After 3 Years [Liver TX.] My Hospital is letting me take Labs. every 3 months now.
What about 5 yrs, 10 yrs after TX?
Thank You!    

Thanks everyone! Your comments have helped a bunch.

Views: 67

Reply to This

Replies to This Discussion

I am going to be 14 yrs s/p liver transplant xmas eve, I am now doing office visits every 6 months and labs 1x a month . I am a complicated case as I have gulf war syndrome and other war time maladies from other wars n conflicts, lucky to be here, 1 day at a time, so I dont mind the frequency.

Richard

I am post 18 years....and still go every 3 months for a blood test......

Thanks Everyone! I guess its every 3 as long as I am well!

Matt, Congradulations on 3yrs. It will be 3 for me in April. I really think that was a good idea ordering all info on the meds. I take the same meds, so I will do the same. Thats what I really appreciate about this site. Its full of good ideas and its all real. You can only learn from a person who has been thru the same and lived to tell the story. Good Luck, Nick

At 9 months out, (heart tx), they let me go 3 months then I had my annual visit(you know they run the rack on you) and now I go back in April. I am very fortunate and have had no measurable problems that they did'nt take care of quickly. Go St Lukes Heart Institue in Kansas City you rock....lol

After I lost my Medicare A & B, I didn't get billed for my monthly labs from my insurance until a number of months went by. PREFACE: i had Medicare A&B with employer based secondary medical benefits while on peritoneal dialysis. Post kidney/pancreas trnx in March 2007, countdown to 33 months. NOW, my monthly labs cost me $100. I work for the State of CA, and am missing my labsl for the last few months, and, after speaking to my wonderful nurse at UCSF, I am supposed to be doing them every six weeks. This came at my request because of the cost I have with my medical insurance. I feel good, but am sleeping a lot recently.

 

 

That's no good, I hope you can find a way to get your Labs when you need them. I would ask a your TX Dr. about it he might say every 3 months. God Bless!
I get mine every two weeks.  My Dr says I only need it every 2 or three months but I figure its my life and I want it to last, so I track it very carefully.  Doing so has saved my kidney at least once.
i got a liver transplant in november 1999 after i went home i did labs every week then i got to once a month i then got very depress and stop takeing  the medication which almost cause me to lose the liver i got better and ever since my doctors had me give labs twice a month until two years ago were i went back to once a month i fell okay but now the prograf i take gave me stage three kidney disease for now i am okay as long  as they control my medications.

RSS

Photos

Loading…
  • Add Photos
  • View All

Latest Activity

Amber Futchko replied to Mary Ellen Revans's discussion gastroparisis
"My ex-boyfriend has type 1 diabetes and gastropherisis. He was able to get a gastric pacer put in and is mostly normal now."
Saturday
Amber Futchko replied to Bob Fontaine's discussion Liver disease and getting a tattoo
"Personally, I did extensive research about the place I was going to get a tattoo from. Then I took exceptional care of it. I've gotten 2 tattoos but one of them was worked on 2 different times."
Saturday
Amber Futchko posted discussions
Saturday
Profile IconAmber Futchko and Kim joined TransplantCafe.com - The Gift of eLife!
Friday
Bobbiejo Winfrey replied to Mary Ellen Revans's discussion gastroparisis
"Dear Mary Ellen, I am sorry that you had to be in the hospital, but I am glad you are feeling better. I hope that you will not have any more flair ups. I know though that some people with gastroparesis do go through cycles of feeling better and then…"
Wednesday
Lili Feldman commented on Lili Feldman's group The Funny Bone
"SCHOOL! A little girl had just > finished her first week of school. 'I'm just wasting my time,' she said > to > her mother. 'I can't read, I can't write, and they won't let me > talk!' BIBLE! A…"
Feb 1
Lili Feldman commented on Lili Feldman's group The Funny Bone
": Kid's say the funniest things! > *Photo of the new generation! * > * NUDITY I was driving with my three young children one warm > summer > evening when a woman in the convertible ahead of us stood up and waved. > She >…"
Feb 1
Jay Graham MD posted a blog post

New Version of Transplant Hero is available and has everything you have wanted...

Thank you so much for your feedback.   The new version of Transplant Hero has all the "bells and whistles"!https://itunes.apple.com/us/app/transplant-hero-medication/id969039026?mt=8But please, let me know how Transplant Hero can be improved.Also the Android version is coming in SpringBest, Dr. GrahamSee More
Jan 31
ian cribb left a comment for Cihat Ezin
"I just heard of Cihat's passing."
Jan 31
ian cribb posted a status
"One of my friends (Cihat Ezin) told me about this site. Cihat just passed away this January. So I thought I'd join to let everyone know,"
Jan 31
Jasmine posted a status
"guys my first video talks about living with a chronic illness and life on the list https://www.youtube.com/channel/UCGBhncDeT2hTSh_KQwA4gDw"
Jan 30
ian cribb is now a member of TransplantCafe.com - The Gift of eLife!
Jan 30
Mary Ellen Revans replied to Mary Ellen Revans's discussion gastroparisis
"Hi Bobbiejo, Thank you for your prayers, that is important to me.:-) They decided to put me back into the hospital to have their GI doctor consult with me.  Unfortunately, by the time that they put me back in, whatever is going on with me…"
Jan 29
John M. updated their profile
Jan 29
Jessica posted a status
Jan 29
Margaret Kelly commented on Lili Feldman's blog post Post Transplant Lymphoprolifeative Disorder
"Hi im currently sitting with a blood pressure monitor on ha ha so far i have been told i have hardening of the arteries of my kidneys high blood pressure. And am being checked for coeluac disease but i am taking advagraf for my liver transplant so…"
Jan 29

quick links!

 follow transplant cafe:

Find us on Facebook Follow us on Twitter Subscribe to TransplantCafe

Meet Members by Transplant Type

Heart Kidney
Liver Single Lung
Double Lung Pancreas
Intestinal Bone Marrow
Tissue Kidney / Pancreas
Other Transplant

Badge

Loading…

© 2016   Created by TransplantCafe.com.   Powered by

Badges  |  Report an Issue  |  Terms of Service