Lung Transplants

Comment

Comment by Darlene Tanner 20 hours ago

My Coordinator called this afternoon and told me I am Offically Listed as of today........... Now I am a bundle of nerves and excitment.

Comment by Tara on September 4, 2010 at 6:43pm

Oh and I am 18 1/2 years post lung tx and I am 9 years post kidney tx.

Comment by Tara on September 4, 2010 at 6:42pm

I only work part time. My husband works full time and I am on partial disability so I have Medicare and Ohio Medicaid for my health insurance. I have tried working full time in the past and I just ended up getting sick.

Comment by Jill Roberts on September 4, 2010 at 7:27am

Hi Roberta. I work full time, but only work 3 days a week (12hour days). That is perfect because I have the other 2 days for rest and doctors appointments.

Comment by Nulungs95 on September 3, 2010 at 5:56pm

Roberta,
I received a double lung transplant 15 years ago and remain on Disability. My husband provides our health insurance and pays the bills....I have had a few bouts with rejections and had threee young children when I was first transplanted. I volunteer for our OPO and am traveling because my husband is forced to work out of town temporarily...

Comment by Sara Pietrzak on September 3, 2010 at 10:43am

I'm 6.5 years post dbl lung txp. I'm very lucky as my husband carries our health insurance. I run a specialty baking business from my home part time. I've always wanted to go back to work, but my previous job was teaching in a middle school. Doc feels this is too germy of an environment. So, in the meantime, madelines anyone?? :)

Comment by Joanne on September 3, 2010 at 10:15am

Roberta-I had a double lung transplant over 9 years ago and am still working full time. In a perfect world, I'd be wealthy with lifetime health insurance, but, alas, I need to pay the mortgage and keep my healthcare insurance.

I agree with you - there's not much time for fun! I workout in the evenings and of course, doctor/clinic visits always take priority.

Comment by Roberta L. Monaghan on September 3, 2010 at 10:12am

How many double lung tranplant recipients work outside the home full time? And if you don't have to how? Working full time is really begining to wear me down, Not time for exercies, doctors visits, or having fun. I really wish there was a way to not have to work full time. I'd love advice.

Comment by Tara Maynard on August 2, 2010 at 9:50pm

Rachael is in my thoughts & prayers!!!

Comment by Kim Jacques on July 20, 2010 at 8:15am

Hi all!

At this summer's Transplant Games, there will be a "Lungers Gathering" on Sunday, August 1 at the Best Western Inn. The get-together starts at around 5 p.m. Bring your camera, business cards (to trade), and whatever else you want to share with the group! Hope to see you there! Kim :-)

P.S. I didn't get this group together--Joanne Schum did.

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