Heart Transplants

Comment

Comment by Brian Caneda on September 4, 2010 at 7:41pm

i am waiting to be on the wait list next week, oh what fun it is to do nothing all day and all night, i am going nutz.

Comment by mark mcgrew on August 17, 2010 at 7:26pm

Allie, the hardest thing I had to deal with was accepting that my "Normal" had to be re-defined. (in fact I wrote a blog on the subject) I too experience some nausea in the mornings, but I find that eating a light breakfast or taking my AM meds with a glass of 1% milk, tends to calm my stomach enough to get on with my day.
As for the fatigue, and the lack of energy, I had to force myself to rise and do a little more each and every day. Now I am at the point where my bad days are fewer and farther between.
Most important of all, though, is to make sure your transplant team is aware of this. don't wait until your annual visit, call your coordinator and explain your symptoms.
I know also, that we are told to avoid sun like vampires, but I have found that spending a little time in the sun each day (with the necessary precautions) brings me an immense boost of energy.
I hope this helps a little. feel free to message me if I can be of any help.

Comment by Allie on August 17, 2010 at 6:43pm

Hi everyone. I had my tx in November 2009 and I am nauseous everyday and exhaused and spend a lot of the day in bed. Was this normal for most poeple? When did you finally get back to being a normal person again?

Comment by Suzanne Torio on August 15, 2010 at 7:16pm

That's funny,I'm going to have to try that magic elixer myself! Any specific kind of water filter that was recommended?

Comment by Paula M. Rice on August 15, 2010 at 7:08pm

Ah Lawrence. You've discovered the magic elixer which I'm convinced will cure almost anything that ails you! Over the last few years, I've brought several people over to the "dark chocolate" side. It's actually the 1st. thing I reach for when I have a major case of the WTF's!. LOL. About your sodium levels, 1 of my docs rec. using a water filter/NOT bottled water. There's a huge dif. Hugs & luv, Paula

Comment by Lawrence R. Decoste on August 15, 2010 at 6:58pm

my blood pressure goes all over the plac its tough because are meds make things go up and down its mastering the science of getting the levels right and its hard docs try there hardest i find excercise brings it down also dark chocolate after I eat it

Comment by Jill Schro on August 15, 2010 at 3:29pm

Thanks Paula, you are always so positive! Jill

Comment by Michael Strane on August 15, 2010 at 2:47pm

Hey Charline,

While I am not even two years out, I've had similar troubles with my blood pressure. Basically, when I'm on a beta blocker , my bp gets too low, and when I'm not my bp edges too high and my heart rate goes through the roof. I'm already on a super-low dose of atenolol, so I don't know if there is anywhere for me to go med wise. Unfortunately I don't really have any suggestions, but I feel your frustration.

Comment by Charline Conger on August 15, 2010 at 8:50am

Hi everyone, have just joined recently. Learned about transplantscafe.com from a lady bowling in the transplant games in Madison,Wis. I have had my heart transplant 20 yrs,be 21 in November. Like everyone, have had my up and downs. Recently decided to lose some of the lovely weight I gained, being on prednisone. Down over 30 lbs.,with that feel alot better, more energy, and the best of all,bloodpressure has fallen. The problem it does go too low and feel tire, but noticed in reading comments that happens to others,We all are so blessed

Comment by Paula M. Rice on August 14, 2010 at 3:27pm

Congrats, Jill. You're finally there, again! LOL?! I'll Pray that nothing else pops up. Hugs & Blessings, Paula

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