Let me throw something out here :

  If you are on SSD because you need organ transplant, what happens if you get one? Will SS decide you can be on the work force or what?

My husband had that question posed to him since he now has had a transplant. My husband also had other issues (like crohn's), so he will still qualify. I know others have returned to the work force after transplant and I think it is great.

Has anyone had this happen to them? Just a discussion:)

 

Sarah

Views: 2835

Reply to This

Replies to This Discussion

Every person is an individual, every one does not go back to work, some may , some may not be able to, if you feel unable insure the doctor backs that up in writing, so therefore if you need to go on soc sec disaility long term the doc backs you up , but you will still have to go see soc sec mickey mouse docs, at least thats what i thought of them, they said my transplant docs letter was worthless, and I did a Bbetter exam in the ambualnce then these quacks provided.

I am a combat disabled vet with war maladies along with transplant so i did not have to much of a problem with soc sec, and my senator sent them a letter to quit hasslimng me. I get a call every 7 years to ensure i am alive, thats it.

They wanted to make me do a soc sec disability physical once a year, or 3 yrs, was tired of the games, nuthin is gonna change unless i die again.

hope this helps, if your husband is going to look like he is fully disabled unable to work , by all means start getting your ducks in a row, letter from transplant doc and other physicians he has and do the paperwork and appointments to get it going.

have a great day

HUGZZ

Richard

Perfect advise
My husband has only been on disability since the time of his transplant but as long as there is medical need (doctor completes the medical determination form), disability will pay.  After 3 months on disability the medical form has to be completed by the doctor again so disability knows it is still needed. If disability reaches a year, then long term disability can be considered.   My husband has been on disability for 5 months now and he will probably be off in a few weeks as he will start easing back into work.   He works in computers so he can do some work from home but he will mostly be in the office.   Even though he doesn't have physical labor requirements for his job, he does alot of traveling in the state which is too much for him right now.  We just continue to take one day and at a time.  Some days his endurance his poor and other days it is great.  Whatever occuupation you have, you just have to get back into things slowly.  Hopefully the employer is understanding and cooperative.  Good luck with things.
 I have been on SSD since 4 years before my liver Tx in March 2005 and am still on it. They send me a form every 2-3 years to fill out describing my daily activities and prognosis. They'll send a letter back a month or 2 after I return the form stating that  there is no need for any more information at this time and they will contact me in the future. I've had problems with my kidneys and severe diabetes since the transplant so I imagine that is the reason they don't bother me about it more than they do. I haven't seen a social security Dr since before I received my first check. My life insurance carrier wants more info on my continuing disability than SSD does. Really all cases are individual and treated as such. I wish I could go back to work, after so many years off if can get severly boring  at times not to mention what it does to the ego. It gets very old being feeling sick so much. I praise God for my transplant but it wasn't the cure all that I thought it would be.
I got on SSD shortly after my tx but they declared me disable since my stroke which was 6 months prior to it, even tho I attempted to work during that time for a short while. Right now they will re review my case again in 14 months. Its been almost 6 months since tx and intend on returning to work eventually when things have settled down and my schedule doesn't revolve so much around docs/meds and my mood swings and side effects.
 Listen to your Drs and don't rush the returning to work. Tranplantation is very traumatic and your body needs time to recooperate. As you know the Drs and meds never end. God bless you and good luck.
My understanding is that once a person gets a transplant- you have three years on Medicare- I guess one should be able to go back to work- now if one still has medical issues that changes things.  I had my transplant fourteen months ago- but having been on Dialysis for five years- time is running fast and the way the job market is I am frighten.  Considering taking a  few courses and see what happens.  Best of luck to him.

Thank you to all of you that have replied (Richard, Kathleen, Bill, Emily and Audrey)

I thought this could be an interesting subject of discussion. It is interesting of different answers and how these agencies run.  My husband did not get his disability totally on liver, but also from crohn's disease. He is also having kidney issues.

I think of some who get transplant and the system tries to force them back to work and the stress it causes.  For those that are able to return to work, I think it is great.

I wish all of you peace, love, joy and wellness.

 

Love,

Sarah

Social Security makes determinations using the following steps:

 

1. Do you have earnings less than $1000/mo. due to a medical condition? (If YES, go to step 2)

2. Is the medical condition "severe" (i.e., has it lasted or will it last for more than a year, or is it likely to result in death? (if yes, go to step 3)

3. Does the impairment meet a listing in the Social Security Blue Book (http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm) ? (If YES, evaluation is complete and claim is granted; if NO, move to step 4)

4. Can you do your prior work that you did in the last 15 years? (IF yes, claim is DENIED; if NO, move on to #5)

5. Can you do any job in the national economy (special rules apply re: age, educational level. training, prior work. If you are older, have less education, and have only done manual labor, your case will be granted with ANY substantial impairment.

 

Transplants of all kinds create a presumption of disability for one year after transplant. So after transplant, you will meet steps 1,2, and 3. Your benefits will start the month you have a kidney transplant, or the sixth full month after any kind of transplant. However, if you met the listings under organ system failure prior to your transplant (except kidney), benefits start in the sixth full month of disabiltiy. For kdneys, it's the fourth month of dialysis.

 

If you recover without complications, you will no longer be considered disabled after the one-year anniversary of your transplant. Social Security will do a continuing disability review (as mandated by Congress). If they find that you have recovered and are no longer disabled, your benefits cease. Thsi means you get benefits for the month of their decision, plus two more months, and then both your Medicare and Medicaid benefits wiill stop. An exception is if you get Medicare for kidney transplant--you will get immune suppression meds paid for for three years, but you have to have had your transplant paid for by Medicare, and you must continue to pay your Part B premium.

