Hi, everyone!



I'm almost 2 years post my transplant and recently I came across the question about the life expectancy asked on the internet and I actually became curious about the answer..cause let's face it, if someone can tell me how long do I have left to live I would like to know 

Is anyone of you familiar with the topic? Has anyone heard of any survival rates for the people with liver transplants?

I know it depends on lots of thing such as: is it a young or an adult recipient, is the transplant due to a disease or a toxic failiure and so on..

I've read lots of answers and 30 years is the best option i read about.. So if any of you know something about the life expectancy rates please do share, I would very much appreciate it!

Regards to all,
Velina 

Views: 42612

Replies to This Discussion

My husband had 23 years with his first transplant, and just over a year ago had a second one.  I've heard that as long as you take care of yourself there is no reason to think that you would live a shorter life just because you've had a TP.  You could live to over 100 years old.  :-)

Hi Velina,

While liver transplants took place in the '60's, those early recipients did not have the advantage of as well done perfusions and ischemic storage in superior preserving fluids and the anti-rejection meds were not what they are today. It wasn't until probably the mid '70's that liver transplant recipients began doing better on a more regular basis as the body of knowledge was still growing. So, if you've come across a number that someone published saying expect 30 years from a liver transplant these days, that number will be based on 30 year old technology and continuously better care. It may be even better going forward for you as yours is a more modern transplant that those of 30 years ago.

My advice is don't worry about the quantity of years; instead focus on your quality of life and living the best life for you that you can.  I don't give the life of my liver a thought. I focus on my life and doing with it the best I can. My transplant is in no way a handicap, but rather a simple fact of life.

Each year, I meet with my transplant surgeon. On that day, he asks how I'm doing. I say fine and my plan is to live forever. He asks "how's that working out for you?" and I say: "So far, so good." This June, when we meet again, it will be our 12th such conversation. I believe that the secret to longevity, more than anything else, is attitude and I focus on the advice of my 98 year old grandfather, when I asked him his secret. He said: "Laugh each day for 100 years. Do that, and you'll have a shot at old age."

I'm an outlier. I was transplanted nine years ago by Dr Busitil & Co at UCLA.  On my way into the OR they explained that my donor was a 25-yo blonde (perhaps an attempt at humor)  but she had been on life support for a while  and I could opt to wait for a better match.

This struck me as a weak attempt at humor.  I had waited two years for Medicare to fund my procedure. (This is Medicare's "Trial by Fire," if you are STILL alive after two years we'll fund you.)  At the end of the two yr waiting period UCLA noted that, "son of a gun," I had developed liver cancer in the interim.  (The brickbats of bad news never seem to cease.) They shrunk the cancer and by the skin of my teeth  fate was finally going to give me another chance to live.  I wasn't about  to wait.  

I am eternally grateful to the parents of my donor for allowing me to have their daughter's liver.  It was a vote of faith in humanity, a mitzvah, to do that. We know of each other, I know they were on the Rose parade float several years ago.  I have never had a rejection episode, my donor was so closely matched she could have been a relative:  I consider myself fully recovered.  For the first four years I assiduously followed posts in this and other fora. 

After the four years of untroubled life and stable Ast/Alt levels, my life began to be focused on the future rather than survival.  Today, my mental faculties have returned (such as they are), I'm back in school taking all those courses I had wanted to take but never had time.  I write, read, have a motorcycle, and the memory of my transplant has faded into that hazy past occupied by first love, military service, and having children: still there but a faded picture in the album of life.

I was 58 at transplant, disabled for five years before that.  Now I'm pushing 68, 155lbs, feeling like 45 and believe I may live a long as my mother who died at 91.  Who knows? Further, who cares?  We are here, must be here, must be now.  Worrying about longevity is a limiting illusion:  it means one is always anticipating the end instead of living in the now. 

I (and my now 35-yo young lady's liver) have been together a long time now and will continue into  the foreseeable future.  Carlos (quetzal1@earthlink.net)

I had my liver transplant when I was 55 years old.  I am now 70 so I have had my donor liver for 15 years.  Every year around my " second birthday" I think of the family that gave me the gift of life.  He was a 41 year old baptist preacher.  It was a joy to meet his family.  He married his high school sweetheart and had 2 kids, 21 year old girl and 18 year old son.

I don't think it is about how long we live, it is about how we live.  I as so happy that I was able to see my sons grow to manhood and for me to become a grandfather.  Sweetest words on earth " I love you grandpa". 

May you have a great life, full of joy and love.

You Are So Right! I have 5 Granddaughters, 3 of them are almost 4.

 I melt when I here them say, I LOVE YOU GRANPA! 

No Regrets!  

I think it's diff for each person ....Im 7 years out from my transplant Feb 05.....I had hep C contracted when I worked in an emer room back in med 70's..... so im probably past due....but some live much longer.....what liver you get, and where seems to make a diff also...Mine was done at Duke Univ Hosp in Durham, NC....Sylvia Edwards

 Hi Velina, What a fabulous discussion!

You are goin to be overwhelmed by reply's.

I am almost 5 Yrs out from ''Liver Replacement'', I have searched 100's of sites looking for those exact answers. Most of the sites were for Doctors & Hospitals. The one thing I found, was 90% of the studies only went for 5 years.

