Lung Transplants

Comment

Comment by Cathy (CJ) on February 5, 2010 at 3:24pm

Hi Paul.... This is CJ received my first Double Lung Transplant in 2004, rejected in 2006 was relisted and received a single left lung 14 months ago.... So far, so good... I feel truly blessed!! Praying you get your transplant soon and that it will last longer than the first!! Don't ever give up HOPE Paul! :) God Bless our Donors and thier Families.

Comment by Paul Brooks on February 4, 2010 at 6:55am

Folks I just learded I have been relisted for a second transplant. I'll get a right one this time. Pray it will last 13 plus years like the first one has.

Comment by Marie-Agnes Cederborg on October 13, 2009 at 6:53am

The new World Kidney Day Website is there!
Please visit www.worldkidneyday.org and sign up now!

Comment by Sara Pietrzak on September 25, 2009 at 5:34am

Hi there! My name is Sara Pietrzak. I had a double lung txp. 5 years ago. I've done amazingly well. One bout with cmv, rsv, and an irregular heart beat, that is hopefully fixed! I'm not sure if it is because of my two wonderful little boys or in spite of them (little germ carriers!)! No rejection so far, but I got tired of waiting for the shoe to drop and I live my life to the fullest (within the parameters set by Johns Hopkins, of course!)

Comment by Marie-Agnes Cederborg on September 1, 2009 at 8:45am

Too many people ignore the close inter-relation between kidney diseases and diabetes or hypertension. Worldwide, 246 million people suffer from diabetes and the figure is expected to reach 380 million by 2025. Diabetic nephropathy affects a third of people suffering from diabetes. Sadly, less than half people diagnosed with diabetes undergo a screening test.
Next Word Kidney Day will be held on Thursday 11 March 2010 and will focus on Diabetes, the leading cause of kidney failure.

World Kidney Day offers a crucial, visible opportunity to inform and educate health policy-makers, people who are at highest risk of CKD, and the general public that kidney disease is common, harmful and treatable.

Join our World Kidney Day 2010 group and come to exchange your experience and ideas that could be proposed to World Kidney Day organisers over the world.

The success of World Kidney Day across the world is only possible because of each of you!

Comment by CINDY CANDIA on July 13, 2009 at 10:44pm

HELLO, MY FATHER HAD A DOUBLE LUNG TRANSPLANT 3 YEARS AGO. WE ARE HAPPY TO HAVE IN WITH US AND SAD THAT ONE PERSON HAD TO DIE. THE EMOTIONS ARE SO MIXED UP. NOT SURE WHAT TO SAY TO THE DONOR FAMILY. I WISH I HAD THE WORDS FOR THEM. THEY ARE WONDERFUL PEOPLE.
CINDY

Comment by Kathryn Flynn on July 6, 2009 at 5:24pm

I am having a similar issue post-transplant. Have your docs tried using IVIG and plasmaphoresis? This is more drastic but if your panel reactive antibodies remain high they can't risk transplanting.I am so sorry you are having this issue. It is a tough one.

Comment by Melinda Kay Abernathey on July 5, 2009 at 7:17am

Hi, I have been on the Lung Transplant list almost 2 years now and it seems that I may be on it longer as they are having problems finding a donor as I have a very high count of antibodies which is stopping me from getting transplanted. My doctors are trying to remove these B cells but it seems that this did not react the way that it has on other people. I was just wondering if anyone else has had this issue?

Comment by Kathryn Flynn on June 4, 2009 at 1:05pm

Important article on generics vs established brands. I pay extra to keep neoral.

Comment by Evlyn Hossack on May 24, 2009 at 8:50pm

hi ppls, i'm from perth australia. i got a heart and double lung transplant in july last yr... n i'm heading to the world games in the gold coast this yr... can't wait to meet everyone that goes. eve

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