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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?

Members: 330
Latest Activity: Aug 28

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Liver Transplant News

Former Cream Bassist Jack Bruce Dies of Liver Disease - TIME


Fox News

Former Cream Bassist Jack Bruce Dies of Liver Disease
TIME
Bruce struggled with drug addiction and financial troubles in the 1970s after Cream's breakup, but continued to play as a session musician and as part of small groups. In 2003 he underwent a liver transplant after being diagnosed with cancer, and ...
Jack Bruce, Legendary Cream Bassist, Dies
Cream vocalist, bassist Jack Bruce dies at 71
Jack Bruce, bassist with 1960s British rock group Cream, dies at 71

Youngest liver transplant surviver Lottie Bryon-Edmonds inspires world through ... - Torquay Herald Express


Torquay Herald Express

Youngest liver transplant surviver Lottie Bryon-Edmonds inspires world through ...
Torquay Herald Express
A TORQUAY toddler, who was the youngest baby in the world to survive a liver transplant, is inspiring others around the globe recounting her journey on twitter. Lottie Bryon-Edmonds, who won a Young Hero award at the Herald Express Pride of South Devon ...

Incredible Twitter journey of world's youngest liver transplant survivor at ... - Mirror.co.uk


Mirror.co.uk

Incredible Twitter journey of world's youngest liver transplant survivor at ...
Mirror.co.uk
At barely five weeks old, brave Lottie Bryon-Edmond became the youngest baby in the world to survive a liver transplant. Now an incredible three-year-old girl, she has been 'tweeting' her entire remarkable journey since November 2011 - just a few weeks ...

Church rallies to support member for liver transplant - Elkin Jonesville Tribune


Church rallies to support member for liver transplant
Elkin Jonesville Tribune
ROARING RIVER — A 4:30 p.m. benefit supper and auction will be held to raise money for a liver transplant for Phyllis Wood at Roaring River Elementary Church on Saturday. Wood said she is fighting cirrhosis of liver from medications and fatty liver ...

Coach recovers from liver transplant, community comes together - WGAL Lancaster


Coach recovers from liver transplant, community comes together
WGAL Lancaster
... ALarge Text. Coach recovers from liver transplant, community comes together. Show Transcript Hide Transcript. People across the Susquehanna Valley are coming together to support a local wrestling coach who's recovering from a liver transplant. Related.

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Comment by Tom Russell on November 13, 2011 at 8:43am

To all my friends on the Transplant Café. Today is my two
year Liverversary. I want to take a moment to thank all my friends here that have supported me, uplifted me, and friended me over the time I’ve been a part of this amazing group of people. In my times of trouble and dishearteness, you have been my strength, my lifelines. Some of you I have grown very close to while others of you have been occasional but special acquaintances. I would  like to thank Lil. She befriended me from the outset of my time here and has been my cheerleader and confidant. She wouldn’t let me give up. She would crash my most extreme pity parties and calm me in my distress. Thanks Lil. To those of you that I keep in regular contact, thank you for being my friends and listening and sharing. It has meant so much to have your friendship. I cherish the role every one of you has played in my return to life. Thank you all. This is a wonderful site that has brought me to a place I am now where I feel a part of something. Not alone against the world as I felt after my transplant.

Again, Thanks you all. Tom

Comment by Jennifer Morgan on November 12, 2011 at 4:10pm

wow, it sounds like most of you are on lower doses than me, I wonder why that is??

 

Comment by Penny on November 12, 2011 at 3:03pm

I am almost 4 years post transplant (Jan. 6) and I take 1mg Prograf 2x day.  Yearly checkups started last year.  I never had any problems since my transplant.  I did treatment for Hep C after transplant and am undetectable since.  I am very blessed to be alive.

 

Congratulations on fifteen years!  Wow!  What an inspiration you are. 

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:22am

Dear Lee,

Congratulations on nearing fifteen years post transplant! It is stories like yours that give me hope, and I appreciate you sharing. I am so glad you have been able to meet and enjoy being with your grandchildren. I hope you may have much, much more time to spend with them and may find new reasons to smile and hope each and every day. Many blessings are wished for you and your donor family.

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:17am

I just had my sixth transplant anniversary last month, and the only things I am taking for the transplant are Prograf 2mg twice daily and Bactrim three times a week as a bacterial infection preventative. I am on some other medications for other reasons, but I have felt blessed that I have been on such a relatively low dose of Prograf for so long (most of the six years, except perhaps the first year having the most changes in dosage) with only a few very minor episodes of rejection. Best of wishes to all for peace and good health.

Comment by Lee Rivera on November 11, 2011 at 9:54pm

I am now almost 15 years post transplant.  My transplant meds are 1 mg prograf twice a day.  Have had no problems since transplant.  Down to one check up a year.  Due for check up in March, had transplant Feb 15, 1997.  I now have 2 grand kids I didn't have before xplant.  One is almost 8 and the other 3.  Thanks to the Reeves family of Round Rock TX for the gift of life.

 

Comment by Jennifer Morgan on November 11, 2011 at 9:26pm

not sure what the metoprol and imetrx is but I hope to someday be down to the bare minimum dosage on prograf/tacro...when I get to 2 mg I will think of you!  thanks for sharing!

Comment by Gordon Dowis on November 11, 2011 at 9:03pm

I too have been blessed for 5 years, and for meds I am taking at this time , 2mg prograff 2X day, 100mg metoprol 2X day, imetrx 1 50mg as needed for migrans. A huge drop over the years, YEA

 

Comment by Jennifer Morgan on November 11, 2011 at 8:49pm

I am going to be 5 years post liver transplant in march, I had a baby 1 year ago, and I am back down to 3 mg tacro 2x day...I have had no complications and thought this was a decent amount of meds...just curious where everybody else was at with the dosage.

 

Comment by Stu L on November 11, 2011 at 7:36pm

For trplt meds I am only on prograf was 1mg 2x just raised to 3x daily.  for Hep I take 180u  weekly, and 3 ribasphere 200mg daily.

In general they also have ne take a vitamin , magnesium and calcium and prilosec. not sure why prilosec.  I was taking a diuretyic but doesn't seem to matter anymore.  Does this seem to be the norm? 

Are the trials for post transplant.? 

 

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