Hello!  I am a five year post liver transplant patient.  For the first two or so years I had a lot of joint and muscle pain.  Just about every day. Sometimes could barely walk at the end of the day. Currently not so bad. But still more often than not.  Seems like I cannot exert myself very much and have to spread out physical activities.  I have a physical job and it is hard.  My docs won't give me anything for the pain so I have had to learn to live with it.  Anyone have such problems?

Views: 230

Reply to This

Replies to This Discussion

Regarding Muscle & joint pain. Almost 2 years post liver transplant and have body aches almost always. Really identify with your post Debra!

Hi Debra,

I am 2 years post kidney transplant and I have had similar experiences. I do physical work a few times a week and sometimes I  feel bad and sometimes not.  I have made a post on this subject under "Muscular Side Effects" so I won't repeat what I experience.  I am just wondering if this isn't some sort of side effects of the meds we need to take.  I don't even bother with Tylonel as it just doesn't do anything.  I have a prescription for Vicodin and I take it only rarely, when my muscles are extremely tight and my headache is really bad.  I would speak to your doctor and try and request this.  My prescription always expires (every six months) with 2 or 3 refills left so I think that my nephrologist understands that I don't abuse this.  Hope you can find a solution and just wanted to let you know that others are going through the same thing.

 

Jeff

Hi I have  a lot of joint and muscle pain started when my Dr change imuran to cellcept

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

James Thorpe is now a member of TransplantCafe.com - The Gift of eLife!
13 hours ago
Jona replied to Scott Michael Hedges's discussion 1-2 year move from Lawrence to Fort Collins, CO; Need insurance and new doctors!
"Hi Scott, Just joined here and saw your post. Have you made the move? We live in Loveland, just south of Fort Collins. My husband is on the waiting list at University Of Colorado Hospital Anschutz in Aurora. Hope all is well."
yesterday
Jona joined Gabrielle's group
Thumbnail

Liver Transplants

This is a group for all people who have had liver transplants. Feel free to say how long you have been a recipient and what medication you are on. Some doctors hope to have their patients off all medications, any thoughts?
yesterday
Karen Weddick left a comment for Kim Bradshaw
"Hi Kim: I’d like to welcome you to the Transplant Café. You are now a member of a warm, friendly, supportive, caring, understanding, sensitive and informative site. If you have any questions please don’t hesitate to ask and…"
yesterday
Kim Bradshaw is now a member of TransplantCafe.com - The Gift of eLife!
Saturday
Audrey Clark posted photos
Friday
Clare mcgee commented on Clare mcgee's blog post Prograf hair thinning.
"Hi Vikie, Only just found your comment. not been on for a while too! Glad you got sorted. me well that is another story, I got desperate from the ongoing painful scalp & continued hairloss with no let up for 2+ solid years! I tried to go over…"
Thursday
Audrey Clark left a comment for Linda Desi
"I am sorry about your loss of your husband. Beside the septic shock incidents, are your new lungs treating you well?"
Thursday
Clare mcgee posted a blog post

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels " Lol.. Oh boy that would be a refreshi…

Just once it would be really nice to get new medication and read the label WARNING " may cause permanent weight loss, Removes wrinkles & increase energy levels "Lol.. Oh boy that would be a refreshing change!!See More
Wednesday
Jona commented on Carol Jean Posner's blog post 40 years!
"Congratulations!! "
Mar 23
Jona liked Carol Jean Posner's blog post 40 years!
Mar 23
Jona and Karen Weddick are now friends
Mar 23
Susan Quinn is now a member of TransplantCafe.com - The Gift of eLife!
Mar 22
David Goodman commented on Lili Feldman's group The Funny Bone
"A Tennessee State trooper pulled over a pickup on I-65. The trooper asked, “Got any ID?” The driver replied, “Bout whut?”"
Mar 21
David Goodman commented on Lili Feldman's group The Funny Bone
"The owner of a golf course in Georgia was confused about paying an invoice, so he decided to ask his secretary for some mathematical help. He called her into his office and said, “Y’all graduated from the University of Georgia and I need…"
Mar 21
David Goodman commented on Lili Feldman's group The Funny Bone
"On the average, an American man underage 75 will have sex two to three times a week, whereas a Japanese man the same age will have sex only one or two times a year. This is very upsetting news to most of my friends, as they had no idea they were…"
Mar 20

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service