Comment

Comment by Marina on June 3, 2011 at 8:53am

Tina,

That's  a  great  question,  I  agree  with  you    put  the  recipient at  a  bigger  risk with  this.             My thinking  behind this,  and  this is  just  my  opinion,  is that  maybe  they look  at  what  the  benefits of  a  TX  are  and   how   CMV  can  be  treated  with  anti-virals  whenever  their  are  flareups.

 I'm  gonna have to  add  it  to  my  list of  questions  for  my next  clinic  visit.   

Have   a  great  day!!

Comment by Tina Sammon on June 1, 2011 at 11:40am

It's funny I knew she'd been drinking and I knew her bmi but was not told about her CMV status.  I found it myself weeks later in a report and pointed it out to my doctor.

Comment by Tina Sammon on June 1, 2011 at 11:38am

IHi Marina,

I knew that CMV was common but was confused why a CMV + donor would be appropriate for a CMV - recipient knowing that their immune system is compromised and will be indefinitely especially when Valcyte is only used for the first 6-9 months after transplant?

Comment by Marina on May 31, 2011 at 1:03pm

Hi  Tina,

According  to what I  have  read  and  what my  coordinator  told  me,  CMV  is  more  common than  we  think.

Most  adults  have  been exposed  to  it  at  some  point  in there  life

http://www.mayoclinic.com/health/cmv/DS00938

By Mayo Clinic staff

“Cytomegalovirus (CMV) is a common virus that can infect almost anyone. Most people don't know they have CMV because it rarely causes symptoms. However, if you're pregnant or have a weakened immune system, CMV is cause for concern.

Once infected with CMV, your body retains the virus for life. However, CMV usually remains dormant if you're healthy. CMV spreads through body fluids, such as blood, saliva, urine, semen and breast milk. People with weak immune systems have a greater risk of becoming ill from CMV.

There's no cure for CMV, but drugs can help treat people with weak immune systems. “

 

Comment by Lisa on May 31, 2011 at 8:39am

Hi Candie, Can I ask you if the hospital the doctor talked to you about is UNC at Chapel Hill NC. I know a lot about that center. I was listed there and then I moved to VA got on the list at MCV Richmond VA. They can do the operations at different times but I wanted them together. I would always suggest that you get listed at two hospitals. Once  you have been worked up its not to bad the next hospital may want some extra tests that is normal. If you want a pancreas I would find some place that does it and get on the list.

Comment by Tina Sammon on May 27, 2011 at 7:01pm

I'm wondering how common or rare the CMV infection is.  I read the entry to Nancy and what a nightmare.  My pancreas donor was CMV + and I am negative.  I'm on Valcyte now since my transplant on May 2nd this year and was on it last year for 9 months following my renal transplant (my donor sister was negative also)  I'm thinking maybe the Valcyte should just be taken indefinitely if the donor is pos?

Comment by Steve Diamond on October 16, 2009 at 2:25pm

Candie,

I had a Pancreas only and still have my native kidneys. I waited a total of 6 weeks for my Pancreas so you might check out other centers because 2 years sounds way off to me.

My thoughts on doing both at the same time are why not go through only one surgery. Granted it makes it a bigger surgery but I was out of the hospital and doing well ten days after transplant.

I was transplanted at Northwestern Memorial Hospital in Chicago by a brilliant surgeon named Dixon Kaufman.

Comment by Marie-Agnes Cederborg on October 13, 2009 at 5:35am

The new World Kidney Day Website is there!
Please visit www.worldkidneyday.org and sign up now!

Comment by Tracy & Nancy on October 6, 2009 at 9:38pm

Hey Candie ...Well that is so way cool you're getting a Kidney tx soon:) You will feel so much better!.....and remember down the road a pancreas only (pancreas after kidney) is an option for you. Keep me posted on how all that goes OK...Tracy

Comment by Tracy & Nancy on October 6, 2009 at 5:17pm

ooooppps a typo I ment Type 1 not 2

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