
and saw yours. I'm somewhat new at this, but you've probably seen my name around already.
I was a diabetic for 46 years and received a pancreas/kidney transplant 16 months ago. Your story sounds a little familiar; as I was doing fine (I thought) until the creatiine level began to rise; and
later I was feeling the affects. I did PERFECT for 16 months and just in May had a "bump" in the
road -- level s began to rise and biopsy showed slight pancreas rejection, so after many different
treatments (IV) and hospital stays, things are getting back to normal ranges. My biggest
thing now is the higher doses of prednisone -- makes me feel strange some of the time. Never
been on this much and hopefully they will begin to wean me down. I guess rejection can happen
for no known reason; but it was a shock to me and my family (not to scare you).
Hioe things are going well.
Like to hear from you,
Nancy

RSS

Members

not a member yet?

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

George O'callaghan is now a member of TransplantCafe.com - The Gift of eLife!
2 hours ago
Neil Willens commented on Neil Willens's status
"I must say your words strike me more as a prayer than anything else, Bobbiejo, so I'll simply thank you and say "Amen". I do sit down to write when the spirit moves me. I don't know if it will be work publishing or not, but there…"
9 hours ago
Bobbiejo Winfrey commented on Neil Willens's status
"Congratulations on achieving such great success with your book! It is certainly a marvelous accomplishment. Do you think you have any more books in you? May you find many sources of inspiration and be blessed with plenty of words that shine with…"
11 hours ago
Ram Kumar Sharma left a comment for Sunil Khanal
"hello Sunil ! happy to have a friend like you . almost ten year is to be  completed for my case. but your itching news made me scared, for i too  had a vigorous itching during this winter. but the dermatologist told me it was a scabies .…"
15 hours ago
Ram Kumar Sharma and Sunil Khanal are now friends
15 hours ago

TC Admin
Karen Weddick commented on Neil Willens's status
"Congratulations Neil on your book become a Best Seller; that is awesome. I so thrilled, happy and proud of you.  Way to Go!!!"
yesterday
Profile IconTomasa del toro, Bob Briggs and Maria Velez joined TransplantCafe.com - The Gift of eLife!
yesterday
Neil Willens posted a status
""Thoughts of a Lifetime" has, in almost three weeks since it became available from the publisher been placed onto their "Best Seller" List."
yesterday
Sunil Khanal gave a gift to Jay Robare
yesterday
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !
"Hi Hugh,  I am doing well. And my health and kidney everything is well.. What about you> Hows' going your life?? want to hear as soon as possible about you.. Thank you so much."
yesterday
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !
"Thank you so much Paula M Rice, I am glad to have friends like you here in Transplant cafe. Thank you so much i hope everybody will help here for everybody.."
yesterday
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !
"Hi Preet, thank you so much. Yeah That was my first and last time. I hope i  will never miss the dose. I am fine and doing well.What about you my dear friend.?"
yesterday
Sunil Khanal replied to Sunil Khanal's discussion missed a medicine dose !
"Thank you so much dear friends Kats, It's very delay to reply you but i am happy that you said true and my MD told me that.. Thank you so much for your suggest. I really appreciate for this. "
yesterday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"A little girl was talking to her teacher about whales. The teacher said itwas physically impossible for a whale to swallow a human because eventhough it was a very large mammal its throat was very small. The little girl stated that Jonah was…"
yesterday
Terri Maynard and Daniel Larby are now friends
Monday
Lili Feldman commented on Jay Robare's group Inspirational Stories
"Amen to that Karen."
Monday

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2013   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service