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Comment by Nulungs95 on January 12, 2012 at 7:29am

Sorry I didn't specify, the 40# means 40 pounds...total lost this past year...when the kids moved out I ballooned to 240 pounds and I'm only 5'6"!

I take Claritin once daily, used to take Clarinex and my insurance stopped paying for it.

As for flying, my husband worked in Richland, WA all of 2010 and I made at least 6 trips from Texas to visit him..

I've been talking with my hospital about making it easier to view my tests results..my diabetic doctor has a system that once she views it and "releases" it, I can view it online (even on my iPhone) allowing me to keep track of tests and avoiding having repeat testing from other doctors.  I love it!

 

Yes, pasteurizing is very important.  I went to a Farmer's Market one time and tried a TASTE of raw goat cheese (duh) and ended up with Salmonella, don't even remember three days once I had symptoms. I don't boil my milk, so I wasn't thinking about milk. I was also told to not eat honey.  I don't eat it much, but being in Texas, it's fun to stop by the Farmer's market and taste different types of honey.....not anymore!! Didn't even think about the Brie until I was in Canada and a pregnant asked if it was pasteurized........awwwwww!

Comment by Linda Hunter on January 12, 2012 at 7:10am

Thanks so much, Angie, for sharing your experience and the really helpful information.Wow, Saudi Arabia! And I've thought I'll probably never get on a plane again.  I'll just change that limiting idea.

I've had a cough since a bit before Thanksgiving too. I think it's  the effects of cedar. My doctors advised me to take some allergy meds. Perhaps it's helped a bit. I'm watching carefully for any signs of infection.

I had forgotten about the pasteurized food.  Being pretty new to this experience means there's lots to learn, and it can't all happen through the clinic and doctors. What does 40# immunosuppression mean?  I don't have any idea what my numbers would be.  I'm on warfarin, so I get lab work done for an INR weekly, plus my prograf levels are checked. It's a challenge sometimes getting that information after it's sent to the clinic.

Thanks again!

Comment by Nulungs95 on January 11, 2012 at 8:34pm

Hi Linda,
I'm 16 yrs post double lung transplant for pulmonary Hypertension. When the weather bad or if I hear sommeone coughing, I put on a mask. Definitely when at the hospital (too many bugs there).
I recently travelled to Saudi Arabia during peak season and ended up with 3 nasty viruses. Have had a croupy cough since Thanksgiving. I also have acute rejection and have a follow up Bronch scheduled for Friday...so U always have to be careful but U had a transplant to LIVE life...the first year seems to be a crucial time for problems, although U can always have them...also I joined Weight Watchers and lost 25# and my medications needed to be adjusted to prevent too much immunosuppresion..it is now 40# and I have reduced my meds...something U have to keep. track of URself. The doctors can't read UR mind, I found that out the hard way...also make sure foods R pasteurized. I didn't know that some dairy products aren't...ie: Brie, fresh cheeses, etc.
Hope this helps...
Angie-Texas

Comment by Linda Hunter on January 11, 2012 at 7:34pm

I recently joined Transplant Cafe and look forward to learning from you and getting and receiving support. I had a bilateral lung transplant July 7. I'm doing well now after a few "bumps in the road."

Right now I'd like to hear about some of the practices that are important for avoiding illness during the cold/flu season. Where and when is it important to wear a mask? Does that change after having had the transplant for a certain length of time? How careful do I need to be?

Thanks!

Comment by Nulungs95 on October 12, 2011 at 7:13pm

Anybody out there???

Comment by Joanne on May 31, 2011 at 5:10am

15 years?!  Very impressive Kathryn - you're my idol!  Keep up the good work!

Comment by Nulungs95 on May 30, 2011 at 5:21pm

Congratulations Kathryn!!!

Comment by Kathryn Flynn on May 30, 2011 at 12:22pm

Hi all,

Sorry to be always absent from here. Full time work and then some takes me away plus this is no longer my preferred address. I celebrated 15 years post double lung March 25th. Too busy to have a party.

Comment by Nulungs95 on May 12, 2011 at 8:54pm

Diabetes can be one of the side effects..along with other transplant drugs that can affect your blood glucose levels..I started Prograf in 1998 and have had diabetes since....

Comment by Sandy Metheany on May 3, 2011 at 4:46pm

I am almost 8 years post double lung transplant and have been diagnosed with type 2 diabetes.  I have cystic fibrosis which probably is a factor but also I read that prograf can cause diabetes.

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