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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?

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Liver Transplant News

What you need to know about liver transplantation - Times of India


Times of India

What you need to know about liver transplantation
Times of India
Liver disease is the most common cause of death after heart disease, stroke, chest infections and cancer. Liver transplant involves replacement of patient's diseased liver by a new liver which is derived either from a brain dead but heart beating donor ...

Mumbai doctors bust myth, say liver grows back in 3 weeks - Times of India


Times of India

Mumbai doctors bust myth, say liver grows back in 3 weeks
Times of India
MUMBAI: The marvel of liver is not just its capacity for regeneration but also the swift pace at which it regenerates. A study by a Mumbai hospital has revealed that a transplanted liver in a recipient, and the remnant liver in a donor, grows back to ...
Liver Takes only 3 Weeks to Grow After Transplant, say Mumbai Doctors

No greater love: a Perry County mother's liver donation saves her baby ... - The Patriot-News


No greater love: a Perry County mother's liver donation saves her baby ...
The Patriot-News
Penn State Milton S. Hershey Medical Center has offered kidney transplants since 1982. In recent years, the center has expanded kidney, pancreas, liver and heart transplantation. PinnacleHealth does not do liver transplantation. Launched in 2000, the ...

Transplant programs on both coasts long for Midwestern livers - Kansas City Star


Kansas City Star

Transplant programs on both coasts long for Midwestern livers
Kansas City Star
When Gil Alicea was diagnosed with liver cancer and told he needed an organ transplant, doctors gave him some blunt advice: “Get ... out of New York.” Alicea needed a liver fast. But the wait for an organ can be excruciatingly long on the East Coast.

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Comment by A. Front on March 18, 2010 at 4:18pm
I spent most my life believing I was healthy.
It wasn't until in 2005 when my belly swelled up from ascites that I was diagnosed with hepatitis C and decompensated cirrhosis. Up until then I had few symptoms and what ones I had came on very slowly.

I treated for Hep C, relapsed and my condition worsened.

Without health insurance I thought I had no option for a transplant in the U.S. Therefore last April I had a live liver transplant in Taiwan with my daughter as my donor.

When I went into surgery I had no thoughts of anything. There was no fear.
( I'd already dealt internally with the possibility of dying months earlier. I didn't think my time had come:)

The aftercare was difficult because of cultural and language problems but the surgery was great.
My operation was complicated due to a completely occluded ( blocked) portal vein. It had to be reconstructed and I had a first of its kind successful surgery.

The only problem I've had since is from my bile duct. I've had 2 ERCP's and will have another next week to remove the stent.
Currently I take one mg prograf, twice daily.

