Comment

Comment by vickie steers on May 1, 2011 at 3:11pm

Hi everyone i have been on cyclo or its brand name Neoral for 16 years ive just had 6 months off of neoral and went over to prograf but my headaches did not get any better and i have had huge hair loss so im alot better off on neoral

Comment by Kevi Stringer on March 22, 2011 at 10:24pm

I'm on the brand name drug: Neoral. It's the same as Cyclosporine, although I thought it was a newer drug. I'm new to this "transplant thing", though! New heart: 5/28/10

Comment by Jeffrey C. Cabrera on July 3, 2010 at 11:48pm

I've been on cyclo, 50 x2/day, since day one back in "93". Besides the shakes and the skin discoloration and chronic diahrrea, I love it!! HaHaHa..:)

Comment by Eileen Forman on February 1, 2010 at 7:36am

I take gengraf 100mg twice a day. I have had gum surgery several times. I thought about switching to prograf but then decided the devil I know is better than the one I don't. Plus I am doing well and don't want to mess with that. I'll just keep having gum surgery when it gets too bad.

Comment by Isidoritarc on January 24, 2010 at 2:18pm

I have used her for 13 years, initially it( gave me hipertricosis hahha I do not even tell him since, I was meeting, but already after a time these effects are passing, up to today I have never had disadvantages with this drug. When I was pregnant they lowered the dose and to the term they re-established it, without problem.
Regards to all and fondness from Chile

Comment by Paula M. Rice on January 24, 2010 at 11:14am

I'm on Cyclo., 50mg.x2 & have been for almost 9 years. I didn't do well on Neoral. I was told the pred. caused my "moon" face; weight gain & hairiness. They LIED?! Don't even want to hear that. I've never had a tx prob. & would rather have moon face than risk changing meds "just" for the sake of my vanity. Although... It would be heaven to look "normal, again. Closer to the model I was than the blimp I am now! Started back on my pre-tx diet & am going back in the pool. Hopefully that will help. Any other suggestions? Hugs & Blessings, Paula

Comment by Lawrence R. Decoste on September 12, 2009 at 2:52pm

Max i been through it too moon face actually i got one again since they up my rejection meds its terrible but you will get used to it. I got switched to prograf from neoral , Neoral makes your gums bleed it was terrible.

Comment by Max Patel on September 12, 2009 at 2:07pm

Nearly 3 months since my Liver transplant, love the sleep! but boy do those full moons now scare the my kids! They convinced that I'm turning into a were-wolf!!,
I have unbelievable hair growth(my doc said it was a side effect of Cyclosporine after he stopped laughing!!!), he did say that my baldness on my head will not be helped by this drug). Currently taking 200mg in the morning and 200mg at night, I was one of those 1 in a hundred that had major reactions with prograv, I went loony for 2 weeks after my transplant because of it, Onece they switched me to cyclosporin I made a really quick recovery, has anyone else been thru the "looney" phase for more then 24 hours?

Comment by Lawrence R. Decoste on July 21, 2009 at 9:08pm

My doctor just switched me to prograf from neoral because my gums were inflamed anyone else??? I was gonna go to get the tissues cut but my doc said with prograf the gums will shrink back is this true???

Comment by Tracy Holmes on May 6, 2009 at 1:53am

i have been on cyclosporin for 23 years, i take 100mg in the morning and 75mg at night,, i am really well, they were worried about my kidneys about 3 years ago, they lowered the dose and put me on azathoprine as well... i get the shakes

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