I'm trying to find more information about spleen problems after liver transplant. Dean had his transplant on 08-08-2010 and his liver is working great but he continues to have problems with low white blood count. For some reason, I have a hard time navigating this site. I do a search and see partial posts listed but I don't know what to click to read the entire post. His count as been as low as .9 and then they had him doing Neupogen shots every day. It went way up but dropped as soon as the shots were discontinued. His bone marrow biopsy didn't show any problems. They are now focusing on his spleen which has been enlarged for several years. He had a CT scan last week Wednesday of his spleen and we are waiting for the results. Any info will be helpful. He's taking 4mg of prograf twice a day and 5 mg of Prednisone. They discontinued Valcyte for now but it didn't make much difference. Other than his white blood count, he is doing great and golfing a few times a week. Thank you and I wish everyone a Happy New Year!
I too have an enlarged spleen and for awhile after transplant I had a low white count. I was told that it would correct itself in time, but if it didn't they would look at changing my meds - Prograf in particular. My white count stayed low for two months and went back into the normal ranges and has stayed there since.
I was also told that an enlarged spleen usually remained enlarged, I have low platelets and the enlarged spleen is part of the reason.
Please talk to your doctor about long term solutions. Good luck on your journey.
We're still waiting for the results of his spleen scan. His doctor's office told Dean today that they will check for test results again tomorrow. I'll post an update when we get the results.
The results of the spleen scan showed that Dean's spleen is enlarged but not bad enough to consider surgery at
this time. His other levels are good and his whitel blood count was 2.5 at the last check. They are OK with that as long
as it doesn't get any lower. It seems to be better since they took him off Valcyte. More as we get more info.
I'm happy to hear that Dean is doing well and won't need surgery right away. How's his golfing going? Be well.