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When do you stop worrying about rejection?
I'm going on 6 months post transplant and still worry about rejection.My biopsies have been great so far but I still worry.Help
Replies to This Discussion
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Permalink Reply by Steve Diamond on -
I had a Pancreas only transplant and try not to worry about rejection, however when I asked my transplant surgeon how long I can expect to go he told me that 3-5 years is normal. He said that Pancreas transplants do not last as long as many other transplants.
Steve
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Permalink Reply by jeri lynn rabon on -
hello steve, janurary 2nd will be my 7th year anniversery, my diabeties is gone but i stay tired all the time. i suffered 17 years with diabeties. i have never had any kidney failure so i only had a pancreas only. this is very uncommon.i am having some stomach problems now i have alot of admoninal pain and i am sometimessick at my stomach. i am going to have a ct scan wednesday.i hope that you are doing well. my meds are prograf 2mg am .pm and cellcept 250mg x4
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Permalink Reply by Gail Csizmar on -
RAT-G..........
Has anyone had to do the RAT-G treatment? What kind of side effects did you have with this drug treatment?
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Permalink Reply by Leslee D on -
I'm 17 years post transplant and I still think about it, but you wont be able to enjoy your new life if thats all you think about.
kidney12-4-91
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Permalink Reply by NICHOLAS MARINO on -
Steve, Iam 7 months post transplant now and I finally got my labs down to 2times/mo. I feel real good. I had labs down to 1time/mo. 3 months ago , but all of a sudden my enzymes went sky high for some unknown reason. all ultra-sounds, biopsies are good.For me I will always worry about rejection, but I will never be as sick as I was in Dec. 2007. Take care and stay healthy. NICK LIVER TRANSPLANT 4-10-08
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Permalink Reply by Robin Hivner on -
16 years out and the worry never goes away. You get on with your second chance and take care of yourself best you can. Everyday I charish the little things around me.
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Permalink Reply by Sherrell Gay on -
The key thought is "most rejection is treatable". So we do what we are supposed to - take our meds on time, monitor our vital signs, get labs done as ordered and don't miss check-up appointments. Be alert to changes in how you are feeling. And then "live life every day". Every time I get about 2 weeks from my biopsy, I start getting aches and feeling nervous...you know the unknown combined with your mind's thinking can be bad...but I have to remember my faith in God and know I'm in the best hands. Rejection can sneak up on you as can other complications. So I just take one day at the time and make the most of it! I have friends 18-23 years out with their hearts..those are the ones I look to as role models.
Sherrell
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Permalink Reply by Nancy Lee Schipper on -
Sherrell,
Just read your message and it is a good one. I had a P/K tx 19 months ago, and all had been just
perfect from the very beginning. In April of this year, my Liapase/Amylase numbers began creeping
up for no reason.... yes a slight rejection had occured. It was treated (took some time and mahy adjjustments), but all is going well again. I too get anxious and nervous about my Labs, but I too keep close tabs on all and talk to my Transplant Coord. often; especially when something "weird" is happening. One day at a time.................
Take Care
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Permalink Reply by Neil Willens on -
Hi Steve,
You can "officially" stop worrying NOW.
You've survived long enough to receive a transplant. That is one worry gone.
You've survived your transplant surgery. Another big worry gone.
You've survived you recovery period and recuperation period. Those are over and done with.
Now, it's time to realize that there are no more worries. Trust me...you'll last longer without worries than with them.
There's an old story about this guy who worried all the time. Once he reached 60, he worried he was running out of time to do those things he intended to accomplish. Fortunately, he realized that if he worried so much, he'd have no time to do what he really wanted to do with his life. So he stopped worrying and started doing. And that, my friend, IS the end of the story. Truth be told, Steve...each year for my ltx checkup, the doc asks how I'm doing, I assure him "Don't worry about me, I'm going to live forever." And you know what, Steve? So far, so good. I'm on target. I believe that because my glass is always half full, never half empty, and so, my worries are behind me. If you can adopt this attitude, you'll be better for it.
Best wishes,
Neil
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Permalink Reply by Imelda Vasquez on -
Neil,
That is the best response to this question I've ever seen. I agree with you100%. If I worried about rejection all the time I would never really let myself "live". :)
Imelda G. Vasquez
Heart/Double Lungs
UCLA- June 1, 2007
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Permalink Reply by Dave Kaltenberg on -
You never stop! I had a transplant for 25 years. I woke up everyday thinking of that day it would happen to me. well that day came in Feb of 2009. Be thankful of everyday and enjoy life. Nobody knows what tomorrow brings.
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Permalink Reply by Cheryl on
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ok- what are signs of rejection/ and what if they don't want to bioposiy you? do heart transplant people take blood thinning drugs? I take coumindin and they are not sure they biopsy me... I admit is is always in my mind as well, but how do you know?
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