Hi, everyone!



I'm almost 2 years post my transplant and recently I came across the question about the life expectancy asked on the internet and I actually became curious about the answer..cause let's face it, if someone can tell me how long do I have left to live I would like to know 

Is anyone of you familiar with the topic? Has anyone heard of any survival rates for the people with liver transplants?

I know it depends on lots of thing such as: is it a young or an adult recipient, is the transplant due to a disease or a toxic failiure and so on..

I've read lots of answers and 30 years is the best option i read about.. So if any of you know something about the life expectancy rates please do share, I would very much appreciate it!

Regards to all,
Velina 

Views: 38429

Replies to This Discussion

My husband had 23 years with his first transplant, and just over a year ago had a second one.  I've heard that as long as you take care of yourself there is no reason to think that you would live a shorter life just because you've had a TP.  You could live to over 100 years old.  :-)

Hi Velina,

While liver transplants took place in the '60's, those early recipients did not have the advantage of as well done perfusions and ischemic storage in superior preserving fluids and the anti-rejection meds were not what they are today. It wasn't until probably the mid '70's that liver transplant recipients began doing better on a more regular basis as the body of knowledge was still growing. So, if you've come across a number that someone published saying expect 30 years from a liver transplant these days, that number will be based on 30 year old technology and continuously better care. It may be even better going forward for you as yours is a more modern transplant that those of 30 years ago.

My advice is don't worry about the quantity of years; instead focus on your quality of life and living the best life for you that you can.  I don't give the life of my liver a thought. I focus on my life and doing with it the best I can. My transplant is in no way a handicap, but rather a simple fact of life.

Each year, I meet with my transplant surgeon. On that day, he asks how I'm doing. I say fine and my plan is to live forever. He asks "how's that working out for you?" and I say: "So far, so good." This June, when we meet again, it will be our 12th such conversation. I believe that the secret to longevity, more than anything else, is attitude and I focus on the advice of my 98 year old grandfather, when I asked him his secret. He said: "Laugh each day for 100 years. Do that, and you'll have a shot at old age."

I'm an outlier. I was transplanted nine years ago by Dr Busitil & Co at UCLA.  On my way into the OR they explained that my donor was a 25-yo blonde (perhaps an attempt at humor)  but she had been on life support for a while  and I could opt to wait for a better match.

This struck me as a weak attempt at humor.  I had waited two years for Medicare to fund my procedure. (This is Medicare's "Trial by Fire," if you are STILL alive after two years we'll fund you.)  At the end of the two yr waiting period UCLA noted that, "son of a gun," I had developed liver cancer in the interim.  (The brickbats of bad news never seem to cease.) They shrunk the cancer and by the skin of my teeth  fate was finally going to give me another chance to live.  I wasn't about  to wait.  

I am eternally grateful to the parents of my donor for allowing me to have their daughter's liver.  It was a vote of faith in humanity, a mitzvah, to do that. We know of each other, I know they were on the Rose parade float several years ago.  I have never had a rejection episode, my donor was so closely matched she could have been a relative:  I consider myself fully recovered.  For the first four years I assiduously followed posts in this and other fora. 

After the four years of untroubled life and stable Ast/Alt levels, my life began to be focused on the future rather than survival.  Today, my mental faculties have returned (such as they are), I'm back in school taking all those courses I had wanted to take but never had time.  I write, read, have a motorcycle, and the memory of my transplant has faded into that hazy past occupied by first love, military service, and having children: still there but a faded picture in the album of life.

I was 58 at transplant, disabled for five years before that.  Now I'm pushing 68, 155lbs, feeling like 45 and believe I may live a long as my mother who died at 91.  Who knows? Further, who cares?  We are here, must be here, must be now.  Worrying about longevity is a limiting illusion:  it means one is always anticipating the end instead of living in the now. 

