I got my pancreas (and kidney) almost 4 years ago. Everything has been fine, except that occasionally I have low blood sugars. (The first time this happened, I was still in the stage of wanting to make sure my insulin pump was still attached; I checked my blood sugar, it was 60, and I immediately reached for my pump to put it in suspend). Well, you can't do that after a transplant, in case no one knew.
Occasionally, my blood sugar drops because I do stupid things like eat 3 cookies at 9 am for breakfast, then don't eat again til 2:30 (I quit doing that).
Anyway, I wondered if anyone else had lows sometimes. Drs. say nothing is wrong w/ it.
Sorry for any confusion - I DON'T have to wear the pump. I was making a joke that I was so used to wearing a pump that when it felt like my blood sugar was dropping, I automatically reached for it to put it in "suspend" mode. I do not have to check my blood sugar either (bye bye, expensive little strips).
Of course everyone's transplant experience is different, but mine was perfect as far as no longer needing any treatment for diabetes.
FYI, you can give unopened & unexpired test strips etc to a free clinic, and get a tax receipt. A transplant and a tax deduction - that's a great deal!
You can't suspend after a transplant???? Not suppose to suspend anyway right? Low dose? Sometimes I had lows after my pancrease only, I no longer take any insulin. I contributed to my di et. (cookies, lol) Since my sugars were so much better post op and I had been eating a low carb diet my BG would go low. It has been a year and half now, things are much better and I think it is all because of what I eat. Curious what your sugars are running. Good luck Lisa
I have had my pancreas and kidney for 3 1/2 years, and just recently have had feelings of low blood sugars too...I have let my test strip rx run out :O so I don't know where my bg is at. I have a rebellious streak in me, and enjoy having only coffee until early afternoon, while at work.
Can we talk about this some more? I hope you are doing really well, Allison-drop me a line when you are in the Cafe sometime.
Hi,, I have had my pancreas- after kidney for 8 1/2 years. Off insulin. I do get lows occasionally, seems to be the day after alot of extra activity or exercise esp. Also, I eat pretty much whatever I want and I sometimes drop right after I eat,, guess maybe I am making that organ work a little too hard. My issue since pancreas tx has been dropping blood pressure. It can run so low that I can hardly get through the day. Use to use midodrine. Don't like to as it makes bp then go too high. Stress has always put unusual fluctuations in my sugars. I did not have the problem with blood pressure drops with kidney transplant, only pancreas. Mine is bladder attached vs. bowel attached. Not sure if that matters. anyone else experience blood pressure issues with pancreas tx? It is truly an amazing thing to be off insulin completely and have normal blood sugars. Can't take it for granted.. Far cry from dialysis and insulin pump,, amazing,,
"Philip, I like your train of thought and couldn't agree more. I've been spending my time at work or asleep and that takes my mind off all of that. I'm off today. The itching isn't as bad as it was the other day. Starla, my liver…"
"That itching....thats the worse...i feel for you. Been there with all that itching.
Nothing they gave me worked except morphine and they stopped it.
The morphine was wonderful....no wonder its so addicting...LOL
Iysed to stay up all night…"
"@Jan Ward...I'm ok, waiting till the 29th for labs. I've been itching like crazy but my last bili level was 0.9 so that wasn't high. My other liver numbers were but that. If I am still itching when I get labs, I guess I will tell my…"