im so new to this website. and very excited to come across it tho! ive been searching for others that would understand the journey my husband and i have been traveling the last 5years w/ his Liver issues!! its hard to find others that understnad the joys, the pains, adn ups n downs etc! you know what i mean!

my husband has reached his 1 year mark as a Liver Transplant patient. his levels have stayed where they are suppose to until just this last week !!can any one tell me why all of sudden his Prograf levels have elevated to numbers that are unexplainable so fast!! His Dr's are looking into it. but just think its too weird too fast. he has been on a new med the last 10 days. not sure if its the med maybe! is this normal sometimes? common to see?

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I am a kidney transplant recipient and don't know if they work the same. It has been 2.5 years since my transplant. The first couple of years things will fluctuate. My prograf meds had to be raised after about a year and a half. They are going to fluctuate. I was told that when the prograf level is high that means that you would end up having to take less meds. That should be a good thing to a certain extent. I was also told though that Prograf is not good for my kidney so the less I have the better. So look at it as maybe a good thing and that the body is accepting the Liver as its own and doesn't need to be tricked as much.... Good luck....
I'm four years post liver transplant -- make sure your eating the right stuff, no stress, lots of water!!!! ... it was two years for me that it took - now I'm down to 500 mg and doing well -- check out http://trioweb.org/index.shtml and join. Cheers.
does he do fasting bloodwork?
has he mistankingly took a double dose of meds before getting bloodwork?
Diet?
other than that if its only a 1 time event , strange things happen that are unexplainable, have they retested the bloodwork and what is the comparison form the test before this happened to the elevated bloodwork and the one after a retest?
hope this helps some
take care
Richard

hello i had a pancreas only transplant 7 years ago, about 6 months ago the doctor said that i was to immosuppressed and that i have developed ebv. i am so worried about the cancer that the ebv can cause. they do not want to check me at this point for any type of cancer, they tell me not to worry i cant help it ,because why wait untill you develope the cancer and then seek treatment. how has your situation worked out?

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"Love it David!  Great one!"
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My Acute Liver Failure was the result of Hepatitis C contracted during an emergency C-section in1978!

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A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
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