I'm trying to find more information about spleen problems after liver transplant.  Dean had his transplant on 08-08-2010 and his liver is working great but he continues to have problems with low white blood count.  For some reason, I have a hard time navigating this site.  I do a search and see partial posts listed but I don't know what to click to read the entire post.  His count as been as low as .9 and then they had him doing Neupogen shots every day.  It went way up but dropped as soon as the shots were discontinued.  His bone marrow biopsy didn't show any problems.  They are now focusing on his spleen which has been enlarged for several years.  He had a CT scan last week Wednesday of his spleen and we are waiting for the results.  Any info will be helpful.  He's taking 4mg of prograf twice a day and 5 mg of Prednisone.  They discontinued Valcyte for now but it didn't make much difference.  Other than his white blood count, he is doing great and golfing a few times a week.  Thank you and I wish everyone a Happy New Year!

Sincerely,

Linda

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I have had two liver tx the last being on December 23rd 2009. Three months before my last tx they took my spleen out, it was 7 1/2 lbs. The Dr. said my first liver was to big for my body ( I'm a small girl) so it irritated the spleen it became grossly enlarged. Defiantly talk to the Dr. About removing the spleen if it OS the right thing to do. Hope I helped.
I have read that an enlarged spleen can possibly cause leukocytopenia or low white blood count. I got a spleen and liver among other organs in my transplant, but I have not had any trouble in this way so far. I hope that Dean's doctor can figure out the best possible plan for Dean that can keep his white blood cell counts where they need to be. I do know that one can live without one's spleen as the other lymph elements cab take over its job. I will keep you both in my thoughts and prayers. Many hugs and best of wishes to you both.   

I too have an enlarged spleen and for awhile after transplant I had a low white count.  I was told that it would correct itself in time, but if it didn't they would look at changing my meds - Prograf in particular.  My white count stayed low for two months and went back into the normal ranges and has stayed there since.

 

I was also told that an enlarged spleen usually remained enlarged,  I have low platelets and the enlarged spleen is part of the reason.

 

Please talk to your doctor about long term solutions.  Good luck on your journey.

My spleen is enlarged. I had transplant Feb 2010. Now my spleen is stealing platelets and blood cells again. They told me it is dangerous to remove spleen for liver transplant patient. I am anemic because of this problem. They tell me to live with it as long as I can.

We're still waiting for the results of his spleen scan.  His doctor's office told Dean today that they will check for test results again tomorrow.  I'll post an update when we get the results. 

Thank you,

Linda

The results of the spleen scan showed that Dean's spleen is enlarged but not bad enough to consider surgery at

this time.  His other levels are good and his whitel blood count was 2.5 at the last check.  They are OK with that as long

as it doesn't get any lower.   It seems to be better since they took him off Valcyte.  More as we get more info.

Thank you,

Linda

Hi Linda,

I'm happy to hear that Dean is doing well and won't need surgery right away. How's his golfing going? Be well.

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