My boyfriend is 11 years out from his heart transplant.  He developed coronary artery disease a few years ago, and as a result, his team is performing all of the tests necessary to relist him.  Has anyone here undergone more than 1 heart transplant?  It is tough to see my boyfriend struggle with physical activities that he did easily when we first met.  I can see his frustration.  Any thoughts on how to manage these challenging feelings?    

Views: 1215

Replies to This Discussion

I too have been relisted for a second heart transplant.  (I am 9 years post my first one).  I have talked with 5 others that have been through the second one and are doing well.  Good luck to you both!

As far as dealing with the slowed down lifestyle again, I try to keep a positive attitude.  When my body tires, I listen to it and rest.  You don't want to "push" with the CAD. Plan activities in the cool of the morning or evening.  Watch the diet (sodium and fluid) intake.  

I am making the most of every day and making memories with those I love. 

I have heard of more than one instance where this has occured. It happens when the person is young enough & healthy enough & when the problem is caught early enough. From what I've read, the second procedure is actually somewhat easier, because the recipient knows what to expect. I can only imagine that this is easier (somewhat) for your boyfriend, than for you simply BECAUSE he knows what to expect. That's not to say he's not at least a bit angry& frustrated. I know I would be! However, once again, patience is the key ingredient, for both of you. My Prayers are with you both.

Prayers & Blessings, Paula Heart TX 2-14-01

It is easier in one respect because we are already immune suppressed and know what to expect.  But in another respect...we know TOO much...I'm a lot more scared this time but have placed my concerns in the greatest Physician hands...my God.   I try to worry and I'm staying as active as possible to keep "the what ifs' out of my mind.  I was so angry at first and I cried alot.  But then a peace came to me and I'm ready for the "what is".   I'm hoping for a short wait so I can get on with my life.  But that too is a double edge sword knowing that means someone has died...already praying for my donor's family.
I'd love to hear how your boyfriend is doing. I just received my second Herr transplant. The first one lasted 20 years.

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

David Goodman commented on Lili Feldman's group The Funny Bone
"Ba-a-a-a-a-a-a-d Parrot A young man named John received a parrot as a gift. The parrothad a bad attitude and an even worse vocabulary.Every word out of the bird's mouth was rude, obnoxious andlaced with profanity. John tried and tried to…"
4 hours ago
Caring 4 Carrie posted a blog post

Which Are Healthier Food Choices For Diabetes?

Happy 'S.H.A.R.I.N.G' Sunday! Today's Kidney Fact: Diabetics have to make healthier food choices to avoid a drop in blood sugar which causes Hyperglycemia. (Test your knowledge and kindly share your answer.) You Should Eat A Lot Of This If You Have Diabetes: A) Natural Sugar B) Added Sugar C) Fiber D) Processed foods Note: The correct answer will be provided tomorrow.See More
16 hours ago
Caring 4 Carrie posted a status
"This is Mr Michael Robbins. He's seeking a kidney donor.…"
16 hours ago
Mariel Ammerlaan Carr joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
yesterday
Mariel Ammerlaan Carr is now a member of TransplantCafe.com - The Gift of eLife!
yesterday
Frank Colangelo posted a status
"Yes I am."
yesterday
HDHONEY replied to Frank Colangelo's discussion Vomiting and Diarrhoea after being exposed to chemicals
"Frank  r u having these problems just when working.  I also have had a liver transplant. Weird that stuff is not agreeing with u. hope u can get answers, sure its not ur med "
Saturday
Frank Colangelo joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Friday
Karen Weddick left a comment for Michael
"Hi Michael: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Thursday
Karen Weddick left a comment for Kristi Ide
"Hi Kristi: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Thursday
Frank Colangelo posted a status
"Hi There is anybody online"
Thursday
Frank Colangelo posted a discussion

Vomiting and Diarrhoea after being exposed to chemicals

Hello AllJust under three years I had a liver transplant due to cirrohossis and Hep C.  I am back at work but seem to experience vomiting and diarrhoea if I have been exposed to chemicals of any sort.  Understanding fertilser and blood and bone for gardens is a no no for me. My medical team cannot give me any answers and I am wondering if anybody has experienced the same symptoms.  The episodes seem to last up to four to five hours at a time and leaves me very fatigued and wash out.  Hoping someone can give me some answers.Kind regardsFrankSee More
Thursday
Profile IconKristi Ide, Michael , Cathy Estrada and 2 more joined TransplantCafe.com - The Gift of eLife!
Thursday
Gene Cost posted a discussion

Working after Transplant

Hello to everyone,My name is Gene and I was transplanted almost 3 years ago. I suffered from liver failure as a result of Hep C. I am 59 years old now. I suffered a torn rotator cuff as a result of my positioning during my transplant and it took some time to recover from that. I did not have any surgery I simply learned to live with it. I also incurred steroid induced diabetes as a result of the transplant and now have a fair amount of neuropathy in my feet. I have found that I fatigue much easier than I once did. My doctor has concluded that I have also suffered some cognitive impairment and as a result of my illness and I have been declared fully disabled. After a year of rehabilitation I returned to work part time delivering auto parts. I have been working for 18 months now. By federal law I can earn $1070/month and continue to receive disability. I find it difficult to live on my part time wages however I have determined that in order to justify going to work full time I would…See More
Wednesday
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Yep, Dallas Buyers Club is a great story and example for sure! Personally, I'm with you. Professionally, TC couldn't be involved, unfortunately. And it really is unfortunate because it would help so many people. Sort of like organ donation…"
Nov 17
John Presley Robertson commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Nelson, I understand the laws, but we all know a lot of meds are discarded by patients that don't need them anymore. I don't expect the pharmacies to give it away but there must be away for transplant recipients to do something. Remember…"
Nov 17

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2014   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service