I was tx on 9/28/2011 and went from a 320# ascites filled man at the time of surgery down to 200, 8 weeks later, I was on prograf 7 and 7, I was starting to become concerned about the wt. loss that I couldn't stop, finally after power packing everything I ate to stop the loss it turned around, now my prograf is at 4mg and 4mg and I feel okay but zero energy and I have this tremendous appetite that is never satisfied, the weight is becoming a problem now and I  would like to know if this is part of the recovery process or the meds or just me.

Views: 2141

Reply to This

Replies to This Discussion

Its the Meds, let me quess ur on Prednisone. I am a Liver Transplant as of 1-1-11, and have been told by many that the Prednisone causes that. I can't seem to get enough to eat either and have had to do alot of exercising to just maintain let alone losing any weight, but as I tell my girlfriend, better fat than dead, lol. Good luck and hope all else is well

Hello Richard,

Are you on any type of steroids?  Ex:  Prednisone.  Steroids make you want to eat  I lost 65 pounds before my transplant and have gained 1/2 of it back due to steroids  I haven't heard anyone with weight gain from Prograf but it certainly affects all of us differently.

Blessings to you.

No prednisone, I was on 80mg prior to tx but zero now, maybe my nerves, my energy is low, I exercise at the gym but after 2 weeks of going I don't have the energy to leave the house and am bed ridden for 2 weeks, very frustrating. Thank you

I had weight loss after transplant, but weight stopped at about 200 and has stayed fairly close since.  My energy level was also a zero, but my appetite was normal. 

 

After 15 months of regular walking and exercising my energy level returned to about 95%.  My doctor told me that liver transplant patients do have low energy and may last up to one year.  I had accepted the fact that I was going to not return to my prior energy level, but it finally returned.

 

The hunger may be nerves, boredom, mild depression due to the low energy or that with a new liver everything tastes better.  I really feel that exercise helped me, but I had to work my way up to exercise very slowly. 

Thank you Joe.
My tx was 12/25/98. I went in at 235 and came out at 205. Dr said it was all water weight but two weeks later I weighed 170 which was water, fat and other fluids. Since then I have maintained between 160 and 175 thruout all these years. I have never gone over 185 no matter what I have eaten or drank. I have not maintained any type of exercise regeme other than the usual what most people do....ie, walking....no gym or breaking my stones to loose weight or gain muscle. BUT, no matter what/ diet or drugs/ my weight has stayed at this level thruout. I watched in the post/tx program gain lots of weight while on Prednisone but not me. Only side effect for me on that was my mood; I was anxious and angry ALL the time, but returned to a "normal" state of mind when "dc"ing the drugI'm not sure if stopping my rejection (Prograf) meds did anything about my weight but like I said even 12 1/2 yrs out I weight 179 lbs. Good luck to you and remember the poungs are nothing compared to the virus; I'd rather have the weight than the virus any day! Good luck again!!
So, what do you take for rejection if you stopped the Prograf?

Hi Richard,

I have had the same problem with the weight gain. after transplantation. Now two years later I am 75lbs heavier. So I sympathize with u.  If u r on prednisone it will definately do that

Chaneka

Thank you Chaneka, I needed to know if it was just me or if it's common with the stress and all.  I will try to be extra careful with the food. Other than that I am doing well. I have started a Ministry at our Church and that keeps me busy, it was difficult at first getting out of the house, still is at times but my wife and kids help me out alot.

 

I'm a little over a month out from my live liver transplant.  The new liver is doing great!  But I have gained 70 lbs. of fluid in my abdomen and legs and feet.  So uncomfortable and a nuisance.  Did you have or anyone else have this problem.  I'm told it can take 3 months or more for all of this to finally leave my body.

 

sue

If you are on prednisone that may be why, but try and get out and walk as much as you can. My ascites took about 3 months to decrease, then I had alot of extra skin from being 320# and going down to 205#  3 months after the transplant, now I have gone the other way, I'm 260# now,but I started taking thyroid meds., it wasn't producing enough hormones. Hopefully I will find the balance. I know it's there somewhere. I will keep looking forward.

Thank you for sharing your experience.  It does give me hope.  I just felt blindsided by this event but I will press on. 

Thanks again,

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Amber Futchko replied to Mary Ellen Revans's discussion gastroparisis
"My ex-boyfriend has type 1 diabetes and gastropherisis. He was able to get a gastric pacer put in and is mostly normal now."
Saturday
Amber Futchko replied to Bob Fontaine's discussion Liver disease and getting a tattoo
"Personally, I did extensive research about the place I was going to get a tattoo from. Then I took exceptional care of it. I've gotten 2 tattoos but one of them was worked on 2 different times."
Saturday
Amber Futchko posted discussions
Saturday
Profile IconAmber Futchko and Kim joined TransplantCafe.com - The Gift of eLife!
Friday
Bobbiejo Winfrey replied to Mary Ellen Revans's discussion gastroparisis
"Dear Mary Ellen, I am sorry that you had to be in the hospital, but I am glad you are feeling better. I hope that you will not have any more flair ups. I know though that some people with gastroparesis do go through cycles of feeling better and then…"
Feb 3
Lili Feldman commented on Lili Feldman's group The Funny Bone
"SCHOOL! A little girl had just > finished her first week of school. 'I'm just wasting my time,' she said > to > her mother. 'I can't read, I can't write, and they won't let me > talk!' BIBLE! A…"
Feb 1
Lili Feldman commented on Lili Feldman's group The Funny Bone
": Kid's say the funniest things! > *Photo of the new generation! * > * NUDITY I was driving with my three young children one warm > summer > evening when a woman in the convertible ahead of us stood up and waved. > She >…"
Feb 1
Jay Graham MD posted a blog post

New Version of Transplant Hero is available and has everything you have wanted...

Thank you so much for your feedback.   The new version of Transplant Hero has all the "bells and whistles"!https://itunes.apple.com/us/app/transplant-hero-medication/id969039026?mt=8But please, let me know how Transplant Hero can be improved.Also the Android version is coming in SpringBest, Dr. GrahamSee More
Jan 31
ian cribb left a comment for Cihat Ezin
"I just heard of Cihat's passing."
Jan 31
ian cribb posted a status
"One of my friends (Cihat Ezin) told me about this site. Cihat just passed away this January. So I thought I'd join to let everyone know,"
Jan 31
Jasmine posted a status
"guys my first video talks about living with a chronic illness and life on the list https://www.youtube.com/channel/UCGBhncDeT2hTSh_KQwA4gDw"
Jan 30
ian cribb is now a member of TransplantCafe.com - The Gift of eLife!
Jan 30
Mary Ellen Revans replied to Mary Ellen Revans's discussion gastroparisis
"Hi Bobbiejo, Thank you for your prayers, that is important to me.:-) They decided to put me back into the hospital to have their GI doctor consult with me.  Unfortunately, by the time that they put me back in, whatever is going on with me…"
Jan 29
John M. updated their profile
Jan 29
Jessica posted a status
Jan 29
Margaret Kelly commented on Lili Feldman's blog post Post Transplant Lymphoprolifeative Disorder
"Hi im currently sitting with a blood pressure monitor on ha ha so far i have been told i have hardening of the arteries of my kidneys high blood pressure. And am being checked for coeluac disease but i am taking advagraf for my liver transplant so…"
Jan 29

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2016   Created by TransplantCafe.com.   Powered by

Badges  |  Report an Issue  |  Terms of Service