"Clarify with UR center....they always have a warning on the menu about eating undercooked food. Maybe UR center doesn't want U to risk it."
Rapamune
My transplant team talked to me yesterday about switching my meds (currently Prograf, Cellcept and 2 mg Prednisone) to Rapamune. Has anyone made that switch?
Also, is anyone on Rapamune only with no other anti-rejection drugs?
Thanks,
Laura
Replies to This Discussion
-
Permalink Reply by Terri Lynne on -
I took Cyclosporine for 19 years and was switched to Prograf 4 days shy of my 20th anniversary. I was scared at first letting them do that but it turned out to be the best thing for me. For three years my liver numbers had been high and being switched seems to have fixed that.
Sorry, never been on Rapamune or Cellcept so can't say anything about that but good luck!
Terri
-
Permalink Reply by Burnie Schultz on -
Rapamune (Sirolimus) is used in combination with other medications to prevent rejection of kidney transplants - IMMUNOSUPPRESSION, USE IS NOT RECOMMENDED IN LIVER OR LUNG TRANSPLANT PATIENTS
-
Permalink Reply by Laura Weber on -
Hi Burnie,
I am a kidney transplant and I know Rapamune is normally used with other drugs which is why I asked. My TX center is recommending rapamune alone. I am 7 yrs post TX.
-
Permalink Reply by Laura Weber on
-
Thanks Terri. I'm glad Prograf is working so well for you!
-
Permalink Reply by Burnie Schultz on
-
I was a Liver TX and was on 3mgs Prograf for 17+ yrs and just this May was switched off it to 1000mgs of Cellcept of which I could not handle. After 3 months I switched to 720mgs of Myfortic which I seem to be handling very well. The reason for the switch off Prograf was it was killing my kidney's [seems to be very toxic to them]. I still do take 0.5mg of Prograf twice a day along w/ Myfortic and 5mgs of Prednisone. Prograf is the silver bullet to stop rejection but it does attack the kindney's over time. That my be why they want to get you off it. My last blood test my GFR was 35 Creat was 2.01 after 17+ yrs of Prograf use.--Burnie
-
Permalink Reply by Laura Weber on
-
I'm so sorry your kidneys were damaged by the Prograf. I pray the Myfortic does a good job and preserves your remaining kidney funtion.
Laura
not a member yet?
Photos
Latest Activity
Neil Willens replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Sorry. Wanted to help you by taking your survey, but you only want people under 18 years of age, according to the introduction. Again, good luck.
Neil"
Neil Willens replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Nothing like waiting until the end of May for the big graduation project....
Good luck.
Neil"
Allie commented on Kathryn Flynn's group Lung Transplants"Hey everyone! I am a heart recipient and about to graduate college! To graduate I have to do a large research project, could you please help me by filling out my survey? It will only take 3 minutes and is totally…"
Allie commented on Cornishia Matthews's group The Young Ones"Hey everyone! I am a heart recipient and about to graduate college! To graduate I have to do a large research project, could you please help me by filling out my survey? It will only take 3 minutes and is totally…"
Allie added a discussion to the group Chat Time!
Can you help this recipient graduate!!!
Hey everyone! I am a heart recipient and about to graduate college! To graduate I have to do a large research project, could you please help me by filling out my survey? It will only take 3 minutes and is totally anonymous.Http://fluidsurveys.com/surveys/lennie/organ-transplants/See More
Allie added a discussion to the group Team Kidney
Can you help this transplant patient graduate!!!
Hey everyone! I am a heart recipient and about to graduate college! To graduate I have to do a large research project, could you please help me by filling out my survey? It will only take 3 minutes and is totally anonymous.Http://fluidsurveys.com/surveys/lennie/organ-transplants/See More
Allie joined Donnia's groupTeam Kidney
This group is for all people involved with kidney transplants. Please discuss how you are involved... donor, recipient, family member? What caused the renal failure that led to transplant. What medicines do you take? Do you experience side effects?See More
Allie added a discussion to the group Liver Transplants
Hey! Could you help me!
Hey everyone! I am a heart recipient and about to graduate college! To graduate I have to do a large research project, could you please help me by filling out my survey? It will only take 3 minutes and is totally anonymous.Http://fluidsurveys.com/surveys/lennie/organ-transplants/See More
Allie joined Gabrielle's groupLiver Transplants
This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
Laura posted a status"Has anyone had experience with a VACC machine before? I had a 2nd tx that failed and now have a VACC on my incision (I'm a liver tx patient)"
Allie posted a blog postHey could you please help me graduate! Im a heart transplant patient!
Hey transplant friends: can you help me by taking my survey for a project I have to do graduate. Its only 20 questions, very quick.http://fluidsurveys.com/surveys/lennie/organ-transplants/See More
Neil Willens commented on Neil Willens's status"I must say your words strike me more as a prayer than anything else, Bobbiejo, so I'll simply thank you and say "Amen".
I do sit down to write when the spirit moves me. I don't know if it will be work publishing or not, but there…"
respond to member blogs:
discussions need your input:
Birthdays
Birthdays Today
Birthdays Tomorrow
quick links!
follow transplant cafe:
 |
 |
 |
Meet Members by Transplant Type
Badge
© 2013 Created by TransplantCafe.com.