I (and my now 35-yo young lady's liver) have been together a long time now and will continue into  the foreseeable future.  Carlos (quetzal1@earthlink.net)

I had my liver transplant when I was 55 years old.  I am now 70 so I have had my donor liver for 15 years.  Every year around my " second birthday" I think of the family that gave me the gift of life.  He was a 41 year old baptist preacher.  It was a joy to meet his family.  He married his high school sweetheart and had 2 kids, 21 year old girl and 18 year old son.

I don't think it is about how long we live, it is about how we live.  I as so happy that I was able to see my sons grow to manhood and for me to become a grandfather.  Sweetest words on earth " I love you grandpa". 

May you have a great life, full of joy and love.

You Are So Right! I have 5 Granddaughters, 3 of them are almost 4.

 I melt when I here them say, I LOVE YOU GRANPA! 

No Regrets!  

I think it's diff for each person ....Im 7 years out from my transplant Feb 05.....I had hep C contracted when I worked in an emer room back in med 70's..... so im probably past due....but some live much longer.....what liver you get, and where seems to make a diff also...Mine was done at Duke Univ Hosp in Durham, NC....Sylvia Edwards

 Hi Velina, What a fabulous discussion!

You are goin to be overwhelmed by reply's.

I am almost 5 Yrs out from ''Liver Replacement'', I have searched 100's of sites looking for those exact answers. Most of the sites were for Doctors & Hospitals. The one thing I found, was 90% of the studies only went for 5 years.

I went to a Transplant Picnic at my Hospital (OHSU) for the 1000th Liver TX. I made the mistake of asking how many invitations they sent out. I shouldn't have asked that, they told me 500. "O No".

There are a million factors for how long, we all know that.

I am just Glad I'm "Still Alive & Well" 

 

Worrying about "how long" is a waste of time. Nobody knows what, when, or where we'll die. When I received my transplant, in July 2009, one of the nurses told me a new liver was good for at least 25 years. That would make me 84. I'm not even sure I want to live that long. 80 sounds about right. We have already experienced a miracle, appreciate it, and take it for what it is.

Hi Velina,

I read up on this topic after my first and second transplant. I am 35 right now, and had my first transplant when I was 32 and second when I was 34.

Here is a link to an article with some information:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1856771/

It's data on UK liver transplants, but I expect data on US liver transplant to be similar.

I find that reading up on these things is very useful - I feel better if I am more educated on the topic. It helps me cope a lot.

However, I think it is important to understand that the data gives you an idea of what to expect, but your story and situation is unique. This means that you have to take into account your primary cause of liver disease, as well as your overall health, etc.

(BTW, I found that link by searching for 'life expectancy liver transplants' in scholar.google.com)

Best wishes of health and longevity,

Leeza

I received a liver as part of a multivisceral transplant and I have already been blessed with more than six years of life as a result. There have been times when I wondered about average survival rates for my kind of transplant just to get a basic idea. Then I realize that this is just a statistic and a human is not a statistic. I just try to make the most of the days I have to spend with family and friends that I know I would not have had without the transplant. The human spirit can often endure much more than one supposes it can based on appearances or first impressions. I suppose that is why I love to study about the human body because it still continues to amaze even the professionals sometimes. May you be able to celebrate very many liver anniversaries and be continually blessed along the way. Best of wishes.

It seems I read of someone who had one over 40 years. Sorry I can't recall the details.

You must realize nobody had a crystal ball as to how long anyone will live.

Statistics can be deceiving. Things are improving as more people get transplants.

There is ongoing research and no doubt things will continue to improve.

Hope that helps !

Long-Term Survival After Liver Transplantation in 4,000 Consecutive Patients at a Single Center

"Four thousand consecutive patients who underwent liver transplantation between February 1981 and April 1998 were included in this analysis and were followed up to March 2000. The effect of donor and recipient age at the time of transplantation, recipient gender, diagnosis, and year of transplantation were compared. Rates of retransplantation, causes of retransplantation, and cause of death were also examined."


