Canada residents touched by transplantation

Information

Canada residents touched by transplantation

Join this group if you have, or are waiting for a transplant, are a living donor, donor family member, work in the field of transplantation and you live in Canada.

Members: 53
Latest Activity: Sep 24, 2013

Discussion Forum

Biopsy salute to you all!

Started by Tonja :D Sep 24, 2013. 0 Replies

Have you ever heard of the term biopsy salute. A gentlemen I shared the waiting room with one time. Gave me the biopsy salute to fingers placed to the neck with a salute gesture lol I thought that…Continue

Why is it Canadian's don't Communicate like American's ?

Started by Debbie. Last reply by anthea garrick May 10, 2011. 11 Replies

Please share your thoughts and stories and get the Canadian part of The Transplant Cafe going! Go on the U.S. site and the comments never stop. We need to share to get the word out...please, let's do…Continue

tac + hair loss

Started by Tammy F. Last reply by Cindy Wenaus May 8, 2011. 11 Replies

Hello All, I will be 6 months into my kidney transplant next week.I am on tacrolimus and have lost 1/2 my hair.I am thinking of switching to cyclosporin..the docs are hesitant because the tac is…Continue

Moving to Vancouver

Started by Laura. Last reply by Laura Dec 5, 2010. 2 Replies

I am just wondering if there is anyone living in Vancouver who could give me some information on there tx experience. Currently I am living in Toronto, Ontario (awaiting a 2nd liver) but am thinking…Continue

Cade Oil

Started by Tammy F. Last reply by Chris B. Sep 19, 2010. 1 Reply

Hello All, anybody know where to buy Cade Oil in Canada ?Continue

Comment Wall

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Comment by Donald on November 1, 2011 at 4:33pm
Why isn't this site Active? Joining because my family is from Nova Scotia. Anybody out there????????
Comment by Allan Walkey on May 8, 2011 at 8:03am
Happy Mom's Day Ladies... A fb friend Richard St. Armour sent me an interesting link to an article on transplants and donors in Canada. I hope you find it as interesting as I did. http://www.calgaryherald.com/health/Debate+organ+donation+needs+ope...
Take care of your selves.
Comment by joanne.mcbride on April 27, 2011 at 8:34pm
Six Month Transplanniversary

Check out my blog on my family's experience with multi heart transplants at recycledparts.blogspot.com...
Comment by Laura on January 11, 2011 at 4:47pm
I just wanted to send out a very special thank you to all the caregivers of us fellow tx patients. I certainly feel that without you, alot of us wouldnt be where we are today..strong, feeling positive, on the mend. You truly do make a difference. We may have our "bad", emotional filled days, but you stick by us..you are heroes.
Comment by Laura on September 2, 2010 at 10:08am
I just moved into an apt with my boyfriend two months ago and am on CPP (I have been unable to return to work - I am back on the liver tx list-) I recently tried to apply for ODSP and was denied because of my "receiving income from another source"> ODSP is saying that my boyfriend and I are common law and therefore I don't qualify. Has anyone else had difficulty getting ODSP?.I read KidneyKorner.com's reply and was curious. Thanks :)
Comment by Lina Spencer on August 11, 2010 at 8:21am
Hi everyone, I am from Whitby Ontario, I have familial amyloidosis. I had my liver transplant in Nov/09, since my liver was healthy just not in my body; I pass my liver to another in need of a liver. Hope his is doing well and his family. If anyone else has this condition I would like to hear from you. I am so very thankful that I have difficulty in expressing my self but want to shout out loud on my experiences/journey. Thank you Gift of Life.
Comment by Jane Tucker on April 17, 2010 at 9:49pm
Hi Sandra, i wonder might you be going to the US games this summer, to Madison? I am. I hope you are. Anyone else going to these games? I am going as a cheerleader and also as one in waiting. Should be exciting. Anyone going to the Canadian CTA games in Quebec?
Comment by Jane Tucker on April 17, 2010 at 9:24pm
I am also from London, Ontario. I have been stable, and been assessed for a heart transplant since 1994. It's a very long time. I feel extremely blessed to have managed this long, however my life is restricted which brings challenges within it. I have much support which is so important. I also work extremely hard with a local London Association for awareness, and feel blessed to be on the provincial committee and local London Hospital Committee. Turning tragedy into a blessing, with much passion. My special partner is from Arizona and a heart recipient, so it is very interesting learning more within the system and awareness there. Has anyone waited this long for a heart before being listed as i am stable, it was thought i would need a heart 16 years ago? I'd love to hear your story. Also anyone from London who wishes to help us, please let me know we are always welcoming others to join us with awareness.
Comment by Sonia Maheu on March 14, 2010 at 11:55am
Participate in thesecond edition of the Relay for the importance and awareness of organ and tissue donation on april 25 in Sherbrooke (Quebec). Form a team of 2 to 6 people for running or walking. The event will lasts 4 hours (time for a heart transplant). Inscription fee is $80 per team. For more info leave me a message or go to www.poseungeste.com (sorry it's only in french for now) or sen an e-mail to info@poseungeste.com

