Just curious what the average wait is for a full liver transplant. I have been on the list for about 8 months now. I will be getting more labs done for UNOS again Jan 4th. So we will see what my MELD score is... Currently it is at a 16.
I had a liver included as a part of a multivisceral transplant. My transplant doctors in Miami did not tell me what my MELD score was, but they did say that I was probably at the top of the list (I had been jaundiced quite a while). I think at first they were afraid I might not be able to handle the surgery, but I am so glad that I was given the chance, and give thanks to God every day. I got a call a couple of weeks after I was put on the list, but it turned out to be a dry run because the organs were just too big for my small body. I had one other dry run, but all in all, I ended up waiting a little over three months for my transplant. I hope that you will not have to wait too much longer. I will be sure to keep you in my thoughts and prayers. Best of wishes to you, and may you have a blessed Christmas.
I WAS DIAGNOSED WITH HEP C AND CIRRHOSIS SEPT 2003......RECEIVED MY GIFT OF LIFE LIVER 02/17/05....BEGAN "GOING DOWNHILL" NOVEMBER OF 2004....QUICKLY WORSENING....BEGAN BLEEDING AND WENT UNCONCIOUS....TAKEN FROM FRANKLIN (WESTERN MTNS OF NC) TO DUKE UNIV....DURHAM NC...BY HELICOPTER....KEPT ALIVE THERE 2 DAYS AWAITING A LIVER......TRANSPLANTED......AND AM ALMOST 5YRS OUT FROM SURGERY.....I KEEP TRUDGING ALONG.....KEEPING MY STRENGTH....LABS, MEDS, ETC........
I have/had Polycystic Liver Disease and was listed 1/09/09 and was transplanted on 11/24/09. Hang in there - it is a hard process to go through and a challenge to wait - the call will come when you least expect it! I had been told my wait could possibly be another year and then out of the blue the phone rang - I am doing well 1 month to the day from my transplant - I will be praying for you and for your family - Teresa
Alica, Hello from La Mesa, Ca I had my transplant 5 months ago at Scripps Green Hosipal located in La Jolla, Ca The meld score to be transplanted here is 25. In my case I was admitted on July 13, 2009 and my meld was 13 for 1 week and then my meld jumped to 25 and everyone started jumping through hoops to get me listed 1 week later still not listed and meld was 39 and the following day untill transplant my meld was 41 for the next 8 days then I recieved my gift of life on July 30, 2009. Hang in there Alica, it will come but for now if you don't have things in order get them in order. You are in my prayers.
i see that you was a 41 at transplant my father recieved his gift at a meld 41 as well on 5/30/2010 and he is still in icu . if you dont mind me asking how long did it take you to recover ? did you still have encephalophy ? how long did that last if so? my father is still hallucinations and im not sure y he is taking pro graft and water pills prednisone and a few others he was sick for along time hhas been on the list for a year before recieving his transplant . and in dec was a 25 and stayed there for along time till april 30th he jumper to 27 and then the next week 31 and the next day 34 and then stayed there in the 35 and 37 for weeks and the last week he jumped to a a 41 on may 20th and stayed there till transplant he was in a comma for over a month but not in icu till the last 2 weeks please any answer help form someone who recieved a transplant at the higher melds without cancer my email address is firstname.lastname@example.org thanks so much and may god bless
It depends on location (where you're at), blood type and liver functions. Jess was an A+ but we felt that she wasn't going on the list in LA. We moved to Kentucky. She was listed at Cincinnati Childrens the third month we were here and got her transplant 4 months later. We ran into others that were blood type of O and waited almost 2 years. You never know.
My husband had about 48 hrs to live the first time - and he got a liver in about 36 hrs. He's currently re-listed and has been on the list 2 1/2 yrs. His health has improved with some changes (quit work & switched to organic food). I think his MELD was about 20 0r 21 when listed this time, and is down to about 13 right now. He's doing good and they think it might be another 2 yrs before he has an imminent need of surgery.
I was on the transplant list for 5 years. I don't know how long before that I was sick. I had a burst varice before anyone knew I was sick. That's how they discovered I needed a transplant and was listed right away. When I finally got my transplant I didn't have much time left. I live in the DC area and there is a lot of competition for organs. We have several big transplant hospitals in the area and they are competiting for organs. I am very thankful I am one of the lucky ones.
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"Hi, still in rejection, posted update on my page. I wasn't sick or anything. I felt fine, just went in for labs like usual and here I am 3 months later. Thanks for the concern and checking in on me! I am getting labs again Thursday.
I haven't posted since this started but still in rejection. September 11th, it will be 3 months since this started. It kind of was getting better so doc lowered prednisone to 15mg and let me go a month till next labs. I had those labs August 17th and they went up, a lot. He raised my Prednisone to 40mg for 7 days, 30mg for another 7 days. I am almost done with the 30mg and it will go back to 20mg. I am getting labs again Thursday. I've pretty much been getting labs every two weeks since this started.You can go to my main blog to read the updates to this.http://terri7291.blogspot.com/Current med listPrograf 3mg twice a dayCellcept 500mg twice a dayPrednisone 30mg once a dayMotropolol 25mg once a day (blood pressure)Terri24 Year Liver Transplant SurvivorSee More
Hello all. New to this site 9 months post LiverFinding out a lot about what comes after the transplant. I know it will vary but wondering what else to expect for the next 9? WelcomeAnyone and anything is fineSee More