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Acute Liver Failure Transplants

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Acute Liver Failure Transplants

A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.

Location: TransplantCafe.com
Members: 30
Latest Activity: Feb 3

Discussion Forum

Suzy Lilly Saettele

What caused your ALF? 2 Replies

I just had my 4 year liver transplant anniversary. I love this board because your stories are so much like mine! I felt a little bad, like the flu. Then turned very yellow. Then felt worse. Then went…

Started by Suzy Lilly Saettele. Last reply by Sandi Orr Feb 3.

TransplantCafe.com

How did you find out you had a liver transplant and how did you feel? 5 Replies

For me, I woke up and a single doctor who I'll never forget (Natalie Murray) was doing I don't know what and smiling at me. I ask her "what happened??" to which she replies "everything went well with…

Tagged: out, finding, acute, transplant, liver

Started by TransplantCafe.com. Last reply by Suzy Lilly Saettele Dec. 10, 2009.

Acute Liver Failure News

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Mark E Comment by Mark E on January 20, 2010 at 1:12pm
hi Jennifer its great to be alive isn't it! every day is a gift for us! none of us would be here if it wasn't for our gift of life, I passed over just prior to my transplant but was saved ! I have a purpose to fulfill- don't know what yet- but I too have that same feeling when I go for labs and meet and talk to all our fellow walking miracles! I am 25months post and doing ok, but Im still scared sometimes!
Jennifer Roberts Comment by Jennifer Roberts on January 20, 2010 at 9:40am
Wow...I sit here in awe with tears streaming down my face because I can relate to so many stories on here. We are all walking miracles and I am so blessed and yet so scared at the same time but, I give all the glory to God that I am still here and doing well. No rejection and it's been almost 3 months. I hope everyone that reads this has a blessed day. You'll all be in my prayers!
Marie-Agnes Cederborg Comment by Marie-Agnes Cederborg on September 1, 2009 at 9:09am
Too many people ignore the close inter-relation between kidney diseases and diabetes or hypertension. Worldwide, 246 million people suffer from diabetes and the figure is expected to reach 380 million by 2025. Diabetic nephropathy affects a third of people suffering from diabetes. Sadly, less than half people diagnosed with diabetes undergo a screening test.
Next Word Kidney Day will be held on Thursday 11 March 2010 and will focus on Diabetes, the leading cause of kidney failure.

World Kidney Day offers a crucial, visible opportunity to inform and educate health policy-makers, people who are at highest risk of CKD, and the general public that kidney disease is common, harmful and treatable.

Join our World Kidney Day 2010 group and come to exchange your experience and ideas that could be proposed to World Kidney Day organisers over the world.

The success of World Kidney Day across the world is only possible because of each of you!
Michelle Comment by Michelle on June 2, 2009 at 11:51am
Hi all! I haven't been on for a while, and that's because everything has been good. I am almost 10 months out already! They finally took me off Prednesone (spelling?) My bloating, which I thought was not normal no matter what the docs told me, is going down. Some days I'm more bloated than others. Hope everyone is doing well.
Erica Forbes Comment by Erica Forbes on June 2, 2009 at 11:32am
my daughter depended on TPN and lipids for 10 months for her nutrition.... and thats what caused her liver damage. She was YELLOW when she went in for her transplant. I never noticed how yellow she was til i look at her now then look at pics of her before the transplant.
Heather Comment by Heather on April 4, 2009 at 4:42pm
Even if your body is slow on responding to treatment the doctors get nervous because sometimes it causes your liver to have chronic rejection. That is what my daughter has.
TransplantCafe.com Comment by TransplantCafe.com on April 3, 2009 at 3:14pm
Rejection during the first few days after a transplant is pretty common from what I understand. Docs are prepared for it and know how to handle it well. I wouldn't worry too much about rejection with all the follow ups and great meds we're given..
Holly Werlein (Holdol) Comment by Holly Werlein (Holdol) on April 3, 2009 at 3:02pm
Have any of you already been thru rejection or no? I did 2-3 weeks after and what is weird is that my body was really slow in responding to the steriods, so docs were kind of nervous, but everything is good now thank God! Lynds, I do get scared everytime I feel flu like symptoms too....
Heather Comment by Heather on April 3, 2009 at 1:21pm
well we will get our evaluation again 2 days before she turns 4. I don't know if I should be happy or not but my anxiety is so high I had my doctor raise my dosage of anxiety meds. Hopefully I won't freak out this time. I hope everyone feels well and stays out of the hospital(no illnesses). Happy Easter.
Holly Werlein (Holdol) Comment by Holly Werlein (Holdol) on April 2, 2009 at 11:19pm
I went to my docs for a totally unrelated appt and my eyes happened to be yellow. They tested my liver enzymes, obviously way eleveated and I was admitted. I remember 3 days of being in the hospital and them running tests finding nothing wrong. I woke up not nowing what had happened to me too! It's so crazy! My parents told me I had 20% function and docs immediately put me 1st in the nation for a liver and I got one in less than 8 hours! They never found out what happened to my liver either and it's scary to me. What a miracle it is that we are all alive! I had rejection 2 weeks after,but have been doing great ever since then. I'm going to the World Transplant Games this year and am so excited :) Is anyone else? I would love to talk with others...
 

Members (29)

TransplantCafe.com tinye Suzy Lilly Saettele Heather Michelle Sandi Orr Annabelle JC Kim Burdakin Mallory Smith Michele mike sobusiak lynds Joanne DeMary Luke Thomas Tritton Holly Werlein (Holdol) john curran Mark E David Erica Forbes Lesley Hines Joe Leake Marie-Agnes Cederborg Julian Ramona Maria B Brooke S Jennifer Roberts Bonnie L. Romero
 
 

Latest Activity

RichardT updated their profile
4 minutes ago
29 minutes ago
Been on Prograf 1+1 and myfortic 360+360 for 23 months now. I have had somme minor problems with my sugar. I am now hyplogycemic+diabetic. I can deal with that . I just have to eat continuosly. No hair loss at all. In fact,just the opposite. More ha…
1 hour ago
I was 18 when I became ill. What are you hobbies??
3 hours ago
MMmm I would have as much as possible done. lol. Anywhere they can massage without hurting me right now. Get a manicure, hair colored, make up done, and a facial. =D
3 hours ago
-- If you ever feel a little bit stupid, just dig this up and read it again; you'll begin to think you're a genius.. ,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,, (On September 17, 1994, Alabama's Heather Whitestone was selected as Miss…
6 hours ago
Hi Carlos, It is my understanding that in the 1970s Congress passed a resolution to help cover medical costs of people with serious illnesses by putting them on Medicare. They started with kidney failure and began covering transplants. But the cost…
9 hours ago
SO TRUE
9 hours ago
lisa michelle hartley added a discussion
I am a mother of a 20 year old that has.been diagnois as a 12 year old . They said shw could compete in the 11-13 years old group but ahe is not allowed to get any medals. I find this unfair . Who else can help me make them understand this is not fa…
9 hours ago
I Totally agree with you LOL I'm one of the extra special recipient I had Liver (2004) and a Kidney (2009) PKD I have imedicare and a private ins, and the premiums are costing us 860.00 per mo. we are currently in forclosure and all our retirement s…
10 hours ago
Hi everyone. I was implanted with an LVAD 4/30/08.It will be 2 years since i was listed for my heart. No calls yet
11 hours ago
For those on the waiting list. Come find support and encouragement from others who are waiting.
11 hours ago

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