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Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?

Members: 327
Latest Activity: Apr 8

Liver Transplant News

CPMC Liver, Kidney Transplant Programs Earn Recognition from SRTR - PR Web (press release)


CPMC Liver, Kidney Transplant Programs Earn Recognition from SRTR
PR Web (press release)
Sutter Health affiliate California Pacific Medical Center (CPMC) has been identified as the nation's only hospital with both kidney and liver transplant programs that have higher-than-expected one- and three-year adult patient survivals that are ...
Branching Out to Offer Comprehensive Treatment for Liver and Pancreatic Disease

Daily Checkup: New approaches to treating liver problems in children - New York Daily News


New York Daily News

Daily Checkup: New approaches to treating liver problems in children
New York Daily News
“The liver is the factory that secretes bile, detoxifies medications and deals with almost all of the body's metabolism — of fat, carbohydrates and proteins," says Arnon. “Because there is no equivalent of dialysis that can replace liver function ...

Walter Trout Moved Up On Liver Transplant Waiting List - antiMUSIC.com


Walter Trout Moved Up On Liver Transplant Waiting List
antiMUSIC.com
(The Blues) Walter Trout has been moved to a hospital with a much shorter liver transplant waiting list, his wife Marie has confirmed. It means he's likely to receive the life-saving treatment sooner than he would have done if he'd remained a patient ...

'Govt Can Pitch in to Bring Down Liver Transplant Costs' - The New Indian Express


'Govt Can Pitch in to Bring Down Liver Transplant Costs'
The New Indian Express
Lack of cadaveric donors is affecting organ donation in the country, says Dr Arvinder Singh Soin, chief hepatobiliary and liver transplant surgeon at Medanta-The Medicity, Gurgaon. Dr Soin, who also offers consultation at Columbia Asia Hospital ...

Vietnam vet's family pleads for help finding liver transplant - KLTV


Vietnam vet's family pleads for help finding liver transplant
KLTV
An East Texas soldier's effort to save his grandfather's life through organ donation has apparently come up short. We introduced you to Army specialist Ricky Henderson and his grandfather, Rick Homer, last month. Homer is a Vietnam veteran who needs a ...

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Comment by Bobbiejo Winfrey on December 26, 2013 at 6:19pm

Dear Lee,

It's wonderful to hear you are doing so well especially during the holidays! I am glad that your gift has lasted so long, and I hope that this is just the beginning of its time, and may more blessings be coming. May you and everyone else have a very Happy New Year! 

Comment by Lee Rivera on December 26, 2013 at 12:15pm

Almost 17 years post transplant (liver).  Feb 1997.  On 1 mg prograf twice a day.  No problems, all levels normal.  

Comment by Stu L on October 29, 2013 at 7:32pm

Jan,  good luck with that.  I am blessed that I never really had any bad side effects, so now I have been undetected for 2 years and liver enzymes have been in normal range so life is good!  .  

Comment by Carlos on October 28, 2013 at 9:34pm

Note to honor Lou Reed, noted musician who died subsequent to a liver transplant last May.  RIP

Comment by Jan Ward on October 28, 2013 at 6:42pm

@Stu L: Before my Cancer and TP I had been in every trial that came along - hated em all and nothing even touched it...and I'm thanking the powers in the universe that this one finally arrived because my new liver has started going downhill...

Comment by Stu L on October 28, 2013 at 6:32pm

Great news,  I wish it was out when I went through treatment.  Keep it up 

Comment by Peter james goodman on October 28, 2013 at 5:01pm

Hello Tx family~ pleased to hear from all of you!  Hugs and love to all of you!

Comment by Bobbiejo Winfrey on October 28, 2013 at 4:51pm

How marvelous! I am delighted that you are having such great results! May the viral load continue its downward spiral all the way to zero, I hope. You are wished blessings beyond count.

Comment by Jan Ward on October 27, 2013 at 8:40pm

Hey Folks - a little good news. The gilead trials seems to be amazing. After one week of my involvement my viral load dropped from 2,300,000 to 671 (no zeroes). Liver numbers dropped into normal range for the first time in 40 years (except for the first few months after transplant). And very light side effects.

