"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
boulanger's Discussions (1)
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  "avis of Community veiled grafted for the troisiéme time by the kidney I have partici…"boulanger replied Nov 6, 2008 to Reaching Out To Donors and Donor Families |
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Nov 6, 2008 Reply by boulanger |
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Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
Matt Lawson commented on TransplantCafe.com's group Team Prograf"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
Dottie welker commented on TransplantCafe.com's group Team Prograf"wow sorry for all the typos !! teach me to read before hitting enter lol
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Dottie welker commented on TransplantCafe.com's group Team Prograf"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
Dottie welker joined TransplantCafe.com's group
Team Prograf
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Dottie welker replied to Tai's discussion eating shellfish post transplant"Hi,
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"
Nulungs95 replied to Tai's discussion eating shellfish post transplant"Clarify with UR center....they always have a warning on the menu about eating undercooked food. Maybe UR center doesn't want U to risk it."
Neil Willens replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Sorry. Wanted to help you by taking your survey, but you only want people under 18 years of age, according to the introduction. Again, good luck.
Neil"
Neil Willens replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Nothing like waiting until the end of May for the big graduation project....
Good luck.
Neil"
Allie commented on Kathryn Flynn's group Lung Transplants"Hey everyone! I am a heart recipient and about to graduate college! To graduate I have to do a large research project, could you please help me by filling out my survey? It will only take 3 minutes and is totally…"
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