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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?

Members: 333
Latest Activity: Feb 18

Discussion Forum

Six Month Anniversary

Started by Charles Pruitt. Last reply by Carlos Feb 18. 1 Reply

Life expectancy after a liver transplant?

Started by Velina. Last reply by cp nair Aug 28, 2014. 18 Replies

What if... ?

Started by Velina. Last reply by Matthew J Litkie May 6, 2014. 16 Replies

Liver Transplant News

Mexican man in need of heart and liver transplant applies for US visa for ... - Fox News Latino


NEWS.com.au

Mexican man in need of heart and liver transplant applies for US visa for ...
Fox News Latino
MEXICO CITY (AP) – A young Mexican man who is urgently trying to travel to the Mayo Clinic for a double-organ transplant has filed a third application for entry into the United States after twice being denied a visa. Jose Chua, 20, who suffers from a ...
Visa blunder: 'My world has fallen down'
Young Mexican man twice denied visa to get lifesaving transplant at Mayo Clinic

US denies visa for young Mexican needing heart, liver transplant - CBS News


CBS News

US denies visa for young Mexican needing heart, liver transplant
CBS News
HERMOSILLO, Mexico -- A young Mexican who urgently needs a heart and liver transplant has twice been denied a U.S. visa to go to the Mayo Clinic for treatment, he and his family said Wednesday. Jose Chua Lopez, 20, was born with a heart defect and ...
Poll: Visa for Heart and Liver Transplant
U.S. denies Mexican, 20, visa for transplant at Mayo Clinic

Olysio-based therapy shows promise in recurrent HCV after liver transplant - Healio


Olysio-based therapy shows promise in recurrent HCV after liver transplant
Healio
“We prospectively investigated the efficacy and safety of simeprevir in combination with pegylated interferon and ribavirin in five patients undergoing living donor liver transplantation with recurrent hepatitis due to hepatitis C virus [infection ...

Week after playing in state title game, Colorado athlete now needs liver ... - USA TODAY High School Sports


USA TODAY High School Sports

Week after playing in state title game, Colorado athlete now needs liver ...
USA TODAY High School Sports
Winn was discharged from the hospital with a serious illness – something called Primary Schlerosings Cholangitis. To put it simply, Winn needs a liver transplant. And the only thing arguably worse than knowing he needs a new liver, is knowing he must ...

Faith, wife motivate man on liver-transplant waiting list - SunHerald.com


SunHerald.com

Faith, wife motivate man on liver-transplant waiting list
SunHerald.com
Once his liver disease morphs into cancer, which his doctor assures him will happen, he'll qualify for a life-saving transplant. Meanwhile, his faith and his love for his wife Angela, a veterinary technician and Valley Career and Technical Center ...

Comment Wall

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Comment by Tom Russell on November 13, 2011 at 8:43am

To all my friends on the Transplant Café. Today is my two
year Liverversary. I want to take a moment to thank all my friends here that have supported me, uplifted me, and friended me over the time I’ve been a part of this amazing group of people. In my times of trouble and dishearteness, you have been my strength, my lifelines. Some of you I have grown very close to while others of you have been occasional but special acquaintances. I would  like to thank Lil. She befriended me from the outset of my time here and has been my cheerleader and confidant. She wouldn’t let me give up. She would crash my most extreme pity parties and calm me in my distress. Thanks Lil. To those of you that I keep in regular contact, thank you for being my friends and listening and sharing. It has meant so much to have your friendship. I cherish the role every one of you has played in my return to life. Thank you all. This is a wonderful site that has brought me to a place I am now where I feel a part of something. Not alone against the world as I felt after my transplant.

Again, Thanks you all. Tom

Comment by Jennifer Morgan on November 12, 2011 at 4:10pm

wow, it sounds like most of you are on lower doses than me, I wonder why that is??

