Canada residents touched by transplantation

Comment

Comment by Laura on September 2, 2010 at 11:08am

I just moved into an apt with my boyfriend two months ago and am on CPP (I have been unable to return to work - I am back on the liver tx list-) I recently tried to apply for ODSP and was denied because of my "receiving income from another source"> ODSP is saying that my boyfriend and I are common law and therefore I don't qualify. Has anyone else had difficulty getting ODSP?.I read KidneyKorner.com's reply and was curious. Thanks :)

Comment by Lina Spencer on August 11, 2010 at 9:21am

Hi everyone, I am from Whitby Ontario, I have familial amyloidosis. I had my liver transplant in Nov/09, since my liver was healthy just not in my body; I pass my liver to another in need of a liver. Hope his is doing well and his family. If anyone else has this condition I would like to hear from you. I am so very thankful that I have difficulty in expressing my self but want to shout out loud on my experiences/journey. Thank you Gift of Life.

Comment by Jane Tucker on April 17, 2010 at 10:49pm

Hi Sandra, i wonder might you be going to the US games this summer, to Madison? I am. I hope you are. Anyone else going to these games? I am going as a cheerleader and also as one in waiting. Should be exciting. Anyone going to the Canadian CTA games in Quebec?

Comment by Jane Tucker on April 17, 2010 at 10:24pm

I am also from London, Ontario. I have been stable, and been assessed for a heart transplant since 1994. It's a very long time. I feel extremely blessed to have managed this long, however my life is restricted which brings challenges within it. I have much support which is so important. I also work extremely hard with a local London Association for awareness, and feel blessed to be on the provincial committee and local London Hospital Committee. Turning tragedy into a blessing, with much passion. My special partner is from Arizona and a heart recipient, so it is very interesting learning more within the system and awareness there. Has anyone waited this long for a heart before being listed as i am stable, it was thought i would need a heart 16 years ago? I'd love to hear your story. Also anyone from London who wishes to help us, please let me know we are always welcoming others to join us with awareness.

Comment by Sonia Maheu on March 14, 2010 at 12:55pm

Participate in thesecond edition of the Relay for the importance and awareness of organ and tissue donation on april 25 in Sherbrooke (Quebec). Form a team of 2 to 6 people for running or walking. The event will lasts 4 hours (time for a heart transplant). Inscription fee is $80 per team. For more info leave me a message or go to www.poseungeste.com (sorry it's only in french for now) or sen an e-mail to info@poseungeste.com

I don't need to tell you the importance of the event do I?

Come and see me, I will be ther...Will you?

Comment by Marie-Agnes Cederborg on September 1, 2009 at 9:10am

Too many people ignore the close inter-relation between kidney diseases and diabetes or hypertension. Worldwide, 246 million people suffer from diabetes and the figure is expected to reach 380 million by 2025. Diabetic nephropathy affects a third of people suffering from diabetes. Sadly, less than half people diagnosed with diabetes undergo a screening test.
Next Word Kidney Day will be held on Thursday 11 March 2010 and will focus on Diabetes, the leading cause of kidney failure.

World Kidney Day offers a crucial, visible opportunity to inform and educate health policy-makers, people who are at highest risk of CKD, and the general public that kidney disease is common, harmful and treatable.

Join our World Kidney Day 2010 group and come to exchange your experience and ideas that could be proposed to World Kidney Day organisers over the world.

The success of World Kidney Day across the world is only possible because of each of you!

Comment by Laura on July 3, 2009 at 11:23pm

I am a liver recipient from Toronto, Ontario and am new to this site. I am happy to be part of this group and to meet other transplant patients from Canada. It is nice to have other people to talk to :)

I have Trillium to help cover some of the costs of my medication but with what I do need to pay, it is a struggle. Right now I am only on Prograf and Ursidol and they both are expensive. It would be nice if the whole amount of transplant recipients medication were covered.

Guess it is the price we have to pay for our health

Comment by KidneyKorner.com on July 3, 2009 at 4:58pm

I wish Ontario was the same as BC. I talked to a lady in BC who runs a kidney forum and she told how all meds are covered there. In Ontario mine are only covered because I am on ODSP (Ontario Disability Support Program).

Comment by Sonia Maheu on June 13, 2009 at 11:09am

Thanks Chris

Comment by Chris B. on June 12, 2009 at 6:42pm

Hi Sonia,

In British Columbia the medications for transplant receipents are covered by the health care plan. I can tell you that it is about $250 per month for me, based on my dosages. It really depends on what levels of rejection medications they put you on. I take 1.5 Tacrolimis and 250mg or Cellcept, twice a day. Not sure how they work it in Quebec though. Maybe the province covers some of it.

Best of luck.

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