I was on Prednisone for 7 months post-transplant. The first thing I noticed was fatigue and I lost 10 pounds almost instantly. My mood swings were gone, but the fatigue was there. I don't know if the going off of Pred caused the fatigue or the transplant caused it. My doctor seemed to think it was the transplant. I began feeling like myself about 15 months post transplant.
I have had to had Pred three times to help with infections. For the short bursts of 5 - 10 days it did not seem to impact anything except mood.
I've been on Predinose pre-transplant and still on it nearly 36 years later. In my earlier transplant years, I experienced so many side effects that I asked my nephrologist to take me off, but he felt it is easier to handle side effects than being on dialysis, especially with a rare blood type and awaiting a transplant.
After thinking about it, his rationale made sense to me so I give in and take that one pill a day.
I had my transplant in 1971 and have been on prednisone all this time. Have good days and have bad days. I am on 10 mil every other day. Hey, I'll take the side effects, worth it compared to the worse results not taking it, don't you think? I am alive.
Do you have a chipmunk face??
I hated Prednisone from the get go. I stopped it myself once for several days and my sister-in-law who is a nurse called me up and told me it was extremely dangerous to stop cold turkey. I had the flu really bad while I was taking it and ended up in the hospital, but I lost about 30 lbs of water weight that I had gained from the Prednisone. I was tapered off it maybe 3 months after my transplant and I've never been happier.
I was on Prednisone for 17 years when I was taken off it. I noticed I wasn't as energetic as I was while on it and my body hurt all over.
Now 20 years out and still off of it...
It's important to wean off slowly. I pushed to get off it asap but still landed up doing it for 8 months. Nasty stuff.