My boyfriend is 11 years out from his heart transplant.  He developed coronary artery disease a few years ago, and as a result, his team is performing all of the tests necessary to relist him.  Has anyone here undergone more than 1 heart transplant?  It is tough to see my boyfriend struggle with physical activities that he did easily when we first met.  I can see his frustration.  Any thoughts on how to manage these challenging feelings?    

Views: 999

Replies to This Discussion

I too have been relisted for a second heart transplant.  (I am 9 years post my first one).  I have talked with 5 others that have been through the second one and are doing well.  Good luck to you both!

As far as dealing with the slowed down lifestyle again, I try to keep a positive attitude.  When my body tires, I listen to it and rest.  You don't want to "push" with the CAD. Plan activities in the cool of the morning or evening.  Watch the diet (sodium and fluid) intake.  

I am making the most of every day and making memories with those I love. 

I have heard of more than one instance where this has occured. It happens when the person is young enough & healthy enough & when the problem is caught early enough. From what I've read, the second procedure is actually somewhat easier, because the recipient knows what to expect. I can only imagine that this is easier (somewhat) for your boyfriend, than for you simply BECAUSE he knows what to expect. That's not to say he's not at least a bit angry& frustrated. I know I would be! However, once again, patience is the key ingredient, for both of you. My Prayers are with you both.

Prayers & Blessings, Paula Heart TX 2-14-01

It is easier in one respect because we are already immune suppressed and know what to expect.  But in another respect...we know TOO much...I'm a lot more scared this time but have placed my concerns in the greatest Physician hands...my God.   I try to worry and I'm staying as active as possible to keep "the what ifs' out of my mind.  I was so angry at first and I cried alot.  But then a peace came to me and I'm ready for the "what is".   I'm hoping for a short wait so I can get on with my life.  But that too is a double edge sword knowing that means someone has died...already praying for my donor's family.
I'd love to hear how your boyfriend is doing. I just received my second Herr transplant. The first one lasted 20 years.

RSS

Members

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Clare mcgee replied to Andrea Gaskin's discussion Anyone out there had a Liver Transplant and now need a Kidney due to prograft?
"Hi Andrea, You have certainly had a rough time on top of the usual transplant roller coaster. Unfortunately the drugs we rely on bring its own problems. I am very pleased you have a supportive family to keep you strong. You are young & strong in…"
6 hours ago
Beverly L. Senzee was featured
yesterday
Profile IconBeverly L. Senzee and Keeleigh John joined TransplantCafe.com - The Gift of eLife!
yesterday
Andrea Gaskin replied to Andrea Gaskin's discussion Anyone out there had a Liver Transplant and now need a Kidney due to prograft?
"Hi Clare, I started off taking problably around 9mg 2x a day of prograft and 1000mg of Cellcept 2x a day. It was eventually tapered down to 4mg then in Feb down to 2mg and cellcept to 500mg 2x a day. My dose has fluctuated quite a bit in the last 2…"
Monday
Caring 4 Carrie posted a blog post

Kidney Fact: Diabetics Can Still Enjoy Easter Too! :)

 Easter Can Still Be Sweet For Those With Diabetes. The ultimate goal is to watch your glucose sugar level if you're planning on having chocolates.Here's options for Diabetics on Easter:  1) Sugar free- family fun activities/ exercise 2) Chocolates- major portion control 3) Non food gifts- gift of flowers or plant 4) Sweet Alternatives- Simnel cake or hot cross buSee More
Monday
Caring 4 Carrie posted a status
"This Afeera. She's needing a kidney. Visit her FB page:…"
Monday
Clare mcgee replied to Andrea Gaskin's discussion Anyone out there had a Liver Transplant and now need a Kidney due to prograft?
"Hi Andrea, Unfortunately This is more common than you may think . Not my personal experience granted but have heard & read of this happening. Out of curiosity what were your Prograf levels over the 2 yr period? & doses? As this plays a…"
Sunday
Brian Primack replied to Phil Keyes's discussion Post transplant blues
"Ipad my heart transplant 8 months ago and I also am on 2x 1500mg Cellcept, 12.5 of prednisone and prograf. I don't feel very good either. I keep wondering when I am going to feel better?"
Saturday
Brian Primack liked Donnia's group Prednisone Sucks :)
Saturday
Brian Primack is now a member of TransplantCafe.com - The Gift of eLife!
Saturday
Andrea Gaskin left a comment for Breanna Williams
"Welcome to the Transplant Cafe Family!!!"
Saturday
Andrea Gaskin posted a discussion

Anyone out there had a Liver Transplant and now need a Kidney due to prograft?

I had my liver transplant March 2012 and now last month almost 2 yrs after my liver transplant, I'm in kidnwy failure and on dialysis 3x a week. I am currently being evauated for a kidney transplant at MUSC in Charleston, SC. I hate dialysis! I need my life back!See More
Saturday
Vrinda Nair updated their profile
Apr 18
Sandy Atkinson is now a member of TransplantCafe.com - The Gift of eLife!
Apr 17
Bobbiejo Winfrey commented on Gary Toulouse's blog post Today April 16th
"Congratulations on reaching your fourth year anniversary! I am so glad that you have been blessed with this wonderful gift. May you only have many, many more reasons to celebrate in the future! "
Apr 16
Joy Youster is now a member of TransplantCafe.com - The Gift of eLife!
Apr 16

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2014   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service