Canada residents touched by transplantation

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Canada residents touched by transplantation

Join this group if you have, or are waiting for a transplant, are a living donor, donor family member, work in the field of transplantation and you live in Canada.

Members: 53
Latest Activity: Sep 24, 2013

Discussion Forum

Biopsy salute to you all!

Started by Tonja :D Sep 24, 2013. 0 Replies

Have you ever heard of the term biopsy salute. A gentlemen I shared the waiting room with one time. Gave me the biopsy salute to fingers placed to the neck with a salute gesture lol I thought that…Continue

Why is it Canadian's don't Communicate like American's ?

Started by Debbie. Last reply by anthea garrick May 10, 2011. 11 Replies

Please share your thoughts and stories and get the Canadian part of The Transplant Cafe going! Go on the U.S. site and the comments never stop. We need to share to get the word out...please, let's do…Continue

tac + hair loss

Started by Tammy F. Last reply by Cindy Wenaus May 8, 2011. 11 Replies

Hello All, I will be 6 months into my kidney transplant next week.I am on tacrolimus and have lost 1/2 my hair.I am thinking of switching to cyclosporin..the docs are hesitant because the tac is…Continue

Moving to Vancouver

Started by Laura. Last reply by Laura Dec 5, 2010. 2 Replies

I am just wondering if there is anyone living in Vancouver who could give me some information on there tx experience. Currently I am living in Toronto, Ontario (awaiting a 2nd liver) but am thinking…Continue

Cade Oil

Started by Tammy F. Last reply by Chris B. Sep 19, 2010. 1 Reply

Hello All, anybody know where to buy Cade Oil in Canada ?Continue

Comment Wall

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Comment by Donald on November 1, 2011 at 4:33pm
Why isn't this site Active? Joining because my family is from Nova Scotia. Anybody out there????????
Comment by Allan Walkey on May 8, 2011 at 8:03am
Happy Mom's Day Ladies... A fb friend Richard St. Armour sent me an interesting link to an article on transplants and donors in Canada. I hope you find it as interesting as I did. http://www.calgaryherald.com/health/Debate+organ+donation+needs+ope...
Take care of your selves.
Comment by joanne.mcbride on April 27, 2011 at 8:34pm
Six Month Transplanniversary

Check out my blog on my family's experience with multi heart transplants at recycledparts.blogspot.com...
Comment by Laura on January 11, 2011 at 4:47pm
I just wanted to send out a very special thank you to all the caregivers of us fellow tx patients. I certainly feel that without you, alot of us wouldnt be where we are today..strong, feeling positive, on the mend. You truly do make a difference. We may have our "bad", emotional filled days, but you stick by us..you are heroes.
Comment by Laura on September 2, 2010 at 10:08am
I just moved into an apt with my boyfriend two months ago and am on CPP (I have been unable to return to work - I am back on the liver tx list-) I recently tried to apply for ODSP and was denied because of my "receiving income from another source"> ODSP is saying that my boyfriend and I are common law and therefore I don't qualify. Has anyone else had difficulty getting ODSP?.I read KidneyKorner.com's reply and was curious. Thanks :)
Comment by Lina Spencer on August 11, 2010 at 8:21am
Hi everyone, I am from Whitby Ontario, I have familial amyloidosis. I had my liver transplant in Nov/09, since my liver was healthy just not in my body; I pass my liver to another in need of a liver. Hope his is doing well and his family. If anyone else has this condition I would like to hear from you. I am so very thankful that I have difficulty in expressing my self but want to shout out loud on my experiences/journey. Thank you Gift of Life.
Comment by Jane Tucker on April 17, 2010 at 9:49pm
Hi Sandra, i wonder might you be going to the US games this summer, to Madison? I am. I hope you are. Anyone else going to these games? I am going as a cheerleader and also as one in waiting. Should be exciting. Anyone going to the Canadian CTA games in Quebec?
Comment by Jane Tucker on April 17, 2010 at 9:24pm
I am also from London, Ontario. I have been stable, and been assessed for a heart transplant since 1994. It's a very long time. I feel extremely blessed to have managed this long, however my life is restricted which brings challenges within it. I have much support which is so important. I also work extremely hard with a local London Association for awareness, and feel blessed to be on the provincial committee and local London Hospital Committee. Turning tragedy into a blessing, with much passion. My special partner is from Arizona and a heart recipient, so it is very interesting learning more within the system and awareness there. Has anyone waited this long for a heart before being listed as i am stable, it was thought i would need a heart 16 years ago? I'd love to hear your story. Also anyone from London who wishes to help us, please let me know we are always welcoming others to join us with awareness.
Comment by Sonia Maheu on March 14, 2010 at 11:55am
Participate in thesecond edition of the Relay for the importance and awareness of organ and tissue donation on april 25 in Sherbrooke (Quebec). Form a team of 2 to 6 people for running or walking. The event will lasts 4 hours (time for a heart transplant). Inscription fee is $80 per team. For more info leave me a message or go to www.poseungeste.com (sorry it's only in french for now) or sen an e-mail to info@poseungeste.com

I don't need to tell you the importance of the event do I?

