Comment

Comment by Stu L on June 19, 2012 at 7:59pm

Susan G prayers are with you and Gazz for a speedy transplant,. the hep will return in time but they will only treat if it starts to damage the new liver.  I was almost two years post transplant and viral load in the millions.  they started treatment only after a biopsy showed I was stage 2/3,  I responded to the traditional treatment and my Enzymes are in  normal range.. I am still on traditional but Columbia has been treating post transplant patients with the new treatments with great success. BTW I did not respond pre transplant so you can never tell. 

Get the transplant first it's enough to deal with.

Comment by Penny on June 19, 2012 at 4:36pm

That's great that he has been listed.  I hope he gets a transplant soon!

Comment by Connie Austin on June 19, 2012 at 9:04am

I had a liver transplant in Oct. '11 and have been told it will be about a year before they will treat me for Hep C (using the 3-drug treatment.)  FDA approved or not, it is definitely being used in post-transplant patients.  I've had a number of problems post transplant, including a leg ulcer that is being treated 3 x a week by Home Health nurses and has not yet healed.  So the other day, a vascular doctor stated the other day that it would be about a year before I can get treated for the hep C.  My impression is that they want you to be healthy, with good labs that are stable, before putting a patient on treatment.

Comment by Ramona on June 19, 2012 at 7:12am

Susan G - YAY YAY YAY!!!!!!!  Get some sleep!  :-)

Hugs!!!

Comment by Donna Russell on June 19, 2012 at 6:56am

Susan - excellent news!!! I also agree with Jan on taking it one thing at a time. My doc waited a near year after transplant before treating my hep c and only then because I had recovered so smoothly. A day at a time. Take time for yourself so you can stay strong for what is ahead. God bless,

Comment by bobbie c on June 19, 2012 at 5:19am

yay susan g, congrats sweetie. i agree with jan. one thing at a time. it will all work itself out. stay strong

Comment by Jan Ward on June 19, 2012 at 4:49am

Susan G:

You have totally lightened my load today with that news. Don't worry about the treatment right now. Post transplant has its own set of hurdles for the first 6 mons to a year. If he's anything like me the last thing he'll want to deal with is getting wiped out by new treatments after he's stable.

Believe me...he'll feel so much better he'll pray the new liver outlives him.

Penn has been using the triple in cases of really sick patients, but only treats PT patients if they're really sick.

My prayers are still with y'all.

Jan

Comment by Peter james goodman on June 19, 2012 at 4:27am

Susan G. we are all behind you and Gazz, now lets just get er'done!  Continuous prayers going out to you and all of our transplant family!   Caregivers need there rest also, please take the time to get rest!   

Comment by Susan G. on June 19, 2012 at 2:00am

I was asking the hepatologist about hep c treatment after transplant.Gazz has been treated 3 times. I'm concerned that his hep will damage his new liver when he gets it. She said that triple therapy has not been fda approved yet for post transplant patients. I know 2 people personally that were resistant to treatment but with invicek added,their viral load dropped to zero. It only makes sense that it could benefit post tp patientts.
Those of you who have SVR...that is fantastic! There are new meds coming to those who are resistant. Hugs and prayers to all. If this is incoherent, sorry...I'm sitting next to hubby in icu and its 4 something in the am. Yawn.

Comment by Susan G. on June 19, 2012 at 1:29am

Hi everyone. We received good news yesterday! UMMS has decided to list Gazz. He's really sick right now and in the MICU. He wants to go home to wait but he can't. :(. His labs are totally messed up and he is going to need dialysis at somepoint soon but hope sure beats the alternative. Hugs and prayers to all of my online friends here. This is still my favorite forum on the net.

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