Comment

Comment by Penny on November 12, 2011 at 3:03pm

I am almost 4 years post transplant (Jan. 6) and I take 1mg Prograf 2x day.  Yearly checkups started last year.  I never had any problems since my transplant.  I did treatment for Hep C after transplant and am undetectable since.  I am very blessed to be alive.

 

Congratulations on fifteen years!  Wow!  What an inspiration you are. 

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:22am

Dear Lee,

Congratulations on nearing fifteen years post transplant! It is stories like yours that give me hope, and I appreciate you sharing. I am so glad you have been able to meet and enjoy being with your grandchildren. I hope you may have much, much more time to spend with them and may find new reasons to smile and hope each and every day. Many blessings are wished for you and your donor family.

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:17am

I just had my sixth transplant anniversary last month, and the only things I am taking for the transplant are Prograf 2mg twice daily and Bactrim three times a week as a bacterial infection preventative. I am on some other medications for other reasons, but I have felt blessed that I have been on such a relatively low dose of Prograf for so long (most of the six years, except perhaps the first year having the most changes in dosage) with only a few very minor episodes of rejection. Best of wishes to all for peace and good health.

Comment by Lee Rivera on November 11, 2011 at 9:54pm

I am now almost 15 years post transplant.  My transplant meds are 1 mg prograf twice a day.  Have had no problems since transplant.  Down to one check up a year.  Due for check up in March, had transplant Feb 15, 1997.  I now have 2 grand kids I didn't have before xplant.  One is almost 8 and the other 3.  Thanks to the Reeves family of Round Rock TX for the gift of life.

 

Comment by Jennifer Morgan on November 11, 2011 at 9:26pm

not sure what the metoprol and imetrx is but I hope to someday be down to the bare minimum dosage on prograf/tacro...when I get to 2 mg I will think of you!  thanks for sharing!

Comment by Gordon Dowis on November 11, 2011 at 9:03pm

I too have been blessed for 5 years, and for meds I am taking at this time , 2mg prograff 2X day, 100mg metoprol 2X day, imetrx 1 50mg as needed for migrans. A huge drop over the years, YEA

 

Comment by Jennifer Morgan on November 11, 2011 at 8:49pm

I am going to be 5 years post liver transplant in march, I had a baby 1 year ago, and I am back down to 3 mg tacro 2x day...I have had no complications and thought this was a decent amount of meds...just curious where everybody else was at with the dosage.

 

Comment by Stu L on November 11, 2011 at 7:36pm

For trplt meds I am only on prograf was 1mg 2x just raised to 3x daily.  for Hep I take 180u  weekly, and 3 ribasphere 200mg daily.

In general they also have ne take a vitamin , magnesium and calcium and prilosec. not sure why prilosec.  I was taking a diuretyic but doesn't seem to matter anymore.  Does this seem to be the norm? 

Are the trials for post transplant.? 

Comment by A. Front on November 10, 2011 at 9:02am

Hi Stu,

 I'm curious. What is your genotype and what  transplant meds are you taking?

Currently there are clinical trials for the new all oral meds which look very promising.

They probably won't be FDA approved for 3-5 years.

Comment by Stu L on November 9, 2011 at 6:54pm

It's encouraging to hear everyone's comments ,  I am 3 years post transplant,  and have been getting SOC since June 2010, I went Negative in December of 10.  stayed on treatment until may of this year when I had to come off due to ITP after being off for 2 weeks the virus returned.  I restarted Treatment in June and am > 43000 again .  My doc's believe in 6 month treatment after going undetectable.  I hope it stays away this time.  I am fortunate as I never feel any side effects from treatment although I do need neupegen occasionally for a low WBC.  I don't mind staying on but wonder how long.  BTW my liver functions are normal during treatment.   

• ‹ Previous
• 1
• …
• 27
• 28
• 29
• 30
• 31
• …
• 83
• Next ›
• Page