How long has everyone waited for their liver transplant?

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Permalink Reply by Alicia Nelson on December 21, 2009 at 9:56pm

Thank you Cathy!... I know I am waiting to get higher on the MELD score. California is so hard, there are so many people.

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Permalink Reply by Bobbiejo Winfrey on December 22, 2009 at 6:58am

Dear Alicia,
I had a liver included as a part of a multivisceral transplant. My transplant doctors in Miami did not tell me what my MELD score was, but they did say that I was probably at the top of the list (I had been jaundiced quite a while). I think at first they were afraid I might not be able to handle the surgery, but I am so glad that I was given the chance, and give thanks to God every day. I got a call a couple of weeks after I was put on the list, but it turned out to be a dry run because the organs were just too big for my small body. I had one other dry run, but all in all, I ended up waiting a little over three months for my transplant. I hope that you will not have to wait too much longer. I will be sure to keep you in my thoughts and prayers. Best of wishes to you, and may you have a blessed Christmas.

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Permalink Reply by Alicia Nelson on December 22, 2009 at 10:10am

Thank you, may youy have a blessed Christmas as well!

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Permalink Reply by sylvia edwards on December 22, 2009 at 9:19am

I WAS DIAGNOSED WITH HEP C AND CIRRHOSIS SEPT 2003......RECEIVED MY GIFT OF LIFE LIVER 02/17/05....BEGAN "GOING DOWNHILL" NOVEMBER OF 2004....QUICKLY WORSENING....BEGAN BLEEDING AND WENT UNCONCIOUS....TAKEN FROM FRANKLIN (WESTERN MTNS OF NC) TO DUKE UNIV....DURHAM NC...BY HELICOPTER....KEPT ALIVE THERE 2 DAYS AWAITING A LIVER......TRANSPLANTED......AND AM ALMOST 5YRS OUT FROM SURGERY.....I KEEP TRUDGING ALONG.....KEEPING MY STRENGTH....LABS, MEDS, ETC........

BLESSINGS..... SYLVIA

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Permalink Reply by Alicia Nelson on December 22, 2009 at 10:08am

Thank you........

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Permalink Reply by Teresa Dixon on December 22, 2009 at 2:59pm

I have/had Polycystic Liver Disease and was listed 1/09/09 and was transplanted on 11/24/09. Hang in there - it is a hard process to go through and a challenge to wait - the call will come when you least expect it! I had been told my wait could possibly be another year and then out of the blue the phone rang - I am doing well 1 month to the day from my transplant - I will be praying for you and for your family - Teresa

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Permalink Reply by Regan Drasko on December 22, 2009 at 5:49pm

Alica, Hello from La Mesa, Ca I had my transplant 5 months ago at Scripps Green Hosipal located in La Jolla, Ca The meld score to be transplanted here is 25. In my case I was admitted on July 13, 2009 and my meld was 13 for 1 week and then my meld jumped to 25 and everyone started jumping through hoops to get me listed 1 week later still not listed and meld was 39 and the following day untill transplant my meld was 41 for the next 8 days then I recieved my gift of life on July 30, 2009. Hang in there Alica, it will come but for now if you don't have things in order get them in order. You are in my prayers.

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Permalink Reply by steffany on June 17, 2010 at 6:35pm

i see that you was a 41 at transplant my father recieved his gift at a meld 41 as well on 5/30/2010 and he is still in icu . if you dont mind me asking how long did it take you to recover ? did you still have encephalophy ? how long did that last if so? my father is still hallucinations and im not sure y he is taking pro graft and water pills prednisone and a few others he was sick for along time hhas been on the list for a year before recieving his transplant . and in dec was a 25 and stayed there for along time till april 30th he jumper to 27 and then the next week 31 and the next day 34 and then stayed there in the 35 and 37 for weeks and the last week he jumped to a a 41 on may 20th and stayed there till transplant he was in a comma for over a month but not in icu till the last 2 weeks please any answer help form someone who recieved a transplant at the higher melds without cancer my email address is steffanymb@gmail.com thanks so much and may god bless

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Permalink Reply by James Owen on December 22, 2009 at 6:46pm

It depends on location (where you're at), blood type and liver functions. Jess was an A+ but we felt that she wasn't going on the list in LA. We moved to Kentucky. She was listed at Cincinnati Childrens the third month we were here and got her transplant 4 months later. We ran into others that were blood type of O and waited almost 2 years. You never know.

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Permalink Reply by Alicia Nelson on December 22, 2009 at 8:33pm

Thank you everyone who has written back so far. :)

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Permalink Reply by Ramona on December 23, 2009 at 9:52pm

My husband had about 48 hrs to live the first time - and he got a liver in about 36 hrs. He's currently re-listed and has been on the list 2 1/2 yrs. His health has improved with some changes (quit work & switched to organic food). I think his MELD was about 20 0r 21 when listed this time, and is down to about 13 right now. He's doing good and they think it might be another 2 yrs before he has an imminent need of surgery.

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Permalink Reply by Eileen Forman on December 26, 2009 at 10:24am

I was on the transplant list for 5 years. I don't know how long before that I was sick. I had a burst varice before anyone knew I was sick. That's how they discovered I needed a transplant and was listed right away. When I finally got my transplant I didn't have much time left. I live in the DC area and there is a lot of competition for organs. We have several big transplant hospitals in the area and they are competiting for organs. I am very thankful I am one of the lucky ones.

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