"My insurance company forced me to switch to generic Prograf two months ago. I have not felt the same since, in fact, my TX clinic was afraid I was in rejection. Thankfully that was not the case, but now in the process of appealing to ins…"
"Hi Holly, It's been awhile since I've been on this site but am glad to be back. I've been trying to add a photo but keep getting an error message. It says to try another photo. I've attempted at least 6 photos…"
I have had two liver transplants, one in 2012 and one in 2013. I have been in chronic rejection for 2 years. My liver enzymes are trending downward which is great, bur I live with horrible itching daily. Has anyone experienced this and if so, how or what can I use to stop the itch? The itching is mostly in my feet and hands, but sometimes all over my body. It's not really the skin that itches, It's under the skin! It kind of feels like the itching is in my veins....running through the blood. Cold water is all that seems to temporarily take it away. Heat triggers it! Please respond if anyone knows more than I do.Thank you,KathySee More
"alpha 1 was what I was told? transplant on Oct. 4 2003. they tell me that it can not affect my new liver? but I,m having some issue now, the rest of the family where tested and looks like I drew lucky the straw! I very happy with things! …"
This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Wow! I can't believe all that has happened since I last signed into this site. After already having been through heart transplants with my girls (now adults), my ten year old grandson needs one. He was diagnosed with advanced heart failure and airlifted to University Hospitals on April 16th. It was just heartbreaking to do this yet again. There are no words. As horrible as it was to watch him go through all of this, I am so grateful he is still with us today. He now has an LVAD and is able to wait at home. This is such a big improvement over how things were when my kids were waiting. My grandson's mother was on an LVAD in 2001 for almost three months. Back then they were external and connected to a huge machine. Today they fit in a small bag. Wow! That's big progress in less than fourteen years. So now we wait........... Again.See More
I feel so blessed to have received a liver transplant 12-1-2012 my question is has anyone had weight gain post transplant? Not taking any prednisone, but have had weight gain of 25-30 pounds. Never heavy in my past, small frame, and not a big eater. Thanks in advance.Feeling very luckySee More