 

There is a way to avoid losing benefits. It's called the Ticket to Work program. As you are recovering from transplant, when you first thing about going to work, contact your state dept of vocational rehab and tell them you want to use your Ticket to Work. They can provide help for you to get back to work, including whatever clearances and recommendations for accomodations you may need to get back to work. This will also suspend Social Security CDRs for the duration of your Ticket to Work. If you are on SSDI (note: SSI is different) you will get for full check for the first 9 months that you work, and your Medicare will continue. Becyond that, your Medicare will continue until you have worked 60 months. This may transpire over a period of 8-1/2 years while Medicare continues. As long as you are in Ticket To Work, you will be considered disabled and will still get Medicare, which will pay for meds under Part B as long as you need them

 

The three-month recurring eligibility sounds like California state disability insurance, which is a diffierent program. CA residents are allowed to draw state disablity and Social Security disability,  both simultaneously, but CASDI will expire after one year.

 

 

Thanks Paul for your thorough answer. My husband has had his liver transplant and continues to have kidney problems along with Crohns , which on its self is a qualifier for ssd.
If there is another disability, financial benefits and Medicare or Medicaid benefits continue uninterrupted, but the impairments must be documented in the medical record. If Social Security notifies you that they are doing a continuing disability review (which they must do every three to seven years as mandated by Congress), it's best to get a doctor's letter that spells out the impairments according to the terms in the Blue Book (http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm ) and give that doctor's letter to the analyst. That way, you make sure that the analyst understands the reason for the ongoing disability despite the expected recovery from transplant.

Hi Sara, my understanding is once a person has a transplant  medicare will stop, my feeling is they think you can go back to work.  I had a Kidney transplant seventeen months ago- and I wondering since it would seem SSD will be changing.  Todate I have not been able to find employment, but I am envolved with a program that works with people disabled or on disability.

I am waiting to hear if I will take some courses or not.  Frankly if I don't find a job, I will not be able to afford the medications

so will probably be on dialysis again ??? My plan was to work part time for a while- at this point I will and do feel that I can

work full time.

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Mariel Ammerlaan Carr joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
47 minutes ago
Mariel Ammerlaan Carr is now a member of TransplantCafe.com - The Gift of eLife!
1 hour ago
Frank Colangelo posted a status
"Yes I am."
13 hours ago
HDHONEY replied to Frank Colangelo's discussion Vomiting and Diarrhoea after being exposed to chemicals
"Frank  r u having these problems just when working.  I also have had a liver transplant. Weird that stuff is not agreeing with u. hope u can get answers, sure its not ur med "
yesterday
Frank Colangelo joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Friday
Karen Weddick left a comment for Michael
"Hi Michael: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Thursday
Karen Weddick left a comment for Kristi Ide
"Hi Kristi: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
Thursday
Frank Colangelo posted a status
"Hi There is anybody online"
Thursday
Frank Colangelo posted a discussion

Vomiting and Diarrhoea after being exposed to chemicals

Hello AllJust under three years I had a liver transplant due to cirrohossis and Hep C.  I am back at work but seem to experience vomiting and diarrhoea if I have been exposed to chemicals of any sort.  Understanding fertilser and blood and bone for gardens is a no no for me. My medical team cannot give me any answers and I am wondering if anybody has experienced the same symptoms.  The episodes seem to last up to four to five hours at a time and leaves me very fatigued and wash out.  Hoping someone can give me some answers.Kind regardsFrankSee More
Thursday
Profile IconKristi Ide, Michael , Cathy Estrada and 2 more joined TransplantCafe.com - The Gift of eLife!
Thursday
Gene Cost posted a discussion

Working after Transplant

Hello to everyone,My name is Gene and I was transplanted almost 3 years ago. I suffered from liver failure as a result of Hep C. I am 59 years old now. I suffered a torn rotator cuff as a result of my positioning during my transplant and it took some time to recover from that. I did not have any surgery I simply learned to live with it. I also incurred steroid induced diabetes as a result of the transplant and now have a fair amount of neuropathy in my feet. I have found that I fatigue much easier than I once did. My doctor has concluded that I have also suffered some cognitive impairment and as a result of my illness and I have been declared fully disabled. After a year of rehabilitation I returned to work part time delivering auto parts. I have been working for 18 months now. By federal law I can earn $1070/month and continue to receive disability. I find it difficult to live on my part time wages however I have determined that in order to justify going to work full time I would…See More
Wednesday
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Yep, Dallas Buyers Club is a great story and example for sure! Personally, I'm with you. Professionally, TC couldn't be involved, unfortunately. And it really is unfortunate because it would help so many people. Sort of like organ donation…"
Tuesday
John Presley Robertson commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Nelson, I understand the laws, but we all know a lot of meds are discarded by patients that don't need them anymore. I don't expect the pharmacies to give it away but there must be away for transplant recipients to do something. Remember…"
Tuesday
TransplantCafe.com commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Hi John, I think that would be a great service for the transplant community and other patients too. However, I don't think the laws allow this, unfortunately. You're right about there being a great need for a program like this for…"
Nov 17
Caring 4 Carrie posted a status
"How Are Diabetics Affected By Hypoglycemia? Too little food or skipping a meal; too much insulin or diabetes pills; more active than usual."
Nov 16
John Presley Robertson commented on TransplantCafe.com's blog post Have You Come Up With A Transplant Or Other Medical Idea, Innovation, Or Invention?
"Why don't we develop a program where taransplant patients that have changed meds can share it with those that need that med. and make it free."
Nov 16

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2014   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service