Place to discuss lung transplant issues.
Members: 133
Latest Activity: Apr 6
Hi- I am Kathryn. I currently am a vilunteer for the Lung Transplant Foundation raising money to do lung transplant research. Http://www.lungtransplantfoundation.org We are having our first Golf Tournement near Duke U Med Ctr next week on June 5th with awesome prizes!
I was on the board of Second Wind Lung Transplant Association, Inc for years. Second Wind could use help from interested volunteers to support patients both pre and post-tx as well as their family members. Our URL is :http://www.2ndwind.org We have a Peer support program.
I am a fulltime teacher which involves more than full time work. This group is for anyone touched by lung disease and lung transplant.
Started by Devra k. Last reply by Nulungs95 Apr 6. 1 Reply 0 Likes
My father has a single lung transplant march of 2013. Just looking for someone who has or who is going through the same thing
Started by jeremy mcmullin. Last reply by Mark Witcher Oct 21, 2012. 3 Replies 0 Likes
im only gonna be 20 the 27th im in need of a doudle lung transplant i just lookin for some to talk to about itContinue
Started by Tron. Last reply by Debbie Koski May 17, 2012. 4 Replies 0 Likes
I've just come on here after finding out im going on the list for a double lung tranplant... Just wondering if there are a few people around that maybe able to answer a few questions...Sometimes its…Continue
Started by Judy Schwartz. Last reply by Debbie Koski Jan 14, 2012. 3 Replies 0 Likes
I am 4 years out from a double lung transplant because of Lam. Do not want to go on imuran, am on prograf and prednisone. Doing great and not ready to add any more drugs if I can help it.
Started by Ana Stenzel Nov 13, 2011. 0 Replies 0 Likes
ANNOUNCING THE POWER OF TWO DOCUMENTARY FILM - PORTLAND, OREGON November 16, 2011Two Sisters – Two Cultures – Two New Chances at Life PLEASE JOIN US!The Power of Two, is a transformative film…Continue
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Comment by Nulungs95 on January 12, 2012 at 7:29am Sorry I didn't specify, the 40# means 40 pounds...total lost this past year...when the kids moved out I ballooned to 240 pounds and I'm only 5'6"!
I take Claritin once daily, used to take Clarinex and my insurance stopped paying for it.
As for flying, my husband worked in Richland, WA all of 2010 and I made at least 6 trips from Texas to visit him..
I've been talking with my hospital about making it easier to view my tests results..my diabetic doctor has a system that once she views it and "releases" it, I can view it online (even on my iPhone) allowing me to keep track of tests and avoiding having repeat testing from other doctors. I love it!
Yes, pasteurizing is very important. I went to a Farmer's Market one time and tried a TASTE of raw goat cheese (duh) and ended up with Salmonella, don't even remember three days once I had symptoms. I don't boil my milk, so I wasn't thinking about milk. I was also told to not eat honey. I don't eat it much, but being in Texas, it's fun to stop by the Farmer's market and taste different types of honey.....not anymore!! Didn't even think about the Brie until I was in Canada and a pregnant asked if it was pasteurized........awwwwww!

Comment by Linda Hunter on January 12, 2012 at 7:10am Thanks so much, Angie, for sharing your experience and the really helpful information.Wow, Saudi Arabia! And I've thought I'll probably never get on a plane again. I'll just change that limiting idea.
I've had a cough since a bit before Thanksgiving too. I think it's the effects of cedar. My doctors advised me to take some allergy meds. Perhaps it's helped a bit. I'm watching carefully for any signs of infection.
I had forgotten about the pasteurized food. Being pretty new to this experience means there's lots to learn, and it can't all happen through the clinic and doctors. What does 40# immunosuppression mean? I don't have any idea what my numbers would be. I'm on warfarin, so I get lab work done for an INR weekly, plus my prograf levels are checked. It's a challenge sometimes getting that information after it's sent to the clinic.
Thanks again!
Comment by Nulungs95 on January 11, 2012 at 8:34pm 
Comment by Linda Hunter on January 11, 2012 at 7:34pm I recently joined Transplant Cafe and look forward to learning from you and getting and receiving support. I had a bilateral lung transplant July 7. I'm doing well now after a few "bumps in the road."
Right now I'd like to hear about some of the practices that are important for avoiding illness during the cold/flu season. Where and when is it important to wear a mask? Does that change after having had the transplant for a certain length of time? How careful do I need to be?
Thanks!
Comment by Nulungs95 on October 12, 2011 at 7:13pm 
Comment by Joanne on May 31, 2011 at 5:10am
Comment by Nulungs95 on May 30, 2011 at 5:21pm
Comment by Kathryn Flynn on May 30, 2011 at 12:22pm Hi all,
Sorry to be always absent from here. Full time work and then some takes me away plus this is no longer my preferred address. I celebrated 15 years post double lung March 25th. Too busy to have a party.
Comment by Nulungs95 on May 12, 2011 at 8:54pm
Comment by Sandy Metheany on May 3, 2011 at 4:46pm I am almost 8 years post double lung transplant and have been diagnosed with type 2 diabetes. I have cystic fibrosis which probably is a factor but also I read that prograf can cause diabetes.
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