My boyfriend is 11 years out from his heart transplant.  He developed coronary artery disease a few years ago, and as a result, his team is performing all of the tests necessary to relist him.  Has anyone here undergone more than 1 heart transplant?  It is tough to see my boyfriend struggle with physical activities that he did easily when we first met.  I can see his frustration.  Any thoughts on how to manage these challenging feelings?    

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I too have been relisted for a second heart transplant.  (I am 9 years post my first one).  I have talked with 5 others that have been through the second one and are doing well.  Good luck to you both!

As far as dealing with the slowed down lifestyle again, I try to keep a positive attitude.  When my body tires, I listen to it and rest.  You don't want to "push" with the CAD. Plan activities in the cool of the morning or evening.  Watch the diet (sodium and fluid) intake.  

I am making the most of every day and making memories with those I love. 

I have heard of more than one instance where this has occured. It happens when the person is young enough & healthy enough & when the problem is caught early enough. From what I've read, the second procedure is actually somewhat easier, because the recipient knows what to expect. I can only imagine that this is easier (somewhat) for your boyfriend, than for you simply BECAUSE he knows what to expect. That's not to say he's not at least a bit angry& frustrated. I know I would be! However, once again, patience is the key ingredient, for both of you. My Prayers are with you both.

Prayers & Blessings, Paula Heart TX 2-14-01

It is easier in one respect because we are already immune suppressed and know what to expect.  But in another respect...we know TOO much...I'm a lot more scared this time but have placed my concerns in the greatest Physician hands...my God.   I try to worry and I'm staying as active as possible to keep "the what ifs' out of my mind.  I was so angry at first and I cried alot.  But then a peace came to me and I'm ready for the "what is".   I'm hoping for a short wait so I can get on with my life.  But that too is a double edge sword knowing that means someone has died...already praying for my donor's family.
I'd love to hear how your boyfriend is doing. I just received my second Herr transplant. The first one lasted 20 years.

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Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
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