My energy has returned and in general I feel great.
Its something I never in a million years would have thought could have happened to me.
Comment by Brad shwidock on March 18, 2010 at 3:56pm
I had PSC for 20 years. The first 16 were relatively uneventful. When things started going south they went fast. My MELD went as high as 32 with a bilirubin up to 28. The last few months before the transplant were awful but just like you said, when I woke up, still filled with tubes and IVs, my first thought was how great I felt. Its so weird and its something only someone who has been there can understand.
Comment by Beth Kasulaitis on March 18, 2010 at 12:15pm
Brad, My liver disease was a result of surgery I had when I was 16 years old. I had intestinal surgery at Shands Teaching Hospital in Gainesville, FL. They had said that kidney disease/complications were prevelant with this type of surgery and there was a possibility of liver complications. I was 50 when I was diagnosed, it took 34 years, however, I had been telling my primary care doc I was sick and he didn't believe me, for over 2 years. Before the transplant I did go into kidney failure, but did not get a liver/kidney, the docs at Emory felt like my kidney function would return/improve after transplant, and it did. It's just that after 1 year the prograff had taken it's toll. That's why the rapamune. Kidneys are improving and the liver seems to like the change as well. How about your experience? was yours PSC?
Comment by Brad shwidock on March 17, 2010 at 7:34pm
Beth,
Did you have PSC or other auto immune liver disease? The description of your pre and post transplant experience sounds familiar.
Comment by Beth Kasulaitis on March 17, 2010 at 6:15pm
I am a year and a half post transplant and have had no rejection issues, I did have a bout of shingles and from that was taken off everything but prograff. Just recently I have switched over to rapamune because my kidneys had taken all the prograff they could handle. So now, I'm 5mg rapamune once a day .. that's the only txp med I take now. I feel somewhat liberated!! I am now the coordinator of the liver mentor group at Emory University Hospital in Atlanta. It has been so rewarding for me. I knew in the beginning I wanted to do something to give back. When I woke up from surgery, even with all the tubes and machines I knew I was better. My MELD was 38 the day of transplant. Getting involved as a mentor has been part of the way I try to honor my donor.
Comment by sylvia edwards on March 17, 2010 at 12:37pm
my good friend christy rec'd her 3rd liver transplant last week and is doing nicely....she has two girls 12 and 9, and a great hubby and host of friends...im glad to report she is doing well at Duke Univ Med Cntr....she is young, 30 ish....
Comment by Lee Rivera on March 17, 2010 at 11:04am
13 years post transplant. On 2 mg Prograf twice a day. Have not had any problem once I left the xplant center at University Hospital, San Antonio, TX. AM 68 years. Have lived to see my grandkids! First had problem in 1993 with a major bleed. started throwing up blood when I came home from work. If anyone wants to read more of my story just ask. Just don't want to bore anyone.
Comment by Bobbiejo Winfrey on February 26, 2010 at 6:40am
Congratulations Burnie. Wow, 15 years. I am only a little more than four years beyond my transplant. I agree with Bonnie. Hearing from people like you who have done so well is certainly encouraging. May you continue to do well, and may life bring you many new blessings.
Comment by bobbie c on February 26, 2010 at 3:26am
congrats burnie. so nice to hear stories like that. makes me miss the bay area.. you give newbies hope
Comment by Burnie Schultz on February 26, 2010 at 1:22am
15 years since Liver TX [25 Feb 1995] at UCSF Medical Center CA. Happy to report no problems since i left the TX center in May 1995. Have not been back since. On 3mg of FK506/Prograf, 5mg Prednisone. Will be switching to the generic TACROLIMUS in March. Will be at 2010 Transplant Games in Madison WI this year. On team NORTHWEST [AK OR WA]. Live in Alaska........Burnie
 

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Bobbiejo Winfrey commented on Lawrence R. Decoste's group Nutrition & Supplement Drinks
"Dear Bornali, I think that this can vary according to each individual's needs. I got a new liver along with other organs in my transplant. I am currently taking supplements of calcium with vitamin D to help my bones which are somewhat weak…"
15 minutes ago
Peter james goodman commented on Gabrielle's group Liver Transplants
"Brother David so happy for you!  Gives me hope.  I pray for all of us to have the success like Ramona's husband and others.  God bless you sir and  all of my TX family.  Hugs Pete~"
yesterday
Matthew J Litkie posted photos
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Caring 4 Carrie posted a blog post

Kidney Fact: A Kidney Transplant Myth- Does Organ Donations Really Work?

According to Donate Life, The success rate for organ transplants is between 80 and 90 percent. To learn more about organ donation, please visit: www.organdonor.govSee More
yesterday
Caring 4 Carrie posted a status
"On behalf of C4C, we're Grateful to God, for the 5th~Annual Carrie Kidney Bowling Fundraiser. Visit & 'Like' our FB page,Caring 4 Carrie."
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Caring 4 Carrie posted a photo
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Caring 4 Carrie posted a status
"Someone's Story: This is Jim. He's on dialysis and seeking a kidney donor. Please visit his FB page: https://www.facebook.com/KidneyStories"
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Bornali commented on Lawrence R. Decoste's group Nutrition & Supplement Drinks
"What Vitamin supplement must one take after liver transplant?"
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Nutrition & Supplement Drinks

Tips on what to eat after your Transplant and how to stay healthy
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