Y'all should check with your docs...

Comment by Don on October 27, 2013 at 5:26pm
Hi all, I have a question for the Group, and hopefully someone here can share a personal experience, (with "Liver Infarction") and the results of there own event, which (according to my Doctors / and the net) only effects about 1%-2% of liver transplant recipients, and (to the best of my knowledge) 80% happen within the fist 3 months post trx. .... I'm 7 years out, and the results are spotty / unavailable for a Liver Infarction cause / effects and the results once discovered, or treatment. My health has been medically uneventful / stable for all these years, till the first week of July this year (2013), with the exception of rejection, per my blood #'s, at three month post Trx,, (back in 2006) and required the normal protocol of high levels of Steroid treatments, and followed with a successful restart of daily meds. It was short lived, and within days (and with no real physical, or mental change noted during this event) I was back to daily life.
 
So... to my knowledge, very few of us in the Liver Trx population has had to endure medical treatment for a "Liver Infarction", and I'm looking for ANY treatment, or outcomes anyone here might shed some light on, to better understand where I might be in my own event, or can expect for final outcome.
 
 (here is a brief on the disorder - there are other articles out there, but this is a place to start)
 
I was treated for the Infarction, with home, self administered medication Cetrafaxine (SP) via a pic line in my chest, directly into my heart, once a day, for 3 weeks.(finished 7 weeks ago) and for reference, my per-Infarction body weight was 185-190# (now, today about 150#) my energy level has been, and is still now only about %60 - %70 max., of what if was, and I have absolutely no appetite what so ever - - None !..... Although I do eat about 1/2 of what I once did, by volume in normal conditions.(I no longer have taste)
 
Also I'll note: I've had five (5) one week stays in the hospital since July with direct related, and varying effects of this disorder. I've been home now for a little over a week, and see the head of Solid Organ Trx at Strong Memorial, NY, next week to discuss my status.
 
If anyone has had a personal experience with this disorder - I would like thank you in advance for sharing anything significant you can offer (favorable, or unfavorable).
 
regards,
Don
 

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Bobbiejo Winfrey commented on Gary Toulouse's blog post Today April 16th
"Congratulations on reaching your fourth year anniversary! I am so glad that you have been blessed with this wonderful gift. May you only have many, many more reasons to celebrate in the future! "
10 hours ago
Joy Youster is now a member of TransplantCafe.com - The Gift of eLife!
15 hours ago
Gary Toulouse posted a blog post

Today April 16th

Today at 0700, 4 years ago I received the gift of Life.  It would be mid day tomorrow that I would awake and learn that I was breathing on my own.  Inside my chest, two pure young lungs were becoming apart of me and my days ahead.  No longer hooked to a machine to keep me breathing I would soon be standing on my own.  Inside of me I could feel Tammy joining my life energy and I could feel her love.  To everyone have a great day and stay safe.  I still have much to think about.See More
18 hours ago
Robert Keith Surridge left a comment for Terry (Tariq)
"You will have to excuse me until I get use to the web site. I really don't have any side effects from the anti rejection drugs, so I guess I am pretty lucky."
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Terry (Tariq) left a comment for Robert Keith Surridge
"Hi Robert Welcome in café, nice to see you are doing excellent and enjoying life. Since 2009 how do you accept side effects of med, is their any issue with Prograf ; tecta. I am on single immune suppressant, prior to this was on…"
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"How darling! Thank you for sharing such a sweet picture. She must bring you much joy. I wish you both the best."
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Robert Keith Surridge left a comment for Phil Keyes
"I had a liver transplant in 2009 I ended up in the hospital for a week and was diagnosed with a blood clot in my liver. They tried a procedure by putting in a shunt to get blood flow, that procedure failed and I needed a liver transplant in order to…"
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Our Caring 4 Carrie Walk Team, will be walking on Saturday, May 31st, at Turner Field, Atlanta, GA. We've raised over $1,200!Please consider to order our official Caring 4 Carrie t-shirts. All our proceeds will be donated to the National Kidney Foundation. Our website is: www.booster.com/caring4carrieSee More
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