I went to a Transplant Picnic at my Hospital (OHSU) for the 1000th Liver TX. I made the mistake of asking how many invitations they sent out. I shouldn't have asked that, they told me 500. "O No".

There are a million factors for how long, we all know that.

I am just Glad I'm "Still Alive & Well" 

 

Worrying about "how long" is a waste of time. Nobody knows what, when, or where we'll die. When I received my transplant, in July 2009, one of the nurses told me a new liver was good for at least 25 years. That would make me 84. I'm not even sure I want to live that long. 80 sounds about right. We have already experienced a miracle, appreciate it, and take it for what it is.

Hi Velina,

I read up on this topic after my first and second transplant. I am 35 right now, and had my first transplant when I was 32 and second when I was 34.

Here is a link to an article with some information:

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1856771/

It's data on UK liver transplants, but I expect data on US liver transplant to be similar.

I find that reading up on these things is very useful - I feel better if I am more educated on the topic. It helps me cope a lot.

However, I think it is important to understand that the data gives you an idea of what to expect, but your story and situation is unique. This means that you have to take into account your primary cause of liver disease, as well as your overall health, etc.

(BTW, I found that link by searching for 'life expectancy liver transplants' in scholar.google.com)

Best wishes of health and longevity,

Leeza

I received a liver as part of a multivisceral transplant and I have already been blessed with more than six years of life as a result. There have been times when I wondered about average survival rates for my kind of transplant just to get a basic idea. Then I realize that this is just a statistic and a human is not a statistic. I just try to make the most of the days I have to spend with family and friends that I know I would not have had without the transplant. The human spirit can often endure much more than one supposes it can based on appearances or first impressions. I suppose that is why I love to study about the human body because it still continues to amaze even the professionals sometimes. May you be able to celebrate very many liver anniversaries and be continually blessed along the way. Best of wishes.

It seems I read of someone who had one over 40 years. Sorry I can't recall the details.

You must realize nobody had a crystal ball as to how long anyone will live.

Statistics can be deceiving. Things are improving as more people get transplants.

There is ongoing research and no doubt things will continue to improve.

Hope that helps !

Long-Term Survival After Liver Transplantation in 4,000 Consecutive Patients at a Single Center

"Four thousand consecutive patients who underwent liver transplantation between February 1981 and April 1998 were included in this analysis and were followed up to March 2000. The effect of donor and recipient age at the time of transplantation, recipient gender, diagnosis, and year of transplantation were compared. Rates of retransplantation, causes of retransplantation, and cause of death were also examined."


Interesting read and comprehensive...............Article from Annals of Surgery 2000 October

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1421181/

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

James Thorpe is now a member of TransplantCafe.com - The Gift of eLife!
11 hours ago
Jona replied to Scott Michael Hedges's discussion 1-2 year move from Lawrence to Fort Collins, CO; Need insurance and new doctors!
"Hi Scott, Just joined here and saw your post. Have you made the move? We live in Loveland, just south of Fort Collins. My husband is on the waiting list at University Of Colorado Hospital Anschutz in Aurora. Hope all is well."
yesterday
Jona joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
yesterday
Karen Weddick left a comment for Kim Bradshaw
"Hi Kim: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
yesterday
Kim Bradshaw is now a member of TransplantCafe.com - The Gift of eLife!
Saturday
Audrey Clark posted photos
Friday
Clare mcgee commented on Clare mcgee's blog post Prograf hair thinning.
"Hi Vikie, Only just found your comment. not been on for a while too! Glad you got sorted. me well that is another story, I got desperate from the ongoing painful scalp & continued hairloss with no let up for 2+ solid years! I tried to go over…"
Thursday
Audrey Clark left a comment for Linda Desi
"I am sorry about your loss of your husband. Beside the septic shock incidents, are your new lungs treating you well?"
Thursday
Clare mcgee posted a blog post

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels " Lol.. Oh boy that would be a refreshi…

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels "Lol.. Oh boy that would be a refreshing change!!See More
Wednesday
Jona commented on Carol Jean Posner's blog post 40 years!
"Congratulations!! "
Mar 23
Jona liked Carol Jean Posner's blog post 40 years!
Mar 23
Jona and Karen Weddick are now friends
Mar 23
Susan Quinn is now a member of TransplantCafe.com - The Gift of eLife!
Mar 22
David Goodman commented on Lili Feldman's group The Funny Bone
"A Tennessee State trooper pulled over a pickup on I-65. The trooper asked, “Got any ID?” The driver replied, “Bout whut?”"
Mar 21
David Goodman commented on Lili Feldman's group The Funny Bone
"The owner of a golf course in Georgia was confused about paying an invoice, so he decided to ask his secretary for some mathematical help. He called her into his office and said, “Y’all graduated from the University of Georgia and I need…"
Mar 21
David Goodman commented on Lili Feldman's group The Funny Bone
"On the average, an American man underage 75 will have sex two to three times a week, whereas a Japanese man the same age will have sex only one or two times a year. This is very upsetting news to most of my friends, as they had no idea they were…"
Mar 20

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service