"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
Featured Discussions (32)
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  Help!!! I am 5 years out and still losing hair!Ok, So my "Kidneyverssary" was this past January. I am 5 years out and I have been on Prograf and have to be on valcyte for life. I used to… Started by Sabrina George in New to the Cafe? Introduce Yourself to the Community!Latest Reply |
  Searching for Interviewees on Cellular Memory -- Documentary on Swiss TelevisionHello,I am a journalist working for the programme "Temps Présents" on Suisse television (http://www.tsr.ch/emissions/temps-present/). This… Started by Lisa in New to the Cafe? Introduce Yourself to the Community!Latest Reply |
 double lungHELLO EVERY-ONE.. I AM NOW ON THE LIST , SCARED TO DEATH ,, I AM AT THE TOP BECAUSE OF BLOOD TYPE,,, WOW !!! Started by mary stjohn in Lung TransplantsLatest Reply |
getting fit while on dialysis? how to do itHi everybody, my name is luis Im a kidney patient schedule for transplant on december.I've been on dialysis for 2 years now. I feel good i… Started by luis bustos in New to the Cafe? Introduce Yourself to the Community!Latest Reply |
  <<< Listen to 'The Power of Two' movie soundtrack and meet the soundtrack producer, Nicole Dionne! >>>**Click the image above to purchase 'The Power of Two' soundtrack CD and enjoy some of the most beautiful and inspiring songs you'll ever h… Started by TransplantCafe.com in Transplant Movie & Book ReviewsLatest Reply |
Tattoo post-kidney transplantI really do apologize for clogging the forum with a message such as this one but as so many of you surely know, a transplant is life-changi… Started by Jessica Jondle in General Discussion & CommunityLatest Reply |
 2012 Transplant Games of AmericaSince the announcement by the NKF in May cuspending the transplant games for 2012, a group of individuals in the Grand Rapids, MI area have… Started by Rich Morgan in New to the Cafe? Introduce Yourself to the Community!Latest Reply |
  Taking Birthcontrol pillsI had a heart transplant and have liver disease...I was wondering if any females can recommend a good birthcontrol pill that doesn't affect… Started by Melissa B in MedsLatest Reply |
 Need all my transplant cafe members helpI need some help from my fellow transplant recipients, I enter my wife in a contest @ ebhorn.com telling our love story of 25 years &… Started by Jim Kane in General Discussion & CommunityLatest Reply |
 looking for kidney and Pancrease Recipients. Have alot to ask and discuss. My husband has recieved both. TyThank you* Michelle Started by Michelle L Schaeffer in New to the Cafe? Introduce Yourself to the Community!Latest Reply |
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Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
Matt Lawson commented on TransplantCafe.com's group Team Prograf"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
Dottie welker commented on TransplantCafe.com's group Team Prograf"wow sorry for all the typos !! teach me to read before hitting enter lol
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Dottie welker commented on TransplantCafe.com's group Team Prograf"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
Dottie welker joined TransplantCafe.com's group
Team Prograf
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Dottie welker replied to Tai's discussion eating shellfish post transplant"Hi,
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"
Nulungs95 replied to Tai's discussion eating shellfish post transplant"Clarify with UR center....they always have a warning on the menu about eating undercooked food. Maybe UR center doesn't want U to risk it."
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