I don't need to tell you the importance of the event do I?

Come and see me, I will be ther...Will you?
Comment by Marie-Agnes Cederborg on September 1, 2009 at 8:10am
Too many people ignore the close inter-relation between kidney diseases and diabetes or hypertension. Worldwide, 246 million people suffer from diabetes and the figure is expected to reach 380 million by 2025. Diabetic nephropathy affects a third of people suffering from diabetes. Sadly, less than half people diagnosed with diabetes undergo a screening test.
Next Word Kidney Day will be held on Thursday 11 March 2010 and will focus on Diabetes, the leading cause of kidney failure.

World Kidney Day offers a crucial, visible opportunity to inform and educate health policy-makers, people who are at highest risk of CKD, and the general public that kidney disease is common, harmful and treatable.

Join our World Kidney Day 2010 group and come to exchange your experience and ideas that could be proposed to World Kidney Day organisers over the world.

The success of World Kidney Day across the world is only possible because of each of you!
 

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Latest Activity

Caring 4 Carrie posted a status
"Someone's Story: This is Micah. He's seeking a kidney donor. Kindly consider to visit his Facebook page. http://j.mp/XJdwdO"
3 hours ago
Caring 4 Carrie posted a blog post

The Month Of September is 'National Hispanic Heritage Month.'

According to the National Diabetes Educational Program, one in ten Hispanics over the age of 20 have been diagnosed with Diabetes. However, small changes in lifestyle living, e.g., healthier eating & exercising are key. Nugget: Exam=Prevention.See More
3 hours ago
Ramona replied to Stefan's discussion Hello, I am new here
"Stefan, Hang in there - I have been caregiver to my husband for 7 years, and he's been through many surgeries and illnesses....and we both have our worries and down days.  I will keep you in my thoughts - and hope for the best possible…"
Saturday
Parent of B posted a discussion

Cardiac biopsy - how often?

Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Friday
Stefan posted a discussion

Hello, I am new here

Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
Friday
Stefan liked Stefan's profile
Friday
Stefan left a comment for Stefan
"My wife is a double lung transplant of 15 years"
Friday
Stefan is now a member of TransplantCafe.com - The Gift of eLife!
Thursday
Jeff Clardy posted a discussion

Surgery after transplant

I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
Wednesday
Karen Harrill replied to Phil Keyes's discussion Post transplant blues
"Hi Phil, Before transplant I had hepatic encephalopathy which my gastroenterologists treated with medication. My reflexes were slow and my judgement was often faulty. Until the fall before my following Spring transplant these episodes were few. They…"
Tuesday
Karen Harrill replied to Bornali's discussion In distress ..may be just need to hang on in the group Acute Liver Failure Transplants
"Hi there! I notice people are not that active on this page. I had acute liver failure, had a transplant in 2011. I take 3mg of Prograf only. I also, on the advice of my Mayo Clinic transplant surgeons take the vitamins Calcium, E and magnesium. I…"
Tuesday
Karen Harrill added a discussion to the group Acute Liver Failure Transplants
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My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
Tuesday
Karen Harrill joined TransplantCafe.com's group
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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
Tuesday
Profile IconKaren Harrill, Parent of B and Ali Barton joined TransplantCafe.com - The Gift of eLife!
Tuesday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Makes sense to me. Good one David."
Sep 15
Ali Barton and Karen Weddick are now friends
Sep 15

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