I remember watching a Montel Williams show episode a few years ago on this topic. A lot of what they said seemed far out, but the people there were believable. They described things where they didn't like a certain food before and now loved it and turns out their donor did too. Or, they now liked a certain type of music, etc...
So, I would probably not have posted anything about this topic myself, but then today, I read this article: Click Here. It is an entertaining read.
If you care to comment and without being too specific or mentioning names to stay sensitive to donor families and living donors.. talk about your thoughts or experiences with this. Or your opinion about the article.
It's strange yes, since receiving my heart 23 years ago I have gradually developed a huge taste for German foods, I have started learning the language and I am a MASSIVE fan of Rammstein and Eisbrecher (German Heavy Metal bands).
I go to see Rammstein live in February 2010 -CANNOT WAIT!!!!!
Oh i belive it. I had a kidney/ liver transplant in 99' when I was fifteen. pre transplant I not only did not like eggs I had a allergy to them. now i love them and am not allergic any more. Also before my hair was straight as a board now it's frizzy and poofy
Several years ago gave me a book, in Spanish the titule is a " Baile de corazones " that in English is something like " Dance of Hearts ", in a book written by a ballerina tx of heart, she reports many studies that I realize to confirm her, supcición brings over of if one inherits something from her donor, there is interesting the study, speech of the cellular memory that possesses every fabric of our bodies and that really is possible that us something is penetrated of the donor, as tastes that before you did not have, already be for to food or objects, etc., I am OK to seeking for the book pa to see the details for if someone they are interested her reading.
Claire Sylvia, who wrote " Dance of hearts ", a work in the one that gathers her own experience as transplanted of heart and lungs. According to this American ballerina, soon after the intervention ,she started feeling her donor of an intense way. Itshe was dreaming of him and even he knew his name in spite of the fact that nobody had revealed it.
My transplant was 6 years ago. When I was finally asked to eat after surgery I requested a cheeseburger and a piece of chocolate cake. I was one before who never ever ate cheeseburgers nor sweets like cake. Later on I had cravings for gummy bears. Once again never ate or wanted to eat a gummy anything. After talking with the parents about their sixteen year old daughter , my donor I found out that cheeseburgers , chocolate cake and gummy bears were her favorite foods. They also told me how on all birthdays she would bake a chocolate cake. So now on my birthday as I celebrate life I have a slice of chocolate cake for Shawna and I.
I used to love my coffee but since my Lung TX almost 3 years ago, I haven't had a single cup...Just the smell makes me nauseous :*(
I've allways had rain-water-straight hair, now it has a bit of a curl that my poor hairdresser is learning to tame LOL
I am addicted to playing with Photo Shop Pro..using digital images from people like Suzanne Woolcott, The Allen Girls and Popeye Wong.
I have found i have developed a very spiritual side
All these things are strange to me but I fully embrace the "new" side to me.
Positive thoughts, blessings, love, light, peace and karma to all
Pre tx (heart) I couldn't stomach tacos; watermelon & yogurt sent me straight to the bathroom, to hurl! Taste; texture & smell, with all of them was horrendous. Now, I eat them whenever I can. As for the food I grew up with, Cal/Mex; Chinese; Italian & lots of meat, with the exception of a very few things, most of the food either doesnt taste good or smells funny! However, I've developed a keen interest in experimental cooking! Couldn't watch anything except Food Network, after I got home. My donors family has recieved my thank you letters & updates on how their "son" is doing, but they've never answered & I have so many questions. All I know is that he was an expert skier (that terrifies me!) & extremely healthy. I have also developed an interest in the gym. I have no doubts that' in some strange way we two are now one-comingled. Does that sound strange? A lifelong Catholic, even before I officially converted, I've discovered a curiousity about other religions! Really strange. Sure wish they'd at least write, if only so I could tell them I'm doing my best for their son. Paula
I'm new to the Cafe' - found this site tonight, actually, as I was searching online for this very topic. I have found that since my transplant (kidney/panc.) 5 1/2 years ago, I love pepperoni pizza, ice cream sandwiches, and peanut m&m's. Pre-transplant I had an issue with pizza - had gotten sick after eating it about 20 years ago - didn't really like ice cream and was NOT a chocolate fan.
I do believe that many things are transferred with transplant. I have also found that I have had many different emotions - I thought that I would feel euphoric with the new things in my life, but have felt very hopeless and despondent since then. I am very spiritual, but could not seem to break out of the funk that had followed me - until the last couple of weeks. I have consulted a medium (don't freak out, please) and have been told that I have her spirit with me - my donor. Was told that she had been with me off and on over the years and was here so that I would know that it was okay, I can let go of my sadness over her death, and that she was here for me. I know this sounds totally out there, but since this happened my home has become peaceful. I no longer hear thumping during the night, no longer wake up knowing that there is someone there....she has crossed over and I am finally feeling peaceful. People in my life have commented on how "different" I look - brighter, glowing even....odd?? YES! You'll probably ban me from this site after reading this!! Or totally ignore my presence...but is there anyone out here who has had these types of experiences? This was not something I expected...was very afraid when these things started happening recently....can anyone relate? Experiences?