Come and see me, I will be ther...Will you?
Comment by Marie-Agnes Cederborg on September 1, 2009 at 8:10am
Too many people ignore the close inter-relation between kidney diseases and diabetes or hypertension. Worldwide, 246 million people suffer from diabetes and the figure is expected to reach 380 million by 2025. Diabetic nephropathy affects a third of people suffering from diabetes. Sadly, less than half people diagnosed with diabetes undergo a screening test.
Next Word Kidney Day will be held on Thursday 11 March 2010 and will focus on Diabetes, the leading cause of kidney failure.

World Kidney Day offers a crucial, visible opportunity to inform and educate health policy-makers, people who are at highest risk of CKD, and the general public that kidney disease is common, harmful and treatable.

Join our World Kidney Day 2010 group and come to exchange your experience and ideas that could be proposed to World Kidney Day organisers over the world.

The success of World Kidney Day across the world is only possible because of each of you!
 

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Latest Activity

Frank Colangelo posted a status
"Yes I am."
8 hours ago
HDHONEY replied to Frank Colangelo's discussion Vomiting and Diarrhoea after being exposed to chemicals
"Frank  r u having these problems just when working.  I also have had a liver transplant. Weird that stuff is not agreeing with u. hope u can get answers, sure its not ur med "
yesterday
Frank Colangelo joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Friday
Karen Weddick left a comment for Michael
"Hi Michael: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Thursday
Karen Weddick left a comment for Kristi Ide
"Hi Kristi: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Thursday
Frank Colangelo posted a status
"Hi There is anybody online"
Thursday
Frank Colangelo posted a discussion

Vomiting and Diarrhoea after being exposed to chemicals

Hello AllJust under three years I had a liver transplant due to cirrohossis and Hep C.  I am back at work but seem to experience vomiting and diarrhoea if I have been exposed to chemicals of any sort.  Understanding fertilser and blood and bone for gardens is a no no for me. My medical team cannot give me any answers and I am wondering if anybody has experienced the same symptoms.  The episodes seem to last up to four to five hours at a time and leaves me very fatigued and wash out.  Hoping someone can give me some answers.Kind regardsFrankSee More
Thursday
Profile IconKristi Ide, Michael , Cathy Estrada and 2 more joined TransplantCafe.com - The Gift of eLife!
Thursday
Gene Cost posted a discussion

Working after Transplant

Hello to everyone,My name is Gene and I was transplanted almost 3 years ago. I suffered from liver failure as a result of Hep C. I am 59 years old now. I suffered a torn rotator cuff as a result of my positioning during my transplant and it took some time to recover from that. I did not have any surgery I simply learned to live with it. I also incurred steroid induced diabetes as a result of the transplant and now have a fair amount of neuropathy in my feet. I have found that I fatigue much easier than I once did. My doctor has concluded that I have also suffered some cognitive impairment and as a result of my illness and I have been declared fully disabled. After a year of rehabilitation I returned to work part time delivering auto parts. I have been working for 18 months now. By federal law I can earn $1070/month and continue to receive disability. I find it difficult to live on my part time wages however I have determined that in order to justify going to work full time I would…See More
Wednesday
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Yep, Dallas Buyers Club is a great story and example for sure! Personally, I'm with you. Professionally, TC couldn't be involved, unfortunately. And it really is unfortunate because it would help so many people. Sort of like organ donation…"
Tuesday
John Presley Robertson commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Nelson, I understand the laws, but we all know a lot of meds are discarded by patients that don't need them anymore. I don't expect the pharmacies to give it away but there must be away for transplant recipients to do something. Remember…"
Tuesday
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Hi John, I think that would be a great service for the transplant community and other patients too. However, I don't think the laws allow this, unfortunately. You're right about there being a great need for a program like this for…"
Monday
Caring 4 Carrie posted a status
"How Are Diabetics Affected By Hypoglycemia? Too little food or skipping a meal; too much insulin or diabetes pills; more active than usual."
Nov 16
John Presley Robertson commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Why don't we develop a program where taransplant patients that have changed meds can share it with those that need that med. and make it free."
Nov 16
Matt Lawson updated their profile
Nov 16
Matt Lawson and William R, Armstrong are now friends
Nov 16

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