Hello!  I am a five year post liver transplant patient.  For the first two or so years I had a lot of joint and muscle pain.  Just about every day. Sometimes could barely walk at the end of the day. Currently not so bad. But still more often than not.  Seems like I cannot exert myself very much and have to spread out physical activities.  I have a physical job and it is hard.  My docs won't give me anything for the pain so I have had to learn to live with it.  Anyone have such problems?

Views: 228

Reply to This

Replies to This Discussion

Regarding Muscle & joint pain. Almost 2 years post liver transplant and have body aches almost always. Really identify with your post Debra!

Hi Debra,

I am 2 years post kidney transplant and I have had similar experiences. I do physical work a few times a week and sometimes I  feel bad and sometimes not.  I have made a post on this subject under "Muscular Side Effects" so I won't repeat what I experience.  I am just wondering if this isn't some sort of side effects of the meds we need to take.  I don't even bother with Tylonel as it just doesn't do anything.  I have a prescription for Vicodin and I take it only rarely, when my muscles are extremely tight and my headache is really bad.  I would speak to your doctor and try and request this.  My prescription always expires (every six months) with 2 or 3 refills left so I think that my nephrologist understands that I don't abuse this.  Hope you can find a solution and just wanted to let you know that others are going through the same thing.

 

Jeff

Hi I have  a lot of joint and muscle pain started when my Dr change imuran to cellcept

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Profile IconCharlene Sellers and Shankargouda Patil joined TransplantCafe.com - The Gift of eLife!
7 hours ago
Terri Warren and Suzanne Giacherio are now friends
12 hours ago
Prem Dayal replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"Hope you take the same road for the health and live a long healthy life"
yesterday
Prem Dayal replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"I had my transplant in September 2010 as well, I do live on a controlled life, and Now I have started enjoying it as well. I made a point to myself to stay happy and strong and somehoe that's really affected my health as well. It has just gone…"
yesterday
Suzanne Giacherio posted a status
"My liver turned 5 y/o on 2/11/15! Grateful to be alive and to have my wonderful husband. He has been with me every step of the way."
yesterday
Suzanne Giacherio replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"Good for you! Be very careful with that new liver you have received as it will serve your body well. I was transplanted in 2010 and doing rather well but in a much more slower pace than ever before. Continue to celebrate life just take it easy on…"
yesterday
Prem Dayal replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"Hey, I'm doing great. I did go ahead with the limited amount of consumption twice in January. Both times it was a good whiskey (Blue Label) and till now nothing bad has shown up."
yesterday
Suzanne Giacherio replied to Prem Dayal's discussion Having a single Peg of Whiskey after liver transplant, will it kill me?
"How are you doing now? I know this forum can be sketchy on being current - but here it is a little over a year later and there are no new comments from you Prem."
yesterday
Profile IconBrittany Offutt and Vince Abron joined TransplantCafe.com - The Gift of eLife!
yesterday
Charles Pruitt updated their profile
yesterday
Jennifer Harris-Roush joined Terri Lynne's group
Thumbnail

Relationships and Dating

Having a transplant, or waiting for one can affect a relationship and if you're single, makes dating interesting. Here is a place to share your stories, questions and anything else about these topics.
Monday
Misty Mountain and Mohamed Rouibah are now friends
Monday
Misty Mountain posted a discussion

Anyone experience acute rejection past the 1 year mark with double lung transplant?

My dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. His doctor told us that they only see this in 1% of patients. I'm wondering if anyone here has experienced this or knows of someone who has and what the outcomes were? Right now my dad's biggest fear is that there will be permanent damage to his lungs and he will be back on oxygen permanently. I honestly think he fears that more than dying. As you can imagine this is devastating to him and my family. On top of the emotional devastation comes the heavy burden of financial stress. For a shameless plug: if you are able to, please donate to help pay for his medical expenses and/or share the below link with your network.We are truly grateful for any help, support or prayers that you can offer for my family.Thank you!…See More
Monday
Misty Mountain posted a blog post

Acute rejection 1.5 years after double lung transplant

https://www.tilt.com/campaigns/the-mountain-familyMy dad had a double lung transplant 1.5 years ago after suffering with bronchiolitis obliterans organizing pneumonia and pulmonary hypertension for over 7 years. Last week he was submitted to the hospital for acute rejection. As you can imagine this is devastating to him and my family.On top of the emotional devastation comes the heavy burden of financial stress. If you are able to, please donate to help pay for his medical expenses and/or share the below link with your…See More
Monday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"Oooooh noooooo!"
Sunday
Bill Wohl posted a video

15 years later Bill Wohl

February 22, 2000 the "gift of life" allowed me an amazing second chance to live and grow. All because my donor family said "YES." Thank you Brady Michaels, ...
Saturday

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service