Just curious what the average wait is for a full liver transplant. I have been on the list for about 8 months now. I will be getting more labs done for UNOS again Jan 4th. So we will see what my MELD score is... Currently it is at a 16.

Views: 376

Reply to This

Replies to This Discussion

Thank you Cathy!... I know I am waiting to get higher on the MELD score. California is so hard, there are so many people.
Dear Alicia,
I had a liver included as a part of a multivisceral transplant. My transplant doctors in Miami did not tell me what my MELD score was, but they did say that I was probably at the top of the list (I had been jaundiced quite a while). I think at first they were afraid I might not be able to handle the surgery, but I am so glad that I was given the chance, and give thanks to God every day. I got a call a couple of weeks after I was put on the list, but it turned out to be a dry run because the organs were just too big for my small body. I had one other dry run, but all in all, I ended up waiting a little over three months for my transplant. I hope that you will not have to wait too much longer. I will be sure to keep you in my thoughts and prayers. Best of wishes to you, and may you have a blessed Christmas.
Thank you, may youy have a blessed Christmas as well!
I WAS DIAGNOSED WITH HEP C AND CIRRHOSIS SEPT 2003......RECEIVED MY GIFT OF LIFE LIVER 02/17/05....BEGAN "GOING DOWNHILL" NOVEMBER OF 2004....QUICKLY WORSENING....BEGAN BLEEDING AND WENT UNCONCIOUS....TAKEN FROM FRANKLIN (WESTERN MTNS OF NC) TO DUKE UNIV....DURHAM NC...BY HELICOPTER....KEPT ALIVE THERE 2 DAYS AWAITING A LIVER......TRANSPLANTED......AND AM ALMOST 5YRS OUT FROM SURGERY.....I KEEP TRUDGING ALONG.....KEEPING MY STRENGTH....LABS, MEDS, ETC........

BLESSINGS..... SYLVIA
Thank you........
I have/had Polycystic Liver Disease and was listed 1/09/09 and was transplanted on 11/24/09. Hang in there - it is a hard process to go through and a challenge to wait - the call will come when you least expect it! I had been told my wait could possibly be another year and then out of the blue the phone rang - I am doing well 1 month to the day from my transplant - I will be praying for you and for your family - Teresa
Alica, Hello from La Mesa, Ca I had my transplant 5 months ago at Scripps Green Hosipal located in La Jolla, Ca The meld score to be transplanted here is 25. In my case I was admitted on July 13, 2009 and my meld was 13 for 1 week and then my meld jumped to 25 and everyone started jumping through hoops to get me listed 1 week later still not listed and meld was 39 and the following day untill transplant my meld was 41 for the next 8 days then I recieved my gift of life on July 30, 2009. Hang in there Alica, it will come but for now if you don't have things in order get them in order. You are in my prayers.
i see that you was a 41 at transplant my father recieved his gift at a meld 41 as well on 5/30/2010 and he is still in icu . if you dont mind me asking how long did it take you to recover ? did you still have encephalophy ? how long did that last if so? my father is still hallucinations and im not sure y he is taking pro graft and water pills prednisone and a few others he was sick for along time hhas been on the list for a year before recieving his transplant . and in dec was a 25 and stayed there for along time till april 30th he jumper to 27 and then the next week 31 and the next day 34 and then stayed there in the 35 and 37 for weeks and the last week he jumped to a a 41 on may 20th and stayed there till transplant he was in a comma for over a month but not in icu till the last 2 weeks please any answer help form someone who recieved a transplant at the higher melds without cancer my email address is steffanymb@gmail.com thanks so much and may god bless
It depends on location (where you're at), blood type and liver functions. Jess was an A+ but we felt that she wasn't going on the list in LA. We moved to Kentucky. She was listed at Cincinnati Childrens the third month we were here and got her transplant 4 months later. We ran into others that were blood type of O and waited almost 2 years. You never know.
Thank you everyone who has written back so far. :)
My husband had about 48 hrs to live the first time - and he got a liver in about 36 hrs. He's currently re-listed and has been on the list 2 1/2 yrs. His health has improved with some changes (quit work & switched to organic food). I think his MELD was about 20 0r 21 when listed this time, and is down to about 13 right now. He's doing good and they think it might be another 2 yrs before he has an imminent need of surgery.
I was on the transplant list for 5 years. I don't know how long before that I was sick. I had a burst varice before anyone knew I was sick. That's how they discovered I needed a transplant and was listed right away. When I finally got my transplant I didn't have much time left. I live in the DC area and there is a lot of competition for organs. We have several big transplant hospitals in the area and they are competiting for organs. I am very thankful I am one of the lucky ones.

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Matthew J Litkie liked Matthew J Litkie's discussion Is anyone taking the New Med. for $10,000 pr month?
Monday
Matthew J Litkie posted a discussion

Is anyone taking the New Med. for $10,000 pr month?

The new med that is at 90 some odd % success rate. Cost around $10,000 pr month. The Company is giving it out to some for no cost, but the Lucky Ones are90% Gone, Super high MELD scores See More
Monday
Ramona left a comment for Terri Lynne
"The poor kidneys have to take up all the slack! "
Sunday
Terri Lynne commented on Catherine (Cathy)'s group Who's On Cellcept?
"I see the doc next month"
Sunday
Profile IconThere are 4046 members on TransplantCafe.com - The Gift of eLife!
Sunday
Tracy Ann is now a member of TransplantCafe.com - The Gift of eLife!
Saturday
Leisla Lugo and vince alario are now friends
Jun 26
Terri Lynne commented on Catherine (Cathy)'s group Who's On Cellcept?
"I started taking it almost 2 weeks ago for this rejection that showed up in my biopsy. My coordinator has me eating before I take it because it started making me feel sick all the time."
Jun 25
Terri Lynne joined Catherine (Cathy)'s group
Thumbnail

Who's On Cellcept?

Is Cellcept Your Primary Anti Rejection Drug? Then join the 'Who's on Cellcept?' group!
Jun 25
Jenny Murdock kidney transplan is now a member of TransplantCafe.com - The Gift of eLife!
Jun 25
Terri Lynne left a comment for Phillip Orosco
"Thanks for adding me, hope you're having a good day! Still itching but don't feel sick today."
Jun 24
Phillip Orosco joined Judee Hill's group
Thumbnail

Organ Transplants Across the Globe

For anyone affected by organ transplant in any way or anyone interested in promoting organ donation anywhere in the world. To join, please "friend" Judee Hill & request to join.See More
Jun 22
Phillip Orosco left a comment for Rosemery Chantre
"Congratulations "
Jun 22
Terri Lynne replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
"Philip, I like your train of thought and couldn't agree more. I've been spending my time at work or asleep and that takes my mind off all of that. I'm off today. The itching isn't as bad as it was the other day. Starla, my liver…"
Jun 22
Phillip Orosco replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
"That itching....thats the worse...i feel for you. Been there with all that itching.  Nothing they gave me worked except morphine and they stopped it. The morphine was wonderful....no wonder its so addicting...LOL Iysed to stay up all night…"
Jun 22
Terri Lynne replied to Terri Lynne's discussion 23 year liver transplant rejection in the group Liver Transplants
"@Jan Ward...I'm ok, waiting till the 29th for labs. I've been itching like crazy but my last bili level was 0.9 so that wasn't high. My other liver numbers were but that. If I am still itching when I get labs, I guess I will tell my…"
Jun 21

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2015   Created by TransplantCafe.com.

Badges  |  Report an Issue  |  Terms of Service