Interesting read and comprehensive...............Article from Annals of Surgery 2000 October

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1421181/

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

David Goodman commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Some of us have already passed along meds that were surplus. Do it privately."
yesterday
David Goodman commented on Lili Feldman's group The Funny Bone
"Ba-a-a-a-a-a-a-d Parrot A young man named John received a parrot as a gift. The parrothad a bad attitude and an even worse vocabulary.Every word out of the bird's mouth was rude, obnoxious andlaced with profanity. John tried and tried to…"
Monday
Caring 4 Carrie posted a blog post

Which Are Healthier Food Choices For Diabetes?

Happy 'S.H.A.R.I.N.G' Sunday! Today's Kidney Fact: Diabetics have to make healthier food choices to avoid a drop in blood sugar which causes Hyperglycemia. (Test your knowledge and kindly share your answer.) You Should Eat A Lot Of This If You Have Diabetes: A) Natural Sugar B) Added Sugar C) Fiber D) Processed foods Note: The correct answer will be provided tomorrow.See More
Monday
Caring 4 Carrie posted a status
"This is Mr Michael Robbins. He's seeking a kidney donor.…"
Monday
Mariel Ammerlaan Carr joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Sunday
Mariel Ammerlaan Carr is now a member of TransplantCafe.com - The Gift of eLife!
Sunday
Frank Colangelo posted a status
"Yes I am."
Sunday
HDHONEY replied to Frank Colangelo's discussion Vomiting and Diarrhoea after being exposed to chemicals
"Frank  r u having these problems just when working.  I also have had a liver transplant. Weird that stuff is not agreeing with u. hope u can get answers, sure its not ur med "
Saturday
Frank Colangelo joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Nov 20
Frank Colangelo posted a status
"Hi There is anybody online"
Nov 20
Frank Colangelo posted a discussion

Vomiting and Diarrhoea after being exposed to chemicals

Hello AllJust under three years I had a liver transplant due to cirrohossis and Hep C.  I am back at work but seem to experience vomiting and diarrhoea if I have been exposed to chemicals of any sort.  Understanding fertilser and blood and bone for gardens is a no no for me. My medical team cannot give me any answers and I am wondering if anybody has experienced the same symptoms.  The episodes seem to last up to four to five hours at a time and leaves me very fatigued and wash out.  Hoping someone can give me some answers.Kind regardsFrankSee More
Nov 20
Profile IconKristi Ide, Michael , Cathy Estrada and 2 more joined TransplantCafe.com - The Gift of eLife!
Nov 19
Gene Cost posted a discussion

Working after Transplant

Hello to everyone,My name is Gene and I was transplanted almost 3 years ago. I suffered from liver failure as a result of Hep C. I am 59 years old now. I suffered a torn rotator cuff as a result of my positioning during my transplant and it took some time to recover from that. I did not have any surgery I simply learned to live with it. I also incurred steroid induced diabetes as a result of the transplant and now have a fair amount of neuropathy in my feet. I have found that I fatigue much easier than I once did. My doctor has concluded that I have also suffered some cognitive impairment and as a result of my illness and I have been declared fully disabled. After a year of rehabilitation I returned to work part time delivering auto parts. I have been working for 18 months now. By federal law I can earn $1070/month and continue to receive disability. I find it difficult to live on my part time wages however I have determined that in order to justify going to work full time I would…See More
Nov 19
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Yep, Dallas Buyers Club is a great story and example for sure! Personally, I'm with you. Professionally, TC couldn't be involved, unfortunately. And it really is unfortunate because it would help so many people. Sort of like organ donation…"
Nov 17
John Presley Robertson commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Nelson, I understand the laws, but we all know a lot of meds are discarded by patients that don't need them anymore. I don't expect the pharmacies to give it away but there must be away for transplant recipients to do something. Remember…"
Nov 17
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Hi John, I think that would be a great service for the transplant community and other patients too. However, I don't think the laws allow this, unfortunately. You're right about there being a great need for a program like this for…"
Nov 17

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2014   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service