dialysis

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Comment by Catherine von Ruhland on February 3, 2010 at 12:30pm

I moaned to my consultant and he simply shrugged his shoulders and said 'it's the dieticians, not us'. Which was pretty feeble of him. Fortunately, I was at the NHS hospital for a few years beforehand so I have a general idea of my low potassium, low phosphate, low fluid diet, but it's nice to have a check-up every so often. The doctor also claimed that those of us across the road will be returning within the next few months to the NHS hospital for treatment so the problem will be solved, but the private nurses are so far denying we're to leave, so I'm not so sure. I should comlpain to the NHS hospital ombudsman, I think.

Comment by Rich on February 3, 2010 at 12:22pm

Oh, that's not good. I would definitely talk with your nephrologist and let them know what's going on there. I dialysized with Davita so maybe their services are different. I believe that those services are included in the $70,000.00 per month that you get charged for dialysis services. So do you have any diet restrictions at all? Has anyone told you anything about what to eat and what not to eat to keep your phosphorous, potassium, calcium, albumin, iron levels in check?

Comment by Catherine von Ruhland on February 3, 2010 at 12:08pm

Hi Rich,
I'm in a very weird posiiton whereby, even thuogh I am an NHS patient and entitled to the service of a renal dietitician, because me and a few other patients have been farmed out to the private hospital across the road, we don't get any dietary advice! So, for the past 2-3 years, I have received no dietary help from the renal dept that is supposed to be looking after me!!

Comment by Rich on February 2, 2010 at 11:07pm

I'm not on dialysis but I learned a whole lot when I was on it. Our dialysis center had a dietician that would try to visit each of us while we were on the machines to talk to us about our blood levels, foods to control certain things, etc. It was fascinating! I've really benefitted(sp?) a lot from the wealth of knowledge that the dietician had. It has really helped me to keep on track with my health and diet post tx. I know I'm not an expert but if anyone has some questions regarding renal diets, I'd be happy to try to help out.

Comment by Candie on November 9, 2009 at 8:47pm

Hello everyone! It's been awhile since I've been on here last but I hope everyone is doing well. The 24th is nearing and cannot wait to find out about my kidney tx. I'm scared, excited, anxious, and definetly nervous! But all will be fine. I just want to know if my live donor and myself have clearance! :) xxxCandie

Comment by Marie-Agnes Cederborg on October 13, 2009 at 6:35am

The new World Kidney Day Website is there!
Please visit www.worldkidneyday.org and sign up now!

Comment by Candie on September 15, 2009 at 5:57pm

Well at least your able to get online. We actually don't use beds but sit in recliners. On my days, it's half and half. Some people sleep and some watch tv and are up. We also have some around my age and some older. A mixture of ages. And some do keep to themselves. But luckily I'm always sitting by someone who likes to chat. Once a month (or so) we play "phosphorus bingo." They only play it like twice. It would be nice if they played it a bit longer as it does make time go by....but the girl who does it also has to do reuse or is a tech that day also. -

Comment by Chris B. on September 15, 2009 at 2:22pm

I bring my laptop when I go sometimes. I can usually get an internet signal, so that kills some time. I guess out place is less formal than yours. Most people get beds, and we are allowed to bring food and drink. Many people sleep, and many are older and keep to themselves. I'd play a game or something if they had it going though.

Comment by Candie on September 15, 2009 at 2:18pm

Hi Chris. Thanks. I know that at my unit, there are tv's but we have to wear headphones. We are not to eat or drink on the floor. So I was thinking of something fun to do while we just sit. Not like we can get up and move around:):)

Comment by Chris B. on September 15, 2009 at 2:15pm

That is nice of you Candie. At my dialysis ward we have volunteers that bring cookies and drinks. It is very much appreciated, but there are no real activities to do. Everyone had a television, but it gets pretty boring.

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