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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?

Members: 334
Latest Activity: Mar 28

Discussion Forum

Six Month Anniversary

Started by Charles Pruitt. Last reply by Carlos Feb 18. 1 Reply

Life expectancy after a liver transplant?

Started by Velina. Last reply by cp nair Aug 28, 2014. 18 Replies

What if... ?

Started by Velina. Last reply by Matthew J Litkie May 6, 2014. 16 Replies

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Comment by Tom Russell on November 13, 2011 at 8:43am

To all my friends on the Transplant Café. Today is my two
year Liverversary. I want to take a moment to thank all my friends here that have supported me, uplifted me, and friended me over the time I’ve been a part of this amazing group of people. In my times of trouble and dishearteness, you have been my strength, my lifelines. Some of you I have grown very close to while others of you have been occasional but special acquaintances. I would  like to thank Lil. She befriended me from the outset of my time here and has been my cheerleader and confidant. She wouldn’t let me give up. She would crash my most extreme pity parties and calm me in my distress. Thanks Lil. To those of you that I keep in regular contact, thank you for being my friends and listening and sharing. It has meant so much to have your friendship. I cherish the role every one of you has played in my return to life. Thank you all. This is a wonderful site that has brought me to a place I am now where I feel a part of something. Not alone against the world as I felt after my transplant.

Again, Thanks you all. Tom

Comment by Jennifer Morgan on November 12, 2011 at 4:10pm

wow, it sounds like most of you are on lower doses than me, I wonder why that is??

 

Comment by Penny on November 12, 2011 at 3:03pm

I am almost 4 years post transplant (Jan. 6) and I take 1mg Prograf 2x day.  Yearly checkups started last year.  I never had any problems since my transplant.  I did treatment for Hep C after transplant and am undetectable since.  I am very blessed to be alive.

 

Congratulations on fifteen years!  Wow!  What an inspiration you are. 

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:22am

Dear Lee,

Congratulations on nearing fifteen years post transplant! It is stories like yours that give me hope, and I appreciate you sharing. I am so glad you have been able to meet and enjoy being with your grandchildren. I hope you may have much, much more time to spend with them and may find new reasons to smile and hope each and every day. Many blessings are wished for you and your donor family.

Comment by Bobbiejo Winfrey on November 12, 2011 at 6:17am

I just had my sixth transplant anniversary last month, and the only things I am taking for the transplant are Prograf 2mg twice daily and Bactrim three times a week as a bacterial infection preventative. I am on some other medications for other reasons, but I have felt blessed that I have been on such a relatively low dose of Prograf for so long (most of the six years, except perhaps the first year having the most changes in dosage) with only a few very minor episodes of rejection. Best of wishes to all for peace and good health.

Comment by Lee Rivera on November 11, 2011 at 9:54pm

I am now almost 15 years post transplant.  My transplant meds are 1 mg prograf twice a day.  Have had no problems since transplant.  Down to one check up a year.  Due for check up in March, had transplant Feb 15, 1997.  I now have 2 grand kids I didn't have before xplant.  One is almost 8 and the other 3.  Thanks to the Reeves family of Round Rock TX for the gift of life.

 

Comment by Jennifer Morgan on November 11, 2011 at 9:26pm

not sure what the metoprol and imetrx is but I hope to someday be down to the bare minimum dosage on prograf/tacro...when I get to 2 mg I will think of you!  thanks for sharing!

Comment by Gordon Dowis on November 11, 2011 at 9:03pm

I too have been blessed for 5 years, and for meds I am taking at this time , 2mg prograff 2X day, 100mg metoprol 2X day, imetrx 1 50mg as needed for migrans. A huge drop over the years, YEA

 

Comment by Jennifer Morgan on November 11, 2011 at 8:49pm

I am going to be 5 years post liver transplant in march, I had a baby 1 year ago, and I am back down to 3 mg tacro 2x day...I have had no complications and thought this was a decent amount of meds...just curious where everybody else was at with the dosage.

 

Comment by Stu L on November 11, 2011 at 7:36pm

For trplt meds I am only on prograf was 1mg 2x just raised to 3x daily.  for Hep I take 180u  weekly, and 3 ribasphere 200mg daily.

In general they also have ne take a vitamin , magnesium and calcium and prilosec. not sure why prilosec.  I was taking a diuretyic but doesn't seem to matter anymore.  Does this seem to be the norm? 

Are the trials for post transplant.? 

 

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Ralph N. Johnson shared a profile on Facebook
yesterday
Ralph N. Johnson left a comment for Dr Suresh Raghavaiah
"Dr.Suresh,Good morning.My is Ralph N Johnson. My gift of life came on 7-12-14 liver transplant at the Univ of Penn hospital Phila. In August I contracted(GVHD) from the liver transplant.August/September was spent fighting for my life.My Dr. told…"
yesterday
Ralph N. Johnson posted a blog post

graft vs host from a liver transplant

Hello, my name is Ralph N Johnson I just join this wonderful group of concern,loving,family and friends. My gift to life was on 7-12-14 liver transplant at Univ of Penn hospital Phila. In August I contacted (GVHD) from the liver transplant.August & September was spent fighting daily for my very life. Currently undetectable, My Dr. told me that I would be lucky to find as many people that it takes to play a hand of bridge that survived this disease. Can anyone point me in the direction to find the other three. Thank you.. See More
Thursday
Clare mcgee commented on Matthew J Litkie's blog post No More Myfortic (Cellciept) March 30 2015
"Mathew I may be slow on the uptake But do they know which one of your meds are the biggest culprit to your skin situation?? I truly hope they can help prevent further episodes. It is strange to think that the derms seem it just poss to stop our…"
Thursday
Ralph N. Johnson left a comment for Rosa Jones
"Hi,Rosa...my name Ralph N. Johnson 7-12-14 i received the gift of life liver transplant. In August I contracted(GVHD) from a liver transplant...my Dr. told me I would be lucky..to find as many people as it takes to play a hand of bridge..can you…"
Thursday
Ralph N. Johnson left a comment for Donna Cryer
"Donna, hello..my name is Ralph N Johnson 7-12-14 was my gift of  life. Liver transplant. I contracted (GVHD) graft vs host decease from a liver transplant. I was told by my Doctor..I would be lucky if I find as many people that it takes to play…"
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David Goodman commented on Lili Feldman's group The Funny Bone
"An attractive lady and an old man are sitting next to eachother on a bus. The following conversation takes place....   Lady: "Can you help me get something off my breastsplease?"   Old man: "Yeah sure, it would be my…"
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Ralph N. Johnson left a comment for Kim Burdakin
"Morning, Kim..How r u ? My name is Ralph N. Johnson..briefly..on 7-12-14 liver transplan. August, Semptember contracted graft vs host from the transplant. I was told I would be lucky to find as many people that it takes to play a hand of bridge that…"
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Graft vs Host From Liver Transplant

Hello, can anyone point me the direction, involving graft vs host after a liver transplant. Does anyone know of or heard of an individual that survived other than myself.Thank you.See More
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Ralph N. Johnson left a comment for Ralph N. Johnson
"Hello, I'm thankful to join the family. Great support resource; along with concern,caring members and family. I survived graft vs host(GVHD) from a liver transplant. My Doctors at Univ. Of Penn Phila..stated to me that..I may be lucky if I find…"
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