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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?

Members: 327
Latest Activity: Apr 8

Liver Transplant News

CPMC Liver, Kidney Transplant Programs Earn Recognition from SRTR - PR Web (press release)


CPMC Liver, Kidney Transplant Programs Earn Recognition from SRTR
PR Web (press release)
Sutter Health affiliate California Pacific Medical Center (CPMC) has been identified as the nation's only hospital with both kidney and liver transplant programs that have higher-than-expected one- and three-year adult patient survivals that are ...
Branching Out to Offer Comprehensive Treatment for Liver and Pancreatic Disease

Daily Checkup: New approaches to treating liver problems in children - New York Daily News


New York Daily News

Daily Checkup: New approaches to treating liver problems in children
New York Daily News
“The liver is the factory that secretes bile, detoxifies medications and deals with almost all of the body's metabolism — of fat, carbohydrates and proteins," says Arnon. “Because there is no equivalent of dialysis that can replace liver function ...

Walter Trout Moved Up On Liver Transplant Waiting List - antiMUSIC.com


Walter Trout Moved Up On Liver Transplant Waiting List
antiMUSIC.com
(The Blues) Walter Trout has been moved to a hospital with a much shorter liver transplant waiting list, his wife Marie has confirmed. It means he's likely to receive the life-saving treatment sooner than he would have done if he'd remained a patient ...

NASH with liver transplantation related to early CVD mortality - Healio


NASH with liver transplantation related to early CVD mortality
Healio
LONDON — Patients who underwent perioperative liver transplantation and had nonalcoholic steatohepatitis were at increased risk for early cardiovascular disease-related mortality, according to research presented today at the International Liver Congress.

Missing liver transplant patient David Bird: $16000 raised, ground search ... - NJ.com


Missing liver transplant patient David Bird: $16000 raised, ground search ...
NJ.com
He's also a Boy Scout leader and, since getting a liver transplant in 2004, an advocate and fundraiser for the New Jersey Sharing Network. "David is a compassionate and gentle soul whose disappearance has rocked the very heart of his small community.

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Comment by joanie brandon on November 13, 2011 at 10:37am
Hello everyone, I am new to transplant cafe, I am going into seven years into my transplant,I'm on3mg a day of pro graft, 250 mg of cellcept. Experience three rejections. But I'm still here. Loving everyday. I'm gllad to part of a group who experience things that I've been going through or had no one to talk to. So, I say Happy Anniversary & Congratulation to all of us
Comment by Bobbiejo Winfrey on November 13, 2011 at 10:30am

Dear Tom,

Congratulations on your two year transplant anniversary! I hope you have a wonderful day full of reasons to smile. I hope many, many more celebrations await you.

I too am so thankful for the support and kindness from everyone here. It helps tremendously to know one is not alone. May all be abundantly blessed. 

Comment by Stu L on November 13, 2011 at 10:20am

It's encouraging to see the success many of you have had with the Hep treatment,. I am curious if  anyone had tried pre trnplt? with the lack of success I had?  I didn't respond at all before transplant.   

Comment by Tom Russell on November 13, 2011 at 8:43am

To all my friends on the Transplant Café. Today is my two
year Liverversary. I want to take a moment to thank all my friends here that have supported me, uplifted me, and friended me over the time I’ve been a part of this amazing group of people. In my times of trouble and dishearteness, you have been my strength, my lifelines. Some of you I have grown very close to while others of you have been occasional but special acquaintances. I would  like to thank Lil. She befriended me from the outset of my time here and has been my cheerleader and confidant. She wouldn’t let me give up. She would crash my most extreme pity parties and calm me in my distress. Thanks Lil. To those of you that I keep in regular contact, thank you for being my friends and listening and sharing. It has meant so much to have your friendship. I cherish the role every one of you has played in my return to life. Thank you all. This is a wonderful site that has brought me to a place I am now where I feel a part of something. Not alone against the world as I felt after my transplant.

Again, Thanks you all. Tom

Comment by Jennifer Morgan on November 12, 2011 at 4:10pm

wow, it sounds like most of you are on lower doses than me, I wonder why that is??

 

Comment by Penny on November 12, 2011 at 3:03pm

I am almost 4 years post transplant (Jan. 6) and I take 1mg Prograf 2x day.  Yearly checkups started last year.  I never had any problems since my transplant.  I did treatment for Hep C after transplant and am undetectable since.  I am very blessed to be alive.

 

Congratulations on fifteen years!  Wow!  What an inspiration you are. 

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:22am

Dear Lee,

Congratulations on nearing fifteen years post transplant! It is stories like yours that give me hope, and I appreciate you sharing. I am so glad you have been able to meet and enjoy being with your grandchildren. I hope you may have much, much more time to spend with them and may find new reasons to smile and hope each and every day. Many blessings are wished for you and your donor family.

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:17am

I just had my sixth transplant anniversary last month, and the only things I am taking for the transplant are Prograf 2mg twice daily and Bactrim three times a week as a bacterial infection preventative. I am on some other medications for other reasons, but I have felt blessed that I have been on such a relatively low dose of Prograf for so long (most of the six years, except perhaps the first year having the most changes in dosage) with only a few very minor episodes of rejection. Best of wishes to all for peace and good health.

Comment by Lee Rivera on November 11, 2011 at 9:54pm

I am now almost 15 years post transplant.  My transplant meds are 1 mg prograf twice a day.  Have had no problems since transplant.  Down to one check up a year.  Due for check up in March, had transplant Feb 15, 1997.  I now have 2 grand kids I didn't have before xplant.  One is almost 8 and the other 3.  Thanks to the Reeves family of Round Rock TX for the gift of life.

 

Comment by Jennifer Morgan on November 11, 2011 at 9:26pm

not sure what the metoprol and imetrx is but I hope to someday be down to the bare minimum dosage on prograf/tacro...when I get to 2 mg I will think of you!  thanks for sharing!

 

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Bobbiejo Winfrey commented on Gary Toulouse's blog post Today April 16th
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Today April 16th

Today at 0700, 4 years ago I received the gift of Life.  It would be mid day tomorrow that I would awake and learn that I was breathing on my own.  Inside my chest, two pure young lungs were becoming apart of me and my days ahead.  No longer hooked to a machine to keep me breathing I would soon be standing on my own.  Inside of me I could feel Tammy joining my life energy and I could feel her love.  To everyone have a great day and stay safe.  I still have much to think about.See More
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Robert Keith Surridge left a comment for Terry (Tariq)
"You will have to excuse me until I get use to the web site. I really don't have any side effects from the anti rejection drugs, so I guess I am pretty lucky."
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Terry (Tariq) left a comment for Robert Keith Surridge
"Hi Robert Welcome in café, nice to see you are doing excellent and enjoying life. Since 2009 how do you accept side effects of med, is their any issue with Prograf ; tecta. I am on single immune suppressant, prior to this was on…"
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"How darling! Thank you for sharing such a sweet picture. She must bring you much joy. I wish you both the best."
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"I had a liver transplant in 2009 I ended up in the hospital for a week and was diagnosed with a blood clot in my liver. They tried a procedure by putting in a shunt to get blood flow, that procedure failed and I needed a liver transplant in order to…"
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