I know this is a strange question, given the fact that we are all on immunosupression drugs. I almost 10 months out from my transplant surgery and since March I have been having trouble maintaining a white blood cell count that my doctor was confortable with. At one point I even had what was essentially zero white blood cells but it has bounced around since then. I was taken off of Cellcept, and it was replaced with Arava, and my prograf has steadily been lowered (2mg twice a day now). But I'm still having trouble. Just yesterday, my doctor discontinued my Valcyte prematurely and halved the Arava dosage because my wbc was still creeping down.
Has anyone else had this problem? Was a reason discovered? What was the course of action? I trust my doctor, and he isn't too worried, but continues to try and fix it. Any insights?
I had quite a few problems with a low white blood cell count. I think I was about 3 or 4 months post transplant (kidney pancreas) they took me off antibiotics that I was on, eventually took me off of Cellcept (I was only taking Prograf for quite some time I think about a year), and eventually they gave me injections of Neupogen to bring up the WBC levels. Still with all that I had some troubles. I did however end up with CMV my donor was positive and I was negative. CMV can lower the white count and also the Valcyte you have to take to treat it lowers the count as well. It eventually straightened itself out, but it is just baretly at or above 4 now and I am 2 years post transplant. They just put me back on Bactrim 3 times a week so we will see how that goes. I'm not sure of any other ways they treat this condition and of course you have a heart transplant so I am sure there must be differences there as well. I know at one time my white count was coming up, looking pretty good so they did some kind of blood test and further broke down the white count they kept giving me Neupogen even though my count was acceptable to bring up some value that I don't know the name of. Had something to do with the bodies production of white blood cells. Okay not sure if I have helped any or not! I certainly hope they get it all figured out I know how frustrating that can be!
Michael, it's not a strange question :) My white blood count dropped really low too! The doctors found out if was from cellcept, so they took me off that and switched me to rapamune. I took a little while for it to get back up there though. That was the case for me, but as you know everyone's body is different. Also, since your only 10 months out, it could be your bodies reaction to all the new meds they are stopping/starting...? Hope your wbc starts rising soon...take care.
yeah they took me off cell cept too, but didn't replace it with anything. and i'm on 2mg of prograf twice a day. you ever hear of that girl from austrailia....her white blood cells were low, she got sick, and her blood type switched to the donors blood type. That's insane.
"One morning, as Sarah is leaving Starbucks with her usual take-away coffee, she notices an unusual funeral procession coming along the road towards her. At the front is a large black hearse and 20 yards behind this is a second black hearse. A…"
"We have to force our self's to get physically active, even if it is just walking.
I do not use the word exercise, because it sounds like hard work.
I started riding a Mt.bike, it is awesome. Even short trips help.
I tend to ware my self out,…"
"Wow! Thank You for all the responses.
I am really doing well as health goes (Labs look like Awesome) but still have a time with motivation issues. I want to get a "Radical Change" in spirit.
I know The Lord is watching out for me, I…"
Catherine Lynn is now a member of TransplantCafe.com - The Gift of eLife!
I am dealing with something similar. Transplant about 18 months ago/liver. Get energy At times and have plenty of motivation to go and do. However, energy level takes a dump like now and it is very challenging to get started and stay at it. Not…"
"A lady goes to her priest one day and tells him:'Father, I have a problem. I have two female parrots. But they only know to say one thing.'"What do they say?' the priest asked. They say, "Hi, we're hookers! Do you want…"
"An admiral visited one of the ships of the line under his command. While eating breakfast with the crew he was impressed to see the Naval insignia stamped on every biscuit. He went to the Chief cook to ask how this feat was done, so it…"
Hello everyone, I hope this find everyone bless as I am. I am celebrating ten years with my liver transplant (thank you lord). My physician just changed my meds from program and cellcept to prograft and myofortic. Just asking if anyone is using myofortic? I adjust a little scared of the recent change.
"Back and forth . . . . Back and forth . . . .In and out . . . . In and out . . . .A little to the right . . . . A little to the left . . . .She could feel the sweat on her forehead . . . .Between her breasts . . . . And, trickling down the small of…"
Karen Kent is now a member of TransplantCafe.com - The Gift of eLife!
"Congratulations Charles! In May I will have 13 years - they go by so fast. My first 18 mos were full of anxiety. I was glad to be alive - ecstatic. My numbers went up and down as my body got introduced to the hew liver…"