"Dottie,
If your doc write BS/BS and specifies that you need prograf, not a generic med, they will back down. It's up to a doc to decide. All generic meds aren't the same as the name brand. At MGH they prefer prograf, although they said…"
All awareness Events (23)
July 24Saturday
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Rock the Railbender
July 24, 2010 from 10am to 3pm – Railbender Skate Park Rock The Railbender started in the summer of 2009 when the Town of Parker celebrated the grand opening of Railbender Skate & Tennis Park. Three well-known bands and countless athletes came togeth… Organized by Chris Klug Foundation | Type: cause, awareness
July 30Friday
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US Transplant Games
July 30, 2010 at 3pm to July 31, 2010 at 3pm – Monona Terrace Community and Convention Center US Transplant Games-Madison, Wisconsin July 30-August 4, 2010 The Transplant Games is the only national athletic competition for recipients of all life-saving organ transplants, as well as the large… Organized by Chris Klug Foundation | Type: cause, awareness, and, athletics
August 7Saturday
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Warped Tour-Salt Lake City
August 7, 2010 from 9am to 7pm – Utah State Fairgrounds For the third year in a row, CKF will be rocking the Vans Warped Tour at various cities across the country. CKF hopes you will join us and our team to spread the word on the importance of organ and t… Organized by Chris Klug Foundation | Type: cause, awareness, and, athletics
August 8Sunday
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Warped Tour-Denver
August 8, 2010 from 9am to 7pm – Invesco Field For the third year in a row, CKF will be rocking the Vans Warped Tour at various cities across the country. CKF hopes you will join us and our team to spread the word on the importance of organ and t… Organized by Chris Klug Foundation | Type: cause, awareness, and, music
August 15Sunday
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Warped Tour- Hillsboro, OR
August 15, 2010 from 9am to 7pm – Washington County Fairgrounds For the third year in a row, CKF will be rocking the Vans Warped Tour at various cities across the country. CKF hopes you will join us and our team to spread the word on the importance of organ and t… Organized by Chris Klug Foundation | Type: cause, awareness, and, music
August 25Wednesday
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Gift of Life Badugi Tournament
August 25, 2010 from 9pm to 9:15pm – Pokerstars.net Password required Badugi [4-3-2-A] (the best Badugi) Organized by Scott Kale | Type: gift, of, life, awareness
December 11Saturday
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Aspen Summit for Life
December 11, 2010 from 5:15pm to 10pm – Aspen Mountain Our mission is to raise awareness about the importance of organ and tissue donation. By participating in Summit for Life, you help us spread the message that becoming an organ donor is important and… Organized by Chris Klug Foundation | Type: cause, awareness, and, fundraiser
March 12Saturday
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Kidney Walk & Human Organ Donation Awareness Rally
March 12, 2011 from 7:30am to 10am – Shanti Vatika, Ratnapark, Kathmandu, Nepal to Basantapur periphery You are cordially invited to the awareness program - Kidney Walk & Organ Donation Awareness Rally celebrated on the occasion of the World Kidney Day on 12th of March 2011, Saturday in association… Organized by Human Organ Donation Awareness Campaign in association with National Kidney Foundation Nepal (NKFN), Dadhichi Mission | Type: awareness, rally
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BODY and ORGAN Donation Awareness Campaign
March 12, 2011 from 8am to 10am – Shanti Vatika, Kathmandu Body Donation and Organ donation saves life of our fellow citizens, families and friends. It is noblest charity and work of human being. IN Association with DADHICHI MISSION, India. Organized by BODY AND ORGAN DONATION AWARENESS CAMPAIGN | Type: awareness, rally
July 28Saturday
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Transplant Games of America
July 28, 2012 at 9pm to July 31, 2012 at 9pm – Grand Valley State University The games are a multi-sport festival event to help promote awareness and the need for Organ & Tissue donation. The purpose is to show the world the success of organ donation and honor our donors… Organized by Holly Werlein (Holdol) | Type: sporting, organ, donation, awareness
Popular Event Types
- fundraiser (34)
- awareness (24)
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- transplant (13)
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Latest Activity
Carlos commented on TransplantCafe.com's group Team Prograf"Hi Dottie, congratulations on your transplant. I have 10 years on my new liver this month. You have a new organ for only a few years. I would suggest you keep a spreadsheet of your labs as far back as you can so you can notice any…"
Clare mcgee posted a status"Anyone currently going through the Hair loss scenario that seems to blight us ladies? I am & would like to hear from you! Or any survivors?"
Clare mcgee posted a status"Hello to all @ TC from England....only 7 plus months out! Emotional is the only way to describe my journey so far x"
Darlene Tanner replied to Devra k's discussion Lung transplant in the group Lung Transplants"Hi Devra, I am Darlene & had a DLTx 3-3-11. So far no problems with lungs but I have gained 50 lbs since transplant. Finally they lowered prednisone this week to 2 1/2 mg once a day. I have had some kidney damage they are…"
Jan Ward commented on TransplantCafe.com's group Team Prograf"Hi Dottie:
Welcome from me as well. I'm three plus years out...I was on the prograf (as much as 30 mg a day) and others including immuran (as much as 150 a day) and prednisone for the first year or so...I'm now down to simply 1mg x 2…"
Laura posted a discussionHere we go again....and again!
So I had my first liver tx in 2005 (living donor) and had bile duct issues. I had a 2nd tx March 16th and have bile duct problems yet again and now I'm faced with needing a 3rd tx. Has anyone out there had 3 transplants? I've been stuck in hospital since March and the doctors want to send me home...even though I still require IV antibiotics and a VACC system. My family and I are quite nervous.
Bobbiejo Winfrey replied to Allie's discussion Hey! Could you help me! in the group Liver Transplants"Dear Allie,
I wanted to help as well, but I am no longer under 18. I do hope though that your project goes well and proves to be informative for you and those to whom you show it. If you do not mind me asking, are you graduating as an undergrad or…"
Bobbiejo Winfrey commented on TransplantCafe.com's group Team Prograf"Welcome Dottie! I had thought I would have been on more immunosuppressant than I am as I received six organs in my transplant, but I only take 2mg Prograf twice daily without a steroid. I was on the steroid Medrol in the very beginning but the…"
Matt Lawson commented on TransplantCafe.com's group Team Prograf"Hi Dottie - I'm a full, no-living-donor transplantee....I never heard of the bone marrow option....but then again I have heard someone who went to Taiwan for a liver and is on no meds and doing fine after 6 years. Whilst it might be feasible,…"
Dottie welker commented on TransplantCafe.com's group Team Prograf"wow sorry for all the typos !! teach me to read before hitting enter lol
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Dottie welker commented on TransplantCafe.com's group Team Prograf"Hi All,
Well I am shiny and new here but received my tp a couple years ago february 3rd. Anyway I see all these people that tke really low doses of prograf and kinda wonder why mone is so high my doc has me taking 6 mg 2x a day. (shrug)
Well…"
Dottie welker joined TransplantCafe.com's group
Team Prograf
This is for those of us who take Prograf as a main immune suppressive drug. We can discuss side effects, etc. Or, we can just keep a head count of how many in the community take Prograf.
Dottie welker replied to Tai's discussion eating shellfish post transplant"Hi,
Well I am new here but have to say I grew up in New England and my love for seafood did not go away post TP. I do eat seafood a lot actually but am EXTREMELY picky about where I eat it and where I buy it. The things that worry me most…"
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