 

Comment by Penny on November 12, 2011 at 3:03pm

I am almost 4 years post transplant (Jan. 6) and I take 1mg Prograf 2x day.  Yearly checkups started last year.  I never had any problems since my transplant.  I did treatment for Hep C after transplant and am undetectable since.  I am very blessed to be alive.

 

Congratulations on fifteen years!  Wow!  What an inspiration you are. 

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:22am

Dear Lee,

Congratulations on nearing fifteen years post transplant! It is stories like yours that give me hope, and I appreciate you sharing. I am so glad you have been able to meet and enjoy being with your grandchildren. I hope you may have much, much more time to spend with them and may find new reasons to smile and hope each and every day. Many blessings are wished for you and your donor family.

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:17am

I just had my sixth transplant anniversary last month, and the only things I am taking for the transplant are Prograf 2mg twice daily and Bactrim three times a week as a bacterial infection preventative. I am on some other medications for other reasons, but I have felt blessed that I have been on such a relatively low dose of Prograf for so long (most of the six years, except perhaps the first year having the most changes in dosage) with only a few very minor episodes of rejection. Best of wishes to all for peace and good health.

Comment by Lee Rivera on November 11, 2011 at 9:54pm

I am now almost 15 years post transplant.  My transplant meds are 1 mg prograf twice a day.  Have had no problems since transplant.  Down to one check up a year.  Due for check up in March, had transplant Feb 15, 1997.  I now have 2 grand kids I didn't have before xplant.  One is almost 8 and the other 3.  Thanks to the Reeves family of Round Rock TX for the gift of life.

 

Comment by Jennifer Morgan on November 11, 2011 at 9:26pm

not sure what the metoprol and imetrx is but I hope to someday be down to the bare minimum dosage on prograf/tacro...when I get to 2 mg I will think of you!  thanks for sharing!

Comment by Gordon Dowis on November 11, 2011 at 9:03pm

I too have been blessed for 5 years, and for meds I am taking at this time , 2mg prograff 2X day, 100mg metoprol 2X day, imetrx 1 50mg as needed for migrans. A huge drop over the years, YEA

 

Comment by Jennifer Morgan on November 11, 2011 at 8:49pm

I am going to be 5 years post liver transplant in march, I had a baby 1 year ago, and I am back down to 3 mg tacro 2x day...I have had no complications and thought this was a decent amount of meds...just curious where everybody else was at with the dosage.

 

Comment by Stu L on November 11, 2011 at 7:36pm

For trplt meds I am only on prograf was 1mg 2x just raised to 3x daily.  for Hep I take 180u  weekly, and 3 ribasphere 200mg daily.

In general they also have ne take a vitamin , magnesium and calcium and prilosec. not sure why prilosec.  I was taking a diuretyic but doesn't seem to matter anymore.  Does this seem to be the norm? 

Are the trials for post transplant.? 

 

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Clare mcgee commented on Clare mcgee's blog post Prograf hair thinning.
"Hi Vikie, Only just found your comment. not been on for a while too! Glad you got sorted. me well that is another story, I got desperate from the ongoing painful scalp & continued hairloss with no let up for 2+ solid years! I tried to go over…"
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Clare mcgee posted a blog post

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels " Lol.. Oh boy that would be a refreshi…

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels "Lol.. Oh boy that would be a refreshing change!!See More
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Carol Jean Posner posted a blog post

40 years!

I just celebrated my 40th Anniversary, post transplant last Sunday! These days it's more common for a live-related donor but still pretty darn good for a cadaveric transplant, especially considering when I got the transplant I was told it would last about 8 years, 15 at best!! Thanking God for the era I was born in and His grace and mercy on me. My mother was a WWII nurse and people with kidney failure just died back then. I am feeling great, I'm doing my bookkeeping work and working with the homeless and needy in the church, Bollywood Dancing and everything else I love. The performance season will start for me next month- so excited!! Tonight I'm going to a special dinner out with my husband to celebrate my 40th. Still with every year that passes, I wonder about the donor and how I could find out who he or she was.... See More
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