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Heart Transplants

Heart Recipients can get to know one another. Discuss medication, issues, blessings, concerns, etc.

Members: 130
Latest Activity: 1 day ago

Discussion Forum

Sarah Copeland

Questions..... 8 Replies

Started by Sarah Copeland. Last reply by Sarah Copeland 1 day ago.

Lawrence R. Decoste

Heart Transplant Becoming a probation officer? 2 Replies

Started by Lawrence R. Decoste. Last reply by Dan R Brouillette Aug 31.

Lawrence R. Decoste

Anybody expierence Stomach discomfort in the morning? 1 Reply

Started by Lawrence R. Decoste. Last reply by Paula M. Rice Jul 31.

Heart Transplant News

HeartWare wins FDA nods for clinical trials - Mass Device


HeartWare wins FDA nods for clinical trials
Mass Device
HeartWare said the study is designed to study the use of the HVAD device in 450 patients with advanced heart failure who can't receive heart transplants.

An amazing anniversary for heart transplants - Osakis Review


An amazing anniversary for heart transplants
Osakis Review
Dennis Trump of Normanna Township and Beth Bartlett of Duluth are long-term heart transplant survivors. It was a milestone they weren't told to expect. ...

'A Change of Heart for Joe' dinner benefit is Saturday - Great Falls Tribune


'A Change of Heart for Joe' dinner benefit is Saturday
Great Falls Tribune
Last year, Erickson received a mechanical heart implant that pumps blood through his body until he can get a heart transplant. Erickson knows how important ...

Friendship brings hope to Great Falls man waiting for heart transplant - KRTV Great Falls News


Friendship brings hope to Great Falls man waiting for heart transplant
KRTV Great Falls News
Now, he's on a list to get a heart transplant but, it's a waiting game. Helping to take care of things back at home is Joe's friend Jacque Evanson. ...

Comment Wall

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Brian Caneda Comment by Brian Caneda on September 4, 2010 at 7:41pm
i am waiting to be on the wait list next week, oh what fun it is to do nothing all day and all night, i am going nutz.
mark mcgrew Comment by mark mcgrew on August 17, 2010 at 7:26pm
Allie, the hardest thing I had to deal with was accepting that my "Normal" had to be re-defined. (in fact I wrote a blog on the subject) I too experience some nausea in the mornings, but I find that eating a light breakfast or taking my AM meds with a glass of 1% milk, tends to calm my stomach enough to get on with my day.
As for the fatigue, and the lack of energy, I had to force myself to rise and do a little more each and every day. Now I am at the point where my bad days are fewer and farther between.
Most important of all, though, is to make sure your transplant team is aware of this. don't wait until your annual visit, call your coordinator and explain your symptoms.
I know also, that we are told to avoid sun like vampires, but I have found that spending a little time in the sun each day (with the necessary precautions) brings me an immense boost of energy.
I hope this helps a little. feel free to message me if I can be of any help.
Allie Comment by Allie on August 17, 2010 at 6:43pm
Hi everyone. I had my tx in November 2009 and I am nauseous everyday and exhaused and spend a lot of the day in bed. Was this normal for most poeple? When did you finally get back to being a normal person again?
Suzanne Torio Comment by Suzanne Torio on August 15, 2010 at 7:16pm
That's funny,I'm going to have to try that magic elixer myself! Any specific kind of water filter that was recommended?
Paula M. Rice Comment by Paula M. Rice on August 15, 2010 at 7:08pm
Ah Lawrence. You've discovered the magic elixer which I'm convinced will cure almost anything that ails you! Over the last few years, I've brought several people over to the "dark chocolate" side. It's actually the 1st. thing I reach for when I have a major case of the WTF's!. LOL. About your sodium levels, 1 of my docs rec. using a water filter/NOT bottled water. There's a huge dif. Hugs & luv, Paula
Lawrence R. Decoste Comment by Lawrence R. Decoste on August 15, 2010 at 6:58pm
my blood pressure goes all over the plac its tough because are meds make things go up and down its mastering the science of getting the levels right and its hard docs try there hardest i find excercise brings it down also dark chocolate after I eat it
Jill Schro Comment by Jill Schro on August 15, 2010 at 3:29pm
Thanks Paula, you are always so positive! Jill
Michael Strane Comment by Michael Strane on August 15, 2010 at 2:47pm
Hey Charline,

While I am not even two years out, I've had similar troubles with my blood pressure. Basically, when I'm on a beta blocker , my bp gets too low, and when I'm not my bp edges too high and my heart rate goes through the roof. I'm already on a super-low dose of atenolol, so I don't know if there is anywhere for me to go med wise. Unfortunately I don't really have any suggestions, but I feel your frustration.
Charline Conger Comment by Charline Conger on August 15, 2010 at 8:50am
Hi everyone, have just joined recently. Learned about transplantscafe.com from a lady bowling in the transplant games in Madison,Wis. I have had my heart transplant 20 yrs,be 21 in November. Like everyone, have had my up and downs. Recently decided to lose some of the lovely weight I gained, being on prednisone. Down over 30 lbs.,with that feel alot better, more energy, and the best of all,bloodpressure has fallen. The problem it does go too low and feel tire, but noticed in reading comments that happens to others,We all are so blessed
Paula M. Rice Comment by Paula M. Rice on August 14, 2010 at 3:27pm
Congrats, Jill. You're finally there, again! LOL?! I'll Pray that nothing else pops up. Hugs & Blessings, Paula
 

Members (130)

Paula M. Rice Neil Spector Paul Anthony Worthington Sarah Copeland Lawrence R. Decoste Terri Herko Michael Strane Jill Schro Dick Mueser Fred Vaughn Dale C. Flowers Ken Heathers Joanna Voguit sherry clemons Claude Brady Tresa Harbin ( Rebekah's Mom) Dave Yish eric goberman Shannon Rae Sue Steinhauser Jaclyn Botta KELLI SMITH Susan Farrell james kawhe Janet Dittman troy natus Mark McCarthy Jen Lopez Jim Kane Chris B.
 
 
 

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