SinceI 'm fey, I'm a total believer. I've had new taste s& lifestyle experiences & feelings of not being alone. I don't talk about them, except to 2 of my daughters, as they are also Fey. Our Celtic blood. As for the sadness, it's called survivors guilt & EVERYONE has it to some extent or other, even if they don't say so. Let's face it, we are ailve because someone died. That is a given, unless you had a live donor/liver or kidney. Meds always play a huge part in our behaviour. Something all docs know about but seldom discuss, at any length. Hence, the cafes usefulness, to all of us. There are more than a couple of strange stories in here, so, don't feel alone. Lets face it, we are now 2 people, not just 1. To me. what you are feeling is perfectly normal. Relax & live to the fullest the new life your donor gave you. Hugs & Blessings, Paul
Hi,First post folks. I'll begin with quick background: My 15-year old daughter had a heart transplant 6 months ago after having severe dilated cardiomyopathy with left ventricular noncompaction (now known to be a result of a genetic mutation original to her). Anyway, transplant was at the highly acclaimed Columbia/NewYork-Presbyterian Hospital - to which we moved for waiting for the heart, transplant, and follow-up care. Now, 6 months after transplant, we moved back to our home. Our medical team has a different protocol for checking for organ rejection.Whereas NYP's protocol is cardiac biopsy every month for first year, every 2 months for second year, and every 3 months for third year, our hospital's protocol moves to every 3 months after 6 months, then every 6 months after a year and every year after 3. Bottom line- much fewer cardiac biopsies.I'm wondering if you know the different protocols in checking for solid organ rejection / heart - and how they differ from different medical…See More
Hi, My wife had a double lung transplant, 16 years ago this Sunday. At the age of 27, dying from CF, she was gifted life by the transplant team at MGH in Boston, and two non-related living donors. We've been together for 8 years and I play both roles of husband and caregiver.Although her sweet 16 "Lungaversary" is Sunday, on Monday she goes for a major surgery (not pulmonary related). I sure am nervous. I've witnessed her resilience, self efficacy and recovery from multiple pneumonias, illnesses and painful secondary ailments caused by medications. But this total open abdominal procedure will really immobilize her and expose her to infection (inpatient or out). I'm scared, but can't fully express it because she is scared and seeks emotional comfort and strength from me. Every day I "should" be grateful, not worrying.I apologize for writing so much on my first post. I hope to find some support and insight here.StefanSee More
I recently injured my hand and now have to have surgery on it to repair it. They are going to be putting me out for the surgery. Now grant it, I, on a regular basis go to my transplant center for different procedures(ie;allomap, biopsies, heart caths, etc) and feel completely at ease in doing so, it has been 4.5 years since my heart transplant, Yet I have found myself with a lot of anxiety going into this surgery, one that they are putting me under, two, it is not at my transplant center but at another hospital. It is really weird that i seem to have more anxiety concerning this surgery then I did about my transplant. The faith I have been granted affords me to have confidence in my eternal destiny to be with Christ and that is what/and has guided me through my entire transplant journey. Can anybody shed some light on their experience they have had with other surgeries following transplant. With a grateful heart, JeffSee More
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I lived with stage 4 (end stage) liver disease for 15 years. The fall of 2010 was the beginning of a rapid decline. I received a transplant in May of 2011. As you know a transplant gives you a new life but does not cure the hepatitis C, it begins its damage of your new liver immediately. Thanks to the incredible staff of the Mayo Clinic Liver Department and new drugs Solvaldi and Olysio I have been virus free for over 5 months and hope that my 6 month blood test will be still be negative. Interferon and ribovarin would show no virus and then a month or so it would rear it's ugly head. I had no side effects from the two new drugs. These drugs are very very expensive but I was fortunate that Mayo knew where to go for help with these two drugs whose combined costs is $58,000 per month for 3 months. $174,000.
A group for those of us who had a liver transplant due to acute / fulminate liver failure. Here we can discuss our experience with this unexpected form of organ transplant including psychologically, physically and all else that goes with it.
"At a local bar in downtown St Paul, the owner and bartender, was so sure that he was the strongest man around, that he offered a standing $1000 bet. The bartender would squeeze a lemon until all the juice ran into a glass, and then hand the…"