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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?

Members: 337
Latest Activity: Jun 22

Discussion Forum

23 year liver transplant rejection

Started by Terri Lynne. Last reply by Terri Lynne Jun 22. 12 Replies

Liver cancer and symptoms

Started by Yonas Mebrahtu. Last reply by Yonas Mebrahtu Jun 15. 2 Replies

Liver Transplant News

First ever split liver transplant saves 2 adults - TheHealthSite


indiatvnews.com (press release) (blog)

First ever split liver transplant saves 2 adults
TheHealthSite
A medical breakthrough took place at Indraprastha Apollo Hospitals as they successfully completed a cadaver split liver transplant wherein both the parts of the liver were given to two adult recipients. This is the first split liver transplant in two ...
First split liver transplant in city saves two lives
Mumbai Hospital Performs 100 Liver Transplants in Two Years
Indraprastha Apollo Hospitals successfully performs first split liver ...

First liver transplant in govt. hospital in State - The Hindu


Deccan Herald

First liver transplant in govt. hospital in State
The Hindu
The cadaveric liver transplant was conducted on 38-year-old B. Somashekar from Shivanahalli in Rajajinagar by airlifting the organ from Mangaluru. A green corridor was created to transport the organ from the Kempegowda International Airport to PMSSY ...
Recipient of first liver transplant at government hospital dies
First liver transplant in PMSSY Hospital | Bangalore NYOOOZ

Boy, 2, Recovering After Undergoing Liver Transplant - CBS Local


CBS Local

Boy, 2, Recovering After Undergoing Liver Transplant
CBS Local
“Lucas received his liver transplant last night in a multi-team surgery and is doing very well,” said Dr. George Mazariegos, the chief of Pediatric Transplantation at Children's Hospital. “It's been an amazing experience to witness the teamwork of ...
3-Year-Old Nebraska Girl's Death Helps Two Boys From Pennsylvania Live
Little Lucas recovery update
In death, Nebraska girl helps Pennsylvania boys live on

Ailing Holden girl awaits kidney-liver transplant - Worcester Telegram


Worcester Telegram

Ailing Holden girl awaits kidney-liver transplant
Worcester Telegram
But if only living-donor organs are available, receiving a liver transplant first would allow Teodora to reduce the number of days per week she'd be on dialysis until she could get a new kidney. Family members have been tested, but so far haven't been ...

Boy, 2, Desperately In Need Of Liver Transplant Receives First Offer - CBS Local


CBS Local

Boy, 2, Desperately In Need Of Liver Transplant Receives First Offer
CBS Local
PITTSBURGH (KDKA) – There may be some good news for a little boy in desperate need of a liver transplant. After 18 long months on a waiting list, Lucas Goeller, 2, has received his first offer for a liver transplant. According to a press release, “So ...
2-year-old with end-stage liver disease recovering after transplant surgery
Young Nebraska girl's organs give 2 Pittsburgh-area boys a chance to live

Comment Wall

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Comment by Tom Russell on November 13, 2011 at 8:43am

To all my friends on the Transplant Café. Today is my two
year Liverversary. I want to take a moment to thank all my friends here that have supported me, uplifted me, and friended me over the time I’ve been a part of this amazing group of people. In my times of trouble and dishearteness, you have been my strength, my lifelines. Some of you I have grown very close to while others of you have been occasional but special acquaintances. I would  like to thank Lil. She befriended me from the outset of my time here and has been my cheerleader and confidant. She wouldn’t let me give up. She would crash my most extreme pity parties and calm me in my distress. Thanks Lil. To those of you that I keep in regular contact, thank you for being my friends and listening and sharing. It has meant so much to have your friendship. I cherish the role every one of you has played in my return to life. Thank you all. This is a wonderful site that has brought me to a place I am now where I feel a part of something. Not alone against the world as I felt after my transplant.

Again, Thanks you all. Tom

Comment by Jennifer Morgan on November 12, 2011 at 4:10pm

wow, it sounds like most of you are on lower doses than me, I wonder why that is??

 

Comment by Penny on November 12, 2011 at 3:03pm

I am almost 4 years post transplant (Jan. 6) and I take 1mg Prograf 2x day.  Yearly checkups started last year.  I never had any problems since my transplant.  I did treatment for Hep C after transplant and am undetectable since.  I am very blessed to be alive.

 

Congratulations on fifteen years!  Wow!  What an inspiration you are. 

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:22am

Dear Lee,

Congratulations on nearing fifteen years post transplant! It is stories like yours that give me hope, and I appreciate you sharing. I am so glad you have been able to meet and enjoy being with your grandchildren. I hope you may have much, much more time to spend with them and may find new reasons to smile and hope each and every day. Many blessings are wished for you and your donor family.

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:17am

I just had my sixth transplant anniversary last month, and the only things I am taking for the transplant are Prograf 2mg twice daily and Bactrim three times a week as a bacterial infection preventative. I am on some other medications for other reasons, but I have felt blessed that I have been on such a relatively low dose of Prograf for so long (most of the six years, except perhaps the first year having the most changes in dosage) with only a few very minor episodes of rejection. Best of wishes to all for peace and good health.

Comment by Lee Rivera on November 11, 2011 at 9:54pm

I am now almost 15 years post transplant.  My transplant meds are 1 mg prograf twice a day.  Have had no problems since transplant.  Down to one check up a year.  Due for check up in March, had transplant Feb 15, 1997.  I now have 2 grand kids I didn't have before xplant.  One is almost 8 and the other 3.  Thanks to the Reeves family of Round Rock TX for the gift of life.

 

Comment by Jennifer Morgan on November 11, 2011 at 9:26pm

not sure what the metoprol and imetrx is but I hope to someday be down to the bare minimum dosage on prograf/tacro...when I get to 2 mg I will think of you!  thanks for sharing!

Comment by Gordon Dowis on November 11, 2011 at 9:03pm

I too have been blessed for 5 years, and for meds I am taking at this time , 2mg prograff 2X day, 100mg metoprol 2X day, imetrx 1 50mg as needed for migrans. A huge drop over the years, YEA

 

Comment by Jennifer Morgan on November 11, 2011 at 8:49pm

I am going to be 5 years post liver transplant in march, I had a baby 1 year ago, and I am back down to 3 mg tacro 2x day...I have had no complications and thought this was a decent amount of meds...just curious where everybody else was at with the dosage.

 

Comment by Stu L on November 11, 2011 at 7:36pm

For trplt meds I am only on prograf was 1mg 2x just raised to 3x daily.  for Hep I take 180u  weekly, and 3 ribasphere 200mg daily.

In general they also have ne take a vitamin , magnesium and calcium and prilosec. not sure why prilosec.  I was taking a diuretyic but doesn't seem to matter anymore.  Does this seem to be the norm? 

Are the trials for post transplant.? 

 

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Latest Activity

David Goodman commented on TransplantCafe.com's group Team Prograf
"Thank you for answering my question. One transplant is enough for me. I'm 65."
17 hours ago
Jan Ward commented on TransplantCafe.com's group Team Prograf
"Hey Guys: I've been on 3 mg day for about 3 years and my Doc said he plans to drop me to 2. I'm certainly not abject to stopping completely but I'm not ready to take that chance yet. To react to David's question: When I got my…"
17 hours ago
Carlos commented on TransplantCafe.com's group Team Prograf
"Dave, since you have pursued the question, at 71, I have had my chance at 13 years of added life, I have had my chance to see children grow, to participate in the great adventure of life, and in any situation I would not ask for another organ, I…"
17 hours ago
William R, Armstrong commented on TransplantCafe.com's group Team Prograf
"from the shound of things here my .5mg of prograf every nine days is a good thing. i have never shown any signs of rejection in the 32 months post transplant. i would never stop or change taking my prograf different from what my doctors percribed.…"
18 hours ago
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, If you were to suffer rejection and your new liver failed, do you think you should be entitled to another transplant?"
18 hours ago
Carlos commented on TransplantCafe.com's group Team Prograf
"To begin with, I don't owe my donor anything but a profouund thank you. The act of compassion they made by donating their daughter's liver to me was an act of moral compassion. To an extent it assuaged the pain of their daughter's…"
19 hours ago
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, If you were to suffer rejection and your new liver failed, do you think you should be entitled to another transplant? You said; "Fair enough, but I am entitled to my own agency." That's true, but don't you owe it to the…"
yesterday
William R, Armstrong posted a status
"and i take my meds as my Doctors tell m too."
Friday
William R, Armstrong posted a status
"I recieved my Liver Transplant at Tulane Medical Center In New Orleans La. on Nov. 3 2012 I have never had any type of complication"
Friday
Carlos commented on TransplantCafe.com's group Team Prograf
"I’ll try to make this shorter as I accidentally deleted the comment I just made in response to Dave Goodman. Weaning is not for everyone, it may be a fatal mistake to try it.  You have been selected to receive a graft after a long and…"
Friday
Hyung Paik is now a member of TransplantCafe.com - The Gift of eLife!
Friday
Wes Cook commented on TransplantCafe.com's group Team Prograf
"I'm taking 2 x 2,  I want to ween lower but and have been temped but must have my Doctor on board with it. I will bug him again in a couple months. It has only been 4 months since it was lowered"
Friday
David Goodman commented on TransplantCafe.com's group Team Prograf
"Carlos, Haven't your docs noticed that you're not taking prograf? What do they say about it? Same question for Wes."
Friday
Wes Cook commented on TransplantCafe.com's group Team Prograf
"Hi, I'm two years out for Liver TP. Went into rejection after 3rd week. They had me on 4gm of Tacrolimus X 3. for a year, then 5mg X 2, and down to 2 x 2. My Tac level was 3.7 last test. Up from 3. They want you between 8 and 18. I was also on…"
Friday
Carlos commented on TransplantCafe.com's group Team Prograf
"0.5 mg Prograf 3x/wk sounds weird.  If you are really taking that dosage you may not need Prograf. My transplant date was May 2003.  I have never had a rejection episode and after six years on Prograf alone I decided to taper off Prograf…"
Friday
David Goodman commented on TransplantCafe.com's group Team Prograf
"Where did you receive your transplant?"
Friday

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