Acute Liver Failure Transplants

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Comment by Jueregen ZADROCK on September 1, 2010 at 3:01pm

After my Tx on Dec 25,1998 I had a breif spell with rejection but worked through that. When I got home I watched Discovery Health on TV and oddly enough they had lots of show on transplants and what is know as "cell memory"; ie, when your body and mind have "feelings" that something/someone is there with (inside) you. This is what I felt. I had several behaviors and oddities that weren't me. I had never felt like that before. At any rate, some of these people had decided to try dropping their immuno-suppresant meds because they felt the organ was "theirs". I stopped taking all my transplant related meds about 6 years ago (I am 12 years out now-13 in Dec) and everything is fine with my liver despite chroonic HepC. I have not had any liver related illnesses since I stopped. I don't reccommend this to everyone. I stopped because I was so afraid of the side effects of the Prograf (tumors) and had developed lots of lumps all over my body since starting on Prograf, but thewy are all gone since I stopped. My LFT's are about the same as they were 10 years ago and have never really gone up too much. I've been lucky, but then again I was lucky to begin with when I finally got a liver after waiting so long. I hope everyone is doing well, too and God bless you all and continued good health!!

Comment by Mark E on January 20, 2010 at 1:12pm

hi Jennifer its great to be alive isn't it! every day is a gift for us! none of us would be here if it wasn't for our gift of life, I passed over just prior to my transplant but was saved ! I have a purpose to fulfill- don't know what yet- but I too have that same feeling when I go for labs and meet and talk to all our fellow walking miracles! I am 25months post and doing ok, but Im still scared sometimes!

Comment by Jennifer Roberts on January 20, 2010 at 9:40am

Wow...I sit here in awe with tears streaming down my face because I can relate to so many stories on here. We are all walking miracles and I am so blessed and yet so scared at the same time but, I give all the glory to God that I am still here and doing well. No rejection and it's been almost 3 months. I hope everyone that reads this has a blessed day. You'll all be in my prayers!

Comment by Marie-Agnes Cederborg on September 1, 2009 at 9:09am

Too many people ignore the close inter-relation between kidney diseases and diabetes or hypertension. Worldwide, 246 million people suffer from diabetes and the figure is expected to reach 380 million by 2025. Diabetic nephropathy affects a third of people suffering from diabetes. Sadly, less than half people diagnosed with diabetes undergo a screening test.
Next Word Kidney Day will be held on Thursday 11 March 2010 and will focus on Diabetes, the leading cause of kidney failure.

World Kidney Day offers a crucial, visible opportunity to inform and educate health policy-makers, people who are at highest risk of CKD, and the general public that kidney disease is common, harmful and treatable.

Join our World Kidney Day 2010 group and come to exchange your experience and ideas that could be proposed to World Kidney Day organisers over the world.

The success of World Kidney Day across the world is only possible because of each of you!

Comment by Michelle on June 2, 2009 at 11:51am

Hi all! I haven't been on for a while, and that's because everything has been good. I am almost 10 months out already! They finally took me off Prednesone (spelling?) My bloating, which I thought was not normal no matter what the docs told me, is going down. Some days I'm more bloated than others. Hope everyone is doing well.

Comment by Erica Forbes on June 2, 2009 at 11:32am

my daughter depended on TPN and lipids for 10 months for her nutrition.... and thats what caused her liver damage. She was YELLOW when she went in for her transplant. I never noticed how yellow she was til i look at her now then look at pics of her before the transplant.

Comment by Heather on April 4, 2009 at 4:42pm

Even if your body is slow on responding to treatment the doctors get nervous because sometimes it causes your liver to have chronic rejection. That is what my daughter has.

Comment by TransplantCafe.com on April 3, 2009 at 3:14pm

Rejection during the first few days after a transplant is pretty common from what I understand. Docs are prepared for it and know how to handle it well. I wouldn't worry too much about rejection with all the follow ups and great meds we're given..

Comment by Holly Werlein (Holdol) on April 3, 2009 at 3:02pm

Have any of you already been thru rejection or no? I did 2-3 weeks after and what is weird is that my body was really slow in responding to the steriods, so docs were kind of nervous, but everything is good now thank God! Lynds, I do get scared everytime I feel flu like symptoms too....

Comment by Heather on April 3, 2009 at 1:21pm

well we will get our evaluation again 2 days before she turns 4. I don't know if I should be happy or not but my anxiety is so high I had my doctor raise my dosage of anxiety meds. Hopefully I won't freak out this time. I hope everyone feels well and stays out of the hospital(no illnesses). Happy Easter.

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