"They may be old but they still make me laugh. Thanks for sharing David."
OK match
Hi folks, I had my tx 9 weeks ago and everythings going really very well. My creatinine is down to 97, not sure the equivalent measurement in the US/Canada. I'm feeling very well, loads of energy, truly delighted to be feeling so well. My main problem has been the discipline of remembering to take the drugs at the appropriate times. I was late twice so far and thanks to advise from people on this site, took them shortly afterwards and no problem, but.. last night I went to bed earlier than usual and forgot to take my tabs alltogether!. I was up at 6.30 and upon realizing what I had done, decided to take them then (I usually take them at 10am and pm) and perhaps a little earlier in the evening at maybe 8pm then back to normal after that, I'm embarrassed at my own stupidity and having rung my transplant nurse already am reluctant to own up to being so dumb again soo soon. an anyone there put my mind at rest?
My second worry is that recently I asked my doctor how good my transplant match was, not having the common sense to ask before now. He told me it wasent a particularly good match but that it was an exellent kidney from a young donor( to whom I am eternally grateful). I have just read in a transplant brochure that if the match is not very close the chances of the transplant lasting a long time are significantly reduced, that depressed me, especially after forgetting to take my tabs last night too.
Sorry to be bothering people but I'm a bit worried and would be grateful for any advice. thanks.
Replies to This Discussion
-
Permalink Reply by Bob Ochs on -
We probably have different medication regiments, but my doctor said that a few hours or one day shouldn't hurt. Still, I am pretty spot-on with my meds.
I'm not sure what you doctor means by not having a good match. I'm O+, but they were going to give me my wife's AB- with little difference in long term prognosis before the matching deceased kidney came available. Staying healthy and keeping close to your transplant team seem to be very key.
All the best of good health to you.
Bob
-
Permalink Reply by Hugh Byrne on -
Thanks Bob, will talk it thru with my doc next week when we meet, probably paranoid about the match but just v protective of this wonderful gift, no other way of describing it. Stay well.
-
Permalink Reply by Burnie Schultz on -
I have a clock radio in kitchen [or were ever you have drugs]. It has settings for 2 different alarms. I have them set for 9am and 9pm. It will buzz [annoys you] for 1 hour before it turns it's self off until next cycle. Been working for me for 17 years as long as i am home at the time...lol. ............ As far as missing a dose I do a judgement call. If only a few hours late i take them then and adj the next dose by 12 hours minus 1/2 the missed time until I am on schedule again .If closer to next dose I wait and take then.-- Burnie Liver TX 2/95 UCSF SF CA
-
Permalink Reply by Hugh Byrne on
-
Just the idea I was searching for, i'll get a clock radio, this is all a serious learning curve...but a pleasure to be in this position. Thanks Burnie. Hugh
-
Permalink Reply by Debbie Koski on -
I use my cellphone alarm in case I am out when it is time to take my meds.
-
Permalink Reply by Hugh Byrne on
-
thanks Debbie, I'll do that too, its a learning curve!
not a member yet?
Photos
Latest Activity
Clare mcgee replied to vickie steers's discussion Hair loss"Hi viki,
Having the same problem with Prograf!! Loosing my mind with the amount of hair going down the drain!
Am in the uk & my consultant has mentioned cyclo but said it would have to be MY choice.
I would love to spk with you bout your…"
Clare mcgee replied to Kelly McInnes's discussion New from Aus :)"Hi Kelly,
I'm new to this group too & have read your story...rough! Sure hope you are still doing well and your spirits are up!
As you probably know there are ups and downs emotionally post transplant.
I was diagnosed when I was 16 with…"
David Goodman commented on Lili Feldman's group The Funny Bone"A young New York woman was so depressed that she decided to end her life
by throwing herself into the ocean.
But just before she could throw herself from the docks, a handsome young
man stopped her.
"You have so much to live for," said…"
David Goodman commented on Lili Feldman's group The Funny Bone"My wife found out that our dog (a Schnauzer) could hardly hear, so she took it to the veterinarian. The vet found that the problem was hair in the dog's ears. He cleaned both ears, and the dog could then hear fine.The vet then proceeded to tell…"
TC AdminKaren Weddick commented on Lili Feldman's group The Funny Bone
"OMG! Lili that was great, I enjoyed that so much and laughed so hard. Thanks so much for sharing and posting that."
David Goodman commented on TransplantCafe.com's group Team Prograf"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
respond to member blogs:
discussions need your input:
Birthdays
Birthdays Today
Birthdays Tomorrow
quick links!
follow transplant cafe:
 |
 |
 |
Meet Members by Transplant Type
Badge
© 2013 Created by TransplantCafe.com.
