I'm trying to find more information about spleen problems after liver transplant.  Dean had his transplant on 08-08-2010 and his liver is working great but he continues to have problems with low white blood count.  For some reason, I have a hard time navigating this site.  I do a search and see partial posts listed but I don't know what to click to read the entire post.  His count as been as low as .9 and then they had him doing Neupogen shots every day.  It went way up but dropped as soon as the shots were discontinued.  His bone marrow biopsy didn't show any problems.  They are now focusing on his spleen which has been enlarged for several years.  He had a CT scan last week Wednesday of his spleen and we are waiting for the results.  Any info will be helpful.  He's taking 4mg of prograf twice a day and 5 mg of Prednisone.  They discontinued Valcyte for now but it didn't make much difference.  Other than his white blood count, he is doing great and golfing a few times a week.  Thank you and I wish everyone a Happy New Year!

Sincerely,

Linda

Views: 1042

Replies to This Discussion

I have had two liver tx the last being on December 23rd 2009. Three months before my last tx they took my spleen out, it was 7 1/2 lbs. The Dr. said my first liver was to big for my body ( I'm a small girl) so it irritated the spleen it became grossly enlarged. Defiantly talk to the Dr. About removing the spleen if it OS the right thing to do. Hope I helped.
I have read that an enlarged spleen can possibly cause leukocytopenia or low white blood count. I got a spleen and liver among other organs in my transplant, but I have not had any trouble in this way so far. I hope that Dean's doctor can figure out the best possible plan for Dean that can keep his white blood cell counts where they need to be. I do know that one can live without one's spleen as the other lymph elements cab take over its job. I will keep you both in my thoughts and prayers. Many hugs and best of wishes to you both.   

I too have an enlarged spleen and for awhile after transplant I had a low white count.  I was told that it would correct itself in time, but if it didn't they would look at changing my meds - Prograf in particular.  My white count stayed low for two months and went back into the normal ranges and has stayed there since.

 

I was also told that an enlarged spleen usually remained enlarged,  I have low platelets and the enlarged spleen is part of the reason.

 

Please talk to your doctor about long term solutions.  Good luck on your journey.

My spleen is enlarged. I had transplant Feb 2010. Now my spleen is stealing platelets and blood cells again. They told me it is dangerous to remove spleen for liver transplant patient. I am anemic because of this problem. They tell me to live with it as long as I can.

We're still waiting for the results of his spleen scan.  His doctor's office told Dean today that they will check for test results again tomorrow.  I'll post an update when we get the results. 

Thank you,

Linda

The results of the spleen scan showed that Dean's spleen is enlarged but not bad enough to consider surgery at

this time.  His other levels are good and his whitel blood count was 2.5 at the last check.  They are OK with that as long

as it doesn't get any lower.   It seems to be better since they took him off Valcyte.  More as we get more info.

Thank you,

Linda

Hi Linda,

I'm happy to hear that Dean is doing well and won't need surgery right away. How's his golfing going? Be well.

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Tara posted photos
yesterday
Tara left a comment for Tara
"Thank you for the warm welcome Karen. I do have a photo on my profile, is it not visible to others? I'll add more personal details shortly."
yesterday
Tara and Karen Weddick are now friends
yesterday
Jimmney Yancey updated their profile
Saturday
Karen Weddick left a comment for Jimmney Yancey
"Hi Jimmney: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Saturday
Karen Weddick left a comment for Tara
"Hi Tara: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Saturday
Tara is now a member of TransplantCafe.com - The Gift of eLife!
Friday
Emma Standish commented on Nancy Paske's blog post So Grateful
"Wish I could meet my donors parents/family. I received a heart 15 years ago when I was ten years old, and never got told anything about my donor I still don't no if the heart was from a male or a female!"
Friday
Emma Standish and randy hegwood jr are now friends
Friday
Emma Standish posted photos
Friday
Emma Standish liked Emma Standish's profile
Friday
Emma Standish liked Emma Standish's profile
Friday
Richard J Wadzinski Jr posted a status
"wishing everyone be well and stay safe.Stay Compliant and LIVE life to the fullest."
Friday
Richard J Wadzinski Jr posted photos
Friday
carol schutt replied to Velina's discussion Life expectancy after a liver transplant? in the group Liver Transplants
"Hi Velina,  I started researching the positives of life expectancy many years ago.  I had my liver transplant in March, 1991.  So, I am 24 yr out!  Yeah!  My liver was from a deceased donor, she was 18 yr old, I was 35.…"
Friday
Janet Hart posted a discussion

Niece in Need of Housing in Los Angeles

My niece has been approved for a kidney transplant at Cedar's Sinai in LA but hasn't found an affordable place to stay for the three months following the transplant. Does anyone know of a place or have a suggestion on how to find a place. Her social worker did give her a list of hotels/motels but they are out of her price range. She is doing some fund raising to help cover expenses. Any ideas would be appreciated.Thank you.See More
Thursday

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service