I got my pancreas (and kidney) almost 4 years ago. Everything has been fine, except that occasionally I have low blood sugars. (The first time this happened, I was still in the stage of wanting to make sure my insulin pump was still attached; I checked my blood sugar, it was 60, and I immediately reached for my pump to put it in suspend). Well, you can't do that after a transplant, in case no one knew.
Occasionally, my blood sugar drops because I do stupid things like eat 3 cookies at 9 am for breakfast, then don't eat again til 2:30 (I quit doing that).
Anyway, I wondered if anyone else had lows sometimes. Drs. say nothing is wrong w/ it.
Sorry for any confusion - I DON'T have to wear the pump. I was making a joke that I was so used to wearing a pump that when it felt like my blood sugar was dropping, I automatically reached for it to put it in "suspend" mode. I do not have to check my blood sugar either (bye bye, expensive little strips).
Of course everyone's transplant experience is different, but mine was perfect as far as no longer needing any treatment for diabetes.
FYI, you can give unopened & unexpired test strips etc to a free clinic, and get a tax receipt. A transplant and a tax deduction - that's a great deal!
You can't suspend after a transplant???? Not suppose to suspend anyway right? Low dose? Sometimes I had lows after my pancrease only, I no longer take any insulin. I contributed to my di et. (cookies, lol) Since my sugars were so much better post op and I had been eating a low carb diet my BG would go low. It has been a year and half now, things are much better and I think it is all because of what I eat. Curious what your sugars are running. Good luck Lisa
I have had my pancreas and kidney for 3 1/2 years, and just recently have had feelings of low blood sugars too...I have let my test strip rx run out :O so I don't know where my bg is at. I have a rebellious streak in me, and enjoy having only coffee until early afternoon, while at work.
Can we talk about this some more? I hope you are doing really well, Allison-drop me a line when you are in the Cafe sometime.
Hi,, I have had my pancreas- after kidney for 8 1/2 years. Off insulin. I do get lows occasionally, seems to be the day after alot of extra activity or exercise esp. Also, I eat pretty much whatever I want and I sometimes drop right after I eat,, guess maybe I am making that organ work a little too hard. My issue since pancreas tx has been dropping blood pressure. It can run so low that I can hardly get through the day. Use to use midodrine. Don't like to as it makes bp then go too high. Stress has always put unusual fluctuations in my sugars. I did not have the problem with blood pressure drops with kidney transplant, only pancreas. Mine is bladder attached vs. bowel attached. Not sure if that matters. anyone else experience blood pressure issues with pancreas tx? It is truly an amazing thing to be off insulin completely and have normal blood sugars. Can't take it for granted.. Far cry from dialysis and insulin pump,, amazing,,
Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days. I will keep you in my thoughts - and hope for the best